Hi there,
I started on anastrazole, stuck it for 7 weeks until i could barely get upstairs and hand pain unbearable, changed to letrozole with no change. I decided i have to have a quality of life as had none so took myself off them. 7 weeks later and sadly little change. It has now spread to my knees but gone from ankles and neck. I did tell my breast care nurse who spoke to the surgeon who suggested i go on tamoxifen (ive also had hysterectomy) which i started a week ago, dont see any improvement or worsening since been on that but early days i guess.
I felt so good after all the chemo finished and radiotherapy a doddle and so looking forward to getting on with life, had the enthusiasm and energy and then this came along and took the feet from under me! feel like an old woman, life so restricted, had to buy disability gadgets to help open tins, cant squeeze toothpaste tube, use pepper grinder, anything that involves my thumbs basically and cant stand up without pushing up on somthing for support.
I went to GP who put me on naproxen 500mg twice daily with lanzoprazole to protect stomach which helps so i am able to work and did loads of bloods to check no inflammatory permenant arthritis as in side effects listed but all clear so looks like we are stuck with the pain as 7 weeks with nothing did not make mine go away!
Been up since 4.30 with the pain hence early email! Bloody cancer!! Although beginning to think that was the easy bit, do wish they had told me more , would never have taken them in the first place as my 'cure' stats i was told were 94%
