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Pain in breast 8months after surgery

15 REPLIES 15
dillybub
Member

Re: Pain in breast 8months after surgery

Hi 

I had my WLE in February after chemo and the 20 rounds of rads.  9 out of 19 of my nodes were affected.  I still have some breast pain, numbness and moderate lympoedema.  The worst problem is the size of the affected boob.   I do wish it would shrink, I am very lopsided 😩 Anyone else have this problem.

 

I have returned to work on a phased in basis which helps.  Just waiting for a bone scan.  My vitamin D levels are just back to normal which again is good as there is apparently a link between low levels of vitamin D and Cancer. When I was diagnosed in September 15 I my vit D levels were very low.  I was surprised as am a sun worshipper.

 

They have told me it will settle down but sometimes you get the feeling they are just saying this.  I do see a lympoedema specialist for massage which helps for a short while.  They don't realise that these things are a permanent reminder.

 

Thanks for listening.

Dilys

Nikkib
Member

Re: Pain in breast 8months after surgery

I was told that the pain in my breast 3 years on will stay the same it won't get any better or any worse
DizzyDee
Community Champion

Re: Pain in breast 8months after surgery

What a good idea to take pain relief before mamogram just in case. Thanks girls xxxxx
DizzyDi
Member

Re: Pain in breast 8months after surgery

Hi Pandorra
Really pleased your mammogram came out with a good result in December and thanks for the tips. I've been so reassured since reading these threads - suddenly I'm not the only anxious person out there - there's a whole gang of us with symptoms! Hurrah for us! πŸ˜‰ Thanks again and hugs back xxx
pandorra1
Member

Re: Pain in breast 8months after surgery

Hi ladies, I found paracetamol helpd when I had my mammogram, always worse thinking about it. Similar to some, I still get pain in boob, stabbing, especially around yhe scar area and have to be careful laying in bed. Still slightly swollen and got my tan from the rads. I am 14 months after surgery and finished rads in may but it seems to go on for some time. I had a clear mammogram in December .  I massage the scar area as told it should help. Hope everyone is ok and it's great we have this forum for support, I think our minds certainly go into overdrive,  but that's normal. Sending hugs xxxxxxx

DizzyDi
Member

Re: Pain in breast 8months after surgery

That's fantastic news! Hurrah for you!πŸ˜ƒ Well done!
Thanks for the tip regarding my forth coming mammogram - will do just that.
Take care x
Ruthiesings
Member

Re: Pain in breast 8months after surgery

Hi Dizzy, I've just had my 1st anniversary mammogram following a lumpectomy and a reduction to the good breast. It wasn't bad at all. I took advice from elsewhere on the forum and took paracetamol before I went. I also asked them to be gentle with me because it was the first post-surgery and they set the machine to the lowest pressure. I'd experienced more discomfort in the days pre-BC! Oh, and I got the all clear letter this morning, hurrah!!!
DizzyDi
Member

Re: Pain in breast 8months after surgery

Thank goodness I'm not the only one experiencing pain or sensation in their post surgery boob.  My lumpectomy was last June but I still experience discomfort for short periods of time - my mind was beginning to work overtime and fear the worst!!!

Thank goodness for Forums - good luck with everyone coming up to their first Mammogram after surgery - I can't wait to have my poor, blue booby squeezed in that machine again! lol πŸ˜ž

 

Have a lovely weekend.

DizzyDee
Community Champion

Re: Pain in breast 8months after surgery

Really feel for both of you and i feel exactly the same re work. Now I put myself first and go easy on myself. I was diagonsed Jan last year had wle. My oncs told me its quite normal to get pain in your breast up to 2 years after surgery and nothing to worry about. My breast nurse also said pain is not a sign of recurrance either so dont worry if you get the odd twinge. Xxxx
gcinny
Member

Re: Pain in breast 8months after surgery

Hi Chris,

 

Solitary is the word for it. It's a very personal battle...and no one really gets it. During all the therapies and you are still working or trying as much as possible with every ounce of energy left in you, but people never got it and never appreciated it or even expressed empathy or support (I work in Germany, a more conservative society where it might be best to not even mention you have cancer to your colleagues, but just your boss!) And when the chemo was over, everyone assumed that it's all done and everything should go back to full throttle again, but I just can't seem to get it back that way so easily. I still feel very terrified and unwell at times, mostly just lonely, or fighting a battle on my own that no one is aware of. I look one thing, but I feel another. My confidence and self-esteem at the job have dropped, and I was only getting myself started (I'm 26) and it's a very very demanding job in research and engineering. Nobody waits for anyone, and it's a jungle. 

Chris-h
Member

Re: Pain in breast 8months after surgery

Thank you for your reply.that has cheered me that up. Yes I try not to put too much pressure on myself. I have a very demanding job but glad to be back at work as that helps. It is life changing having had cancer and certainly puts things into perspective!
Cheery13
Member

Re: Pain in breast 8months after surgery

Hi Chris. I had a lumpectomy Aug 2014 and I sometimes get pain in my affected breast. I mentioned it to BC nurse when I saw her about another matter and she said it can happen, but best to chat to your BCN about it to set your mind at rest. 

I know what you mean about people expecting you to be back to 'normal'. I'm 2 years on from diagnosis and still feel emotionally vulnerable at times. It can be at very random times too, quite unpredictable! I've finally decided to lighten up on myself, and not to expect so much or put too much pressure on myself, particularly at work. My health and wellbeing has to come first now. Take care of yourself.

Chris-h
Member

Re: Pain in breast 8months after surgery

Thank you for your reply.I guess I worry that it is something new or cancer back again. I have been lucky as far as no lymph nodes affected and I feel grateful as it could have been worse. Trouble is that everyone thinks 'oh good you are ok now' and I am but mentally not always. Good and awful days but I guess this is normal. It can be very solitary though. Thanks so much for responding, made me feel better.
Sharnie
Member

Re: Pain in breast 8months after surgery

Hi I had a lumpectomy last May and I still get pain, however I do exercise a lot and think this may be why or it could be due to radiotherapy after effects. If you are concerned maybe give your GP or breast care nurse a call. My pains aren't there all the time which makes me think mine are exercise related! 

Chris-h
Member

Re: Pain in breast 8months after surgery

Oh dear I didn't say much did I! This is after lumpectomy
Anyone else got pains months and months later? (It is near the scar area)
Chris-h
Member

Pain in breast 8months after surgery

Pain in breast months after surgery is that normal?