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Pain after radiotherapy

94 REPLIES 94
Bibi44
Member

Re: Pain after radiotherapy

Jill amazing news!!!! Well done.  Must be a great relief xx

Jill1998
Community Champion

Re: Pain after radiotherapy

And long may it continue !!
rubycat
Member

Re: Pain after radiotherapy

Eeeyore Jill, Nessy's, Neddie's, Nadwa's, plenty of space for everyone.  So glad you didn't have to wait that four weeks, time for celebration and carrots (the chocolate kind).Cat Very Happy

Jill1998
Community Champion

Re: Pain after radiotherapy

I'm a "Nessy" ,nothing suspicious seen!!!Feel so relieved!!
Bibi44
Member

Re: Pain after radiotherapy

Thanks ladies.  We're all part of the BC family now really aren't we? I just love how everyone joins us in our good moments, as well as being there when we're down.  You're all absolute stars. xxx

Jill1998
Community Champion

Re: Pain after radiotherapy

Happy crappy anniversary Bibi,here's to moving on with your life !!!
rubycat
Member

Re: Pain after radiotherapy

Hooray, another Neddie - welcome to the paddock Bibi - plenty of space for ANTWAs.  Suppose I'm actually a NNAD as I had No New Abnormalities Detected!! - cause of huge hilarity for unbetter half. Cat Very Happy

Bibi44
Member

Re: Pain after radiotherapy

I've got all my friends coming round for lunch tomorrow to say a big thanks to them all for their support.  It's the anniversary of my diagnosis tomorrow & I thought why not have a little party to take my mind off it.  When the mammo date came through I just thought I'm going to go ahead anyway. BC has ruled my life for the last 12 months, now it's time to move on. xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Great news!!!!Treat yourself to a celebration tea and a bottle of bubbly!!!
Bibi44
Member

Re: Pain after radiotherapy

I got ANTWA rather than NED .... Absolutely Nothing To Worry About.  Yay!!! I am officially in remission & it feels good.  Fingers crossed for you Jill when the time comes. xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Keeping everything crossed for you Bibi .Yes the letter popping through your letter box at some random time over a 4 week period is not good.Surely the first one at least could be prioritised ?Hopefully you will feel a lot better by this afternoon .
Bibi44
Member

Re: Pain after radiotherapy

I know the NHS is short of cash, but surely it's just a case of the reviewer catching up with their backlog.  The process doesn't take 4 weeks, it just 2 consultant radiographers reviewing  a scan. I think 4 weeks is outrageous after what we've been through.  Maybe your results will come after 1-2 weeks, but they just say 4.  If any of them had been through treatment, they would prioritise us.  I guess they think we're unlikely to have problems, which is encouraging, & we sit behind ladies who 've just found lumps.  I can see the logic in that, but it's still a bit cruel. Also you have the surprise factor of not knowing when it will plop into the letterbox.  Oh well joy or misery for me by 3pm!  Weirdly a lot calmer today. xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Yes the thought of having to do it again is a bit if a mind ****!!!!Good that at least you get it over with tomorrow and can breath a sigh of relief or get on with dealing with it .4 weeks is the pits !!!
Bibi44
Member

Re: Pain after radiotherapy

Yes, much more anxious this last week.  There's always that little part of your head saying 'what if', even though you know chances are it will be ok.  Same day results for me eek! xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Good luck tomorrow Bibi ,brings it all back doesn't it?
Jill1998
Community Champion

Re: Pain after radiotherapy

It's was more painful definitely but they adjust the plates by hand on the operated side so they can do it very gradually .Its over in a couple of mins though.I didn't see surgeon today waiting for an appointment in next couple of weeks I will ask about ribs then.I think it's quite common to have painful ribs but it does make you a bit paranoid doesn't it.
Cesrabbit
Member

Re: Pain after radiotherapy

Did you ask about your painful ribs Jill? Did the mammogram hurt? x
Bibi44
Member

Re: Pain after radiotherapy

Jill Mine's tomorrow, so sharing your sentiments entirely. Let us know how it goes.  Fingers crossed for you xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Up to 4 weeks for the results how rubbish is that!!!!
Jill1998
Community Champion

Re: Pain after radiotherapy

Let's hope so 😬
rubycat
Member

Re: Pain after radiotherapy

Big hugs Jill - getting a space ready for a new Neddie in the paddock.  Hope you don't have to wait long. Cat Very Happy

Jill1998
Community Champion

Re: Pain after radiotherapy

I'm off for my first annual mammogram today,not looking forward to getting treated boob squished(or the results ) hope they get them back to us quickly.
Cesrabbit
Member

Re: Pain after radiotherapy

I'm very sore 12 months post lumpectomy and 7 months post rads. It's really annoying as it heightens my anxieties. My bc breast is slightly larger, fuller, harder and very tender when pressed. The scar area is sore and lumpy and my ribs ache.My bc was at 6o'clock on the breast so any bras aggravate it and going bra less doesn't help either. It is, I hope just an annoying side effect.My annual mammogram is on 5th July so I'll address all my woes then. If everything is fine then I shall stop worrying and just live with it as it's isn't debilitating, just 'there'.
Jill1998
Community Champion

Re: Pain after radiotherapy

I have very painful ribs still 9 months on from finishing rads and my boob is swollen at times too.It may be worth getting it checked out though cos the swelling could be breast lymphodema and you may need specialist massage to help disperse the build up of fluid .
Tommytraynor2
Member

Re: Pain after radiotherapy

I am 6 months post lumpectomy and sentinel node biopsy and 3 months post radiotherapy. I now have very painful ribs and a swollen breast. Any one else like this?

eddigoodwin2013
Member

Re: Pain after radiotherapy

jeanff, I know what you mean.  I know I should feel grateful and that radiotherapy is nothing like as bad as chemotherapy.  But laying naked from the waist up and being handled by different people every day is really getting me down.  They are very nice but they're so busy doing their job properly and professionally that I feel there's little opportunity to chat and make it all more human.  I've done 3 of 15 and can't wait for it to be over. 

didi
Member

Re: Pain after radiotherapy

hi havent been on here for a while, but just wanted to say you might have side effects months after.. i finished 20 rads 27th Jan and still suffer with a bit of soreness.. seen my consultant & she gave me a course of Abx just in case.. still tends to go red and swollen after exercise !!

on a more positive note I was discharged from Oncology last week so will be having 6 monthly check ups with Breast unit now 🙂

Jill1998
Community Champion

Re: Pain after radiotherapy

Good luck, hope the treatment is helpful in keeping the bugger at bay.
truffle_shuff
Member

Re: Pain after radiotherapy

Thank you ladies, I think I am a bit emotional, its having to get back on this cancer pathway again,  Need to get my positivity back,  and you ladies on here help a gret deal in that area .

 

 happy bank holiday  all,  xxx

Jobey68
Member

Re: Pain after radiotherapy

Hi Truffle, I didn't have any real reaction after the first 10 sessions, a bit warm and pink by the end of 15 but nothing awful, as you are having it to your underarm it may react a bit differently than a fleshier boob but im sure all will be fine, use plenty of cream and drink lots of water and you will be ringing that bell in no time!! Xx Jo 

Jill1998
Community Champion

Re: Pain after radiotherapy

I think you will be fine with 10 ,don't get too worried ,tiredness kicks in after about a week but pain and discomfort wise I think you should be ok.Hope it goes ok for you.
truffle_shuff
Member

Re: Pain after radiotherapy

 Hi Jill,

and everone on Rads,  can you please help.  I am only having 10 rads to axilla, will  I experience pain  and fatigue after or during this session.  I will contact Pain Nurse  as I am on 21 painkillers a day now !!!! how many more can they give ???  Great admiration to ladies facing , 20 30 zaps, First visit   yesterday and a bell started ringing and everyone clapped, they do this after everyone has reached end of treatment,  got me all emotional , lovley .   

 

Enjoy the long weekend xx

Jill1998
Community Champion

Re: Pain after radiotherapy

Enjoy your 2 days off from being "fried"...
Bibi44
Member

Re: Pain after radiotherapy

I remember talking to you when we were first diagnosed Jill.... Seems like a long time ago! I think I will when I get sore.  I did originally agree to students, because they have to learn, as you say. She's so bad when the boss says 1cm up she pulls me down & then has to do a double yank back up. I thought last night I might rotate slightly to the good side so they are pulling me found from that side rather than the sore one but forgot today. Have a lovely weekend. x

Jill1998
Community Champion

Re: Pain after radiotherapy

Tell the student she is hurting you Bibi ,I did ,they prob don't realise how rough that are being if we don't say.A lot more crucial later on when you are really sore line you say.
Jill1998
Community Champion

Re: Pain after radiotherapy

I had a neverending stream of students ,but I guess they have to learn somehow, it was so much quicker with the experienced staff and yes much more confortable with women only ,but on my machine there were very often men having treatment for prostate cancer before and after me and I thought must be hard for them getting their b***** out for women too !!
Bibi44
Member

Re: Pain after radiotherapy

Bazookas a bloke wandered into the room the other day just before my gown was turned down. I said hold on a minute what's he doing in here. They said if you would prefer not to have a man that's fine we'll just write it on your notes. It makes it 100% less stressful/degrading just being women, although don't get me started on being shoved around 8-10 times by the student radiographer instead of 1-2 times by the experts. I think i will be putting my foot down about that in week 3 when I am sore. She is really rough. I don't want to offend her, but I also don't see why we should put up with it if sore. x
jeanff
Member

Re: Pain after radiotherapy

It was good to hear the experiences of others about this after sharing my own. I have just finished my course of radiotherapy and have a couple of things I can add that might help. Firstly, I started to manage my embarrassment by being curious and asking questions about what was being doing and appreciating the work that the radiotherapists do in other words putting the spotlight on others. I agree it helps during the bit when you are alone to do some meditation for example take your mind elsewhere on a wonderful journey that you have done or can imagine doing.

Secondly, and this is another aspect of pain after radiotherapy, I have learned not to underestimate the impact of the tiredness it causes. I too had a session towards the end when the bulb went in the machine although I was able to get dressed whilst the repair was done. However, it meant the session took over an hour in total. I left the hospital and was probably not thinking straight and I ended up having an accident as I walked away from the hospital which resulted in me taking a very hard blow to my boob! The pain was like nothing I have ever known! It is so typical when you have a sore place or an injury somewhere on your body that you end up damaging it further. I now have signficant bruising, probably resulting in a haematoma, and have seriously compromised the good cells in my breast that are trying to heal themselves. All of this on top of the pain from the radiotherapy itself. I sound like Victor Meldrew's relative as I keep saying to myself "I don't believe it!". All I can say is, as you get to the end of your treatment, go careful out there!

Jill1998
Community Champion

Re: Pain after radiotherapy

Hi Baz,it's not very dignified is it?I even had a day when the machine broke down and they told me to lie still in position while the maintenance guy came in to try and fix it,hi Mr Maintence guy I would wave but I'm lying with my arm in air and can't move....Just think everyone you have is one less and imagine the radiation blasting any stray cells and keeping you safe .A nice fantasy picture in your mind helps too if you can conjure one up...
Bazookas
Member

Re: Pain after radiotherapy

Hi Jeanff, I feel very similarly. I absolutely hate being naked from the waist down on a table with my arms above my head - and having to stay like that for 40 minutes in my case! As you've pointed out its always different people (some are kinder than others). And they pull and push your body until it lines up with their dots. I feel particularly uncomfortable when the radiographer is young and male - I feel so self conscious I just wish I could disappear. I have to go through 5 weeks of it and tomorrow will be the last session of my 2nd week. I am finding the whole thing really distressing

Baz x

Woofer
Member

Re: Pain after radiotherapy

I don't think the radio or oncologists really tell you how bad the side effects can be from radiotherapy.
They say it peaks 7-10 days after.... No way with me.... I am still getting worse almost 3 weeks on. It has completely messed my armpit up with nerve endings and pain... Still trying to do exercises but it is unbelievable pain. Swelling from inflamed skin and a temperature yesterday and a drain off from a seroma that has formed hasn't helped. The seroma refilled even more within 4 hours. Now on antibiotics as well.
Idon't know the statistics that radiotheray invreaaes life by but its ceetainly a painful debilitating procedure for me...if I'd known it would be so bad I wouldn't have had it.
jeanff
Member

Re: Pain after radiotherapy

Keeping a breast

So the radiotherapy is underway. I hadn’t realised that it was part of the deal with a lumpectomy. I had read stuff on the net that suggested with the benefit of more recent statistical assessment you could opt out. I tried to do this but at 58 I was told I was in the elderly category and the statistics did not really inform the decision it was just part of the process. After 3 sessions I now know it is a process that causes some pain and discomfort especially at night and a red hot boob that I could cook my dinner on every evening!

For me the pain is psychological too. I am a very private person who would never undress in front of friends or family members but now I have to do so every day in front of complete strangers and each day different ones. Invasive breast cancer means invasive in more than one way. So laid bare on a machine you also feel laid bare in your self. Big loss of control of your body and if you are not careful your mind too. The panic that can grab you at anytime is unforgiving and it drives other emotional responses, anger, confusion and misery. This then leads to collateral damage as you lash out at others close to you and resent just about everyone else because they are not going through it. How do you cope with this? You give yourself a good talking to, read all the booklets on coping with cancer, radiotherapy and other treatments and get back in your dutiful, must be positive box.

Keep a blog I was told. So I am doing so in an indirect way by sharing things in this forum         

Jill1998
Community Champion

Re: Pain after radiotherapy

Hard not to worry after the scary time we have had,I guess we just need to find a way to put it in the back of our minds and not let the worry spoil our lives.
Awil
Member

Re: Pain after radiotherapy

Thanks Jill I did see bc nurse Tuesday and she said you can get pains , but you do worry .... What I wouldn't give to be worry free again !!!! Xx
Jill1998
Community Champion

Re: Pain after radiotherapy

Hi Awil,my surgeon told me you can get side effects for up to a year after rads .I had all sorts of twinges for at least 2 months afterwards .If you are really worried though ring Breast Care Unit and push to see Onc or surgeon to put your mind at rest .Jill.
Lizzy_BCC
Member

Re: Back pain after radiotherapy

Hi Awil, 

 

I am sorry you have been going through pain and I know some of our users will want to support you and share their stories.

 

I have moved your post to the active thread 'Pain After Radiotherapy' where the users are already active.

 

Best wishes,

 

Lizzy

 

Digital Community Assistant  

Awil
Member

Back pain after radiotherapy

Hi ladies I finished radiotherapy on 11 Dec about 2/3 weeks ago I started to have a pain In between my shoulder blades kind of where bra strap is and am petrified.... I do stand at work and look after my 7 month and 4 year old grandchildren so always picking them up . See bc nurse yesterday and she said you can get pain after and to have a massage and try yoga but they will keep an eye on it ..... So scared started to have panic attakes again . Finished chemo mid October xx
Cookey
Member

Re: Pain after radiotherapy

My husband is 3 yrs post radiotherapy he's in constant pain he's on ladicane plasters OxyContin diazepam and Ketamaine for pain. He also keeps complaining pain has got worse. But at least the head and neck cancer has gone. But I must say he did have 38 sessions of radiotherapy and 7 chemotherapy. The was light at the end of tunnel for cancer put pain is another story

Cookey
Member

Re: Pain after radiotherapy

My husband had 38 sessions of high radiotherapy on both sides for head and neck cancer 3 years back he is in constant pain under pain clinic but he can't stand the pain. I. Glad I noticed your comments because nobody else seems to be in this amount of pain after 3 years that we have met on his journey through his cancer

Eiljones
Member

Re: Pain after radiotherapy

Hi CeliaClarke,

 

As Jill said you should not be in so much pain from radiotherapy.  I finished 15 sessions a couple of weeks ago and after the first couple of days my shoulder and upper arm were hurting and it was really painful to raise it and put it up it up in such an awkward position for radiotherapy and my arm felt numb for a while after I put it down again. However, after a couple more sessions it eased off and the radiographers sent me to physiotherapy where they gave me some excercises for my shoulder.  These were different excercises from the ones that they give you after surgery.  Have a word with the radiographers and see what they advise.  On a positive note my shoulder is fine now two weeks after rads apart from when I use the computer too much and I think that is just repetitive strain and age. lol.  Let us know how you get on.

Eileen