I've recently been diagnosied with Pagets, I'm 32years old - you're right there's not much out there, especially for younger women. I've started writing about my experience so far as I've found it really helps to get all those crazy thoghts out of your head, and maybe it'll help others one day too - http://adventuresofzomersetgirl.wordpress.com/
I'm going in for a skin sparing masectomy on Friday, I'm terrified but know it needs to be done and the most important thing of all is that y doing this I'm getting the cancer out and potentially saving my life. I'm sure that your friend appreciates all the wonderful support you are giving her, help her to stay strong and laugh as much as possible - it helps!
I was diagnosed with Pagets in March, normal treatment for this is mastectomy, unfortunately I also had another tumor in breast,( completely unrelated to the pagets) , and extensive node involvement,now going on to have chemo and rads, think we are on the same May chemo forum, if she has any questions will be happy to share with her.