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Palbociclib may be available as a first line treatment

6 REPLIES 6
Claire Molyneux
Member

Re: Palbociclib may be available as a first line treatment

It looks like some people already on letrozole are being allowed to go on to Pablociclib.  I have been told that I can't have pablociclib as I have already been on letrozole for 2 years.  Has anyone been allowed on Pablociclib who has already been on letrozole and if so, where are you from? and how long had you been on Letrozole for?  Has anyone been on a trial where you were already on Letrozole and then Pablo was added?  If so, where?

nicky08
Community Champion

Re: Palbociclib may be available as a first line treatment

I have read in a reliable newspaper, Daily Telegraph, that Pfizer (who are the manufacturers of palbociiclib) are funding it themselves for patients during this time where NICE are still appraising it's effectiveness. Even if NICE still don't approve its use the patients given it during this time will be allowed to continue on it.

I didn't see this info in the link but presume its the same report/article and apologies to Emma if I missed this bit of the content.

Nicky

Carolyn52
Member

Re: Palbociclib may be available as a first line treatment

Thank you Emma for posting this as its made it crystal clear now who will be able to have it.
I do hope more ladies reading here ..will be able to get access to it .
Carolyn xxx
EmmaL_BCC
Member

Re: Palbociclib may be available as a first line treatment

Hi both

 

Just adding the link for anyone who comes across this thread and would like to read the blog:

 

https://www.breastcancercare.org.uk/about-us/news-blogs/news/availability-secondary-breast-cancer-dr...

 

The blog also links to our press statement about this. 

 

All the best, 

 

Emma

Policy & Campaigns team at Breast Cancer Care

Stillhere
Member

Re: Palbociclib may be available as a first line treatment

Hi Carolyn, the way I read it, if you are on a first hormonal after a secondary diagnosis such as Letrozole or Faslodex then you could ask for it to be added? There is maybe a time limit as to how long you have already been on a hormonal but it must be worth a shot. I don't understand why it has to be a first line secondary treatment though as it does have some side effects....puzzling x

Carolyn52
Member

Re: Palbociclib may be available as a first line treatment

Hello still here
I read this too and its brilliant news but its only a first line treatment so most of us here won't qualify if we have already had a hormone treatment ..I think that's the way I read it.
But its good news and a way forward ...
Xxx
Stillhere
Member

Palbociclib may be available as a first line treatment

I've just read that Palbociclib may be available to some secondary breast cancer patients in the News and Blog section on this website. Well worth a read, especially if you are on a first line hormonal treatment. NICE haven't completely shut the door on it which is great news!!