I've just had my firrst dose of weekly Paclitaxel yesterday. Early days yet, but so far so good. I was not given any specific instructions on food. Are you on weekly dosage? Mine yesterday was 96mg in a gloucose delivery (instead of the usual saline). I've got some Domperidone (wish it was Dom Perignon champagne), anti ehemetic tabs but haven't really been that nauseous.
Has it been suggested that you get a PICC line? I have been told that even with good veins, getting canulated every week becomes quite hard over time. Please let me know how you get on. It's always good to compare notes with someone on a similar plan.
I'm having a CT on 5/1, so will have a better idea what happened during the month I was off drugs after I came of a trial. I notice that you are interested in trials. On the whole, I think it's worth it to be pleasantly pushy and ask (only 20% of patients do enquire). My onc is a researcher, and so he's quite encouraging. I'd say go for the Phase 2, non-randomised ones. I think only people who are in a much healthier place than us can afford the risk of getting a plecebo.
I noticed that you were asking about Private Messaging. Just click on the Member icon and it will take you to their history/details page then under Contacts - click to enable PMs.
Here's hoping that the Tax isn't too taxing for us!
There are no particular foods to avoid that are associated only with Pacitaxel as far as I know, just the usual ones to avoid for most chemo's. Your oncology nurses should advise you of their policy, strangely it does seem to vary from one NH trust to another, whereas chemo itself doesn't! They normally give a pre chemo talk and give leaflets out with guidelines, or at least they do at my hospital. If not I expect one of the MacMillan leaflets would explain it or one from BCC.
Hope this helps, if not check out the threads in the general, non secondary, part of the Forum as there's lots there about chemo and what to do or not to do.
I am sorry you have not yet received a reply from one of our users yet but I am sure one of our users will be along shortly to offer their support.
In the meantime do give our support line a call at 0808 800 6000 who can talk to you about food choices while going through treatment.
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