Fab news about your mets and good luck with your scan result will keep my fingers crossed for you.
It is awful news about Julia (cress) she will be missed we became friends on the forum.
I am not a liver person but I do read your posts as I have a friend who is suffering quite badly with hers and I try to keep up with your treatments and progress to share with her because she is not on the forum.
Love and hugs to you all xxx
so sad to hear about Cress. It's always a big gulp moment for us all when we lose someone. I hope her family are holding together and getting good support from friends and loved ones.
i don't know about you but i find it really hard to even begin to imagine my family going on without me.
fortunately I had good news from my scan. 3 rounds of Kadcyla and the peritoneal mets are defo shrinking. Brilliant news. Slightly more worrying is they've sent me for a brain scan as I've been having headaches & dizziness since starting the treatment. I had the scan yesterday, results in 10 days. Also, My ovaries haven't changed at all. The docs are all happy saying its therefore not Bc mets. I'm saying hang on a minute, aren't you even interested to find out why they're enlarged than?! Apparently not.
Hey ho, gotta trust them I suppose....
love to everyone. Glad you're on something gentler Sharon, just enjoy it being easier for a while
Oh no Cress another of my dear friends may she rest in peace and condolences to her family may she now fly high with out pain xxx
yes, as it had been a long time and mets were in a new area, they wanted to check it was a) BC secondaries (and not a new ovarian primary for example) and b) that it was still HER2 positive, as they wanted to use Kadcyla which would be no use if the little buggers had mutated and were no longer HER2+. I can't believe they are clever enough to mutate and get round the treatments. At least it takes a long time for that to happen.
hope you're doing okay
just wanted to say hi. Poor Julia, that was a long stay in hosp, it must have driven you nuts!
ive had liver mets on & off for 9 years (chemo, RFA x3 then liver resection). Now have peritoneal & ovarian mets so I've been reading your experiences with interest. I've had 3 cycles of Kadcyla and had CT scan yesterday to see if it's working - results on Monday. I'm in a lot of discomfort right where the tumours are so I'm really hoping this is a good sign!
when I had my biopsy I was next to a lady having drainage for ascites so I was thinking 'this could be me anytime soon' I have to say the biopsy was pretty uncomfortable, so I hope a drain is less so. I do think I've become less tolerant to pain as time goes on though... I used to be an optimist, sigh, now I cringe a little before every needle/procedure.
all the best to you all, and hope Julia's enjoying lots of delicious treats on her weight-gain diet!
Very glad to see you posting but really sorry you've had such a hard time. Hope things improve now; take care.
It's so good to see you back on the forum again. You've really been through the mill over the last few weeks but it certainly appears they are sorting the fluid out. Hopefully, you won't have to put up with the drain for too long. Sounds like you've got some serious eating to do now!
Best wishes xxx
Got home on Good Friday after a 20 day stay in hospital. Got drained a huge amount and then had a Pleurex drain put in. The District Nurse comes around to drain it every few days. Last week she got 850ml but today only 35ml. Hopefully, it will taper off to nothing and I can have it removed in a few months. I was bed bound for 16 days and have lost normal use of my legs at the moment. Saw my onc yesterday and bloods are stable, so he has put me on Tamoxifen for a month to give me a break from the horrid Abraxane and build myself up. All a bit weird as I walked into hospital on the 6th and was still driving up to then. Weigh 48kg now so have lots of eating to do... I will have bloods every week and will see my onc again in 3 weeks, so will let you know how I get on. Thanks again for your help.
Sorry to be a pest, but what were your symptons just before you were drained? I'm now in great pain and I don't know whether to go to hospital today. As much as I don't want to go on Mother's Day, I think that I need something stronger than Naproxen.
I'm very wobbly on my legs and getting lots of pain in the ribs, as the fluid is now crowding all my organs.
Also, one last question and then I'll shut up - did your mets get worse around the time of your ascites? All that I've read about malignant ascites indicates that it is a signal of progression.
Once again, thanks for your help, as it seems that there aren't many liver mets people active on the boards at the moment.
Thanks for all the info. Wow... a total of 11 litres across your two visits! I'm quite slim too (about 54kg) and I'm now 58. So painful I can barely sit up because stomach is in the way and rock hard. I can hardly wait until Wed. Had my 3rd Abraxane yesterday and was given some new meds - Zarzio (Filgastim) injections that I have to give myself for 8 days starting tomorrow. Dreading stabbing myself in huge sore abdomen.
Hope they get it on first go, as I hate hospital stays.
Thanks for all your help.
Do you think the overkill of antibiotics could have brought it on? I'm now booked in for ultrasound and drainage next Wed. I've been having a lot of pain yesterday and today and hope that I can wait that long. Did you get sore ribs as well? I'm supposed to be having the 3rd Abraxane tomorrow and don't know if I can cope with that much spinning into the orbit!
Yes, I'm as big as I was when I had my daughter 16 yrs ago! Did your swelling come on really quickly? I've put on 8lbs in 5 days and am wearing my jeans under my stomach... next thing you know, I'll be showing a builders bum!
My sister was drained twice and she has assured me that it is fairly painless.
Please let us know about your success with Docetaxel.
I was in hospital from Saturday to Monday with neutropenia and was treated for suspected sepsis (doubtful). (No, I wasn't doing mystery shopping for Jeremy Hunt!). I was given 5 x bags of IV antibotics and huge 1l. bags of rehydration fluid. When I went in, I was urinating normally and my abdomen looked reasonably flat. I emerged on Monday only able to wee an eggcup full and with a massively bloated stomach.
I have been in pain and can't really eat... generally miserable.
Anyone experience similar? Help!