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Peritoneal Mets

9 REPLIES 9

Re: Peritoneal Mets

Hi June,

Yes, from the research I have done it seems that ILC is far more likely to spread to the more unusual locations such as the peritoneum than LDC. Why this is so is still unclear. To put it in layman's terms, it probably has something to do with where the cells 'feel most at home'. What is called 'The micro environment' is right for them. It is also possible that they may detatch from the original cancer long before primary treatment begins, and just stay dormant in their new location until something triggers them into action, perhaps years after the primarary cancer has been diagnosed and treated.  The intra-cell signalling involved is still a matter of important research.

My original cancer was Invasive Lobular. I was originallytreated with lumpectomy, then mastectomy and radiotherapy followed by Tamoxifen which was later changed to Arimidex. Perhaps chemo then would have mopped up the dispersed cells, but as the lymph nodes were clear it was thought that everything had been caught and so chemo was not given. It's always easy to be wise after the event!

Hope  this helps reassure you that the spread is not your fault! 

Good luck with your treatment. 

Re: Peritoneal Mets

Hi.original mx chemo radiotherapy in2004.it returned in 2013.in bones and peritoneal.I had capecitabine and demusamab .on scans peritoneal had gone....markers went up a bit .onc put me on letrozole which didn't work so now got peritoneal back and liver Mets.treatment docetaxol halfway thru and had scan last nite.dont get results for two weeks.hope it works for me...x❤

Re: Peritoneal Mets

Hi Ruth,

Wow, what a journey. I too have mets in the peritoneum and on two vertebrae. The goal of treatment here in France,and I suspect in the UK too is to enable us to be as well as possible for as long as possible. My mets were discovered in 2014, 15 years after the original diagnosis and treatment. So far so good, after chemo (Taxol and Avastin; Examestane and Everolimus) - I refused to continue the Everolimus after 6 months as the SE's were intolerable. Just on Examestane now. It may all change in March when I see my oncomogist again, as the markers have shot up. Still I feel well and life is good. So good luck with all your treatment, may it be as minimal as possible, and carry on enjoying life! We now have a 'chronic' disease which can be managed.Hooray!!!!!

Re: Peritoneal Mets

Hi,

 

I have just read the threads about peritoneal mets, having only registered for this website yesterday (29th January 2016).  Up until now I have not found anything else about peritoneal mets, except some old posts on what I think is an American site.  I was originally diagnosed with breast cancer in 1995.  I believe it was ductile cancer in situ, but I can't be certain of this.  I had a lumpectomy followed by radiotherapy to my scar, neck and under-arm.  I did not have lymph nodes removed, although some time later I read that this was best practice.  I had a six-month course of what was described as "mild" chemotherapy, in tablet form, one drug being methotrexate, and two other drugs.  I then took Tamoxifen for 5 years.  I had a bone scan which was OK.  I was discharged about 6 or 7 years later, having mammograms on the national 3-year call up, which were all negative.  

 

Last February I was feeling very poorly with sickness, lack of appetite and cramps.  I eventually got into hospital via A & E and CT scans showed a blockage of my bowel and a large pulmonary embolism.  I had to have an ileostomy.  This was 20 years after the primary.  Biopsy results revealed that the blockage was caused by secondary breast cancer in the peritoneum and the pulmonary embolism was also probably caused by the cancer.   Since then I have had a course of chemotherapy, (six sessions).  I am unclear as to whether this has been successful.  The last scan in August showed no spread of the disease and my vital organs were OK.  However, there were some irregularities in my bones.  A bone scan in October revealed cancer in my bones but I was told that this had already been there and the chemotherapy had made it visible.  I'm not clear how.  Since the chemo I have been on Anastozole tablets, also Warfarin to prevent another PE and am now on Denusonab (?) a bone strengthening drug, injected once a month, and calcium/vitamin D tablets.  

 

I had a CT scan a couple of weeks ago, but have to wait for the results until my next appointment in a couple of weeks, which is very stressful.

 

Having said all this, I feel well with no symptoms from the bones, although I hate,hate, hate the ileostomy.  I don't feel ill and I suppose I should feel lucky that I survived for 20 years before cancer reared its ugly head once again, but I don't!

 

My sympathies go to everyone else with this type of secondary, and indeed, any other kind of secondary cancer.

 

Re: Peritoneal Mets

Hi, I was diagnosed with ILC in February 2011, I had chemo first to shrink tumour which did not have that much effect had 8 cycles.  Had Mx in August 11 then rads. Recently diagnosed with mets in liver and peritoneal area now on E and E combo, only been on it a week and no serious side sffects yet. Got app at Sutton Marsden on tuesday

sue

Re: Peritoneal Mets

Hi There,

I don't know if this thread is still live, but here goes. I have been diagnosed with ABC in the peritoneum and on the spine. There is so little information available for people with the peritoneal metastasis that I thought it would be useful to try and gather together whatever information we can find. I intend to write a booklet about it and would be glad of any help you might be able to give.

As I posted in another thread, I live in France. My treatment has been excellent. I was first diagnosed in 2000 just after we emigrated. My primary cancer was ILC and HR++. I had a mastectomy, radiotherapy and some years later a reconstruction. My recurrence was discovered in July this year. I have had a course of chemotherapy - Taxol + Avastin. SE included very high blood pressure, headaches, bleeding in the nose, shredding nails and hair thinning. Most of which I have coped with. After the second full cycle, i.e half way through the prescribed treatment plan, the cancer markers didn't show much of a response so the treatment has been changed to Everolimus and Examestane. When I asked how long for, my oncologist said, 'For as long as it works!'  It is very early days yet so I have no idea how the cancer will respond. I'm hoping it will be kicked into touch very quickly. 

 

If any of you have any information, however small about this disease and its treatment, I'd love to hear from you.  Issues I am interested in are:

  • The type of BC - ILC or IDC;
  • Receptors/histology
  • Time between primary and secondary;
  • Symptoms;
  • How it was found;
  • How it was treated and of course
  • How you are dealing with it. 

Many thanks for any help you can give,

 Minsterel.

Re: Peritoneal Mets

Hello ..... I have invasive lobular cancer which had spread to my pelvis, upper spine and my peritoneal area. They found the spread after my R Mx.....at that stage they also found my other breast was affected as well.

i have not had chemo or rads......the Onc put me on to LETROZOLE last November. After my last scan about six weeks ago they have found no more spread, bone mets improved and the shadows in my peritoneal area are -"almost completely resolved". Very encouraging. Hope things aren't too bad for you.

Re: Peritoneal Mets

I have spread to right ovary, endometrial lining and extensive bone mets. Do you have Invasive Lobular BC? I believe this type of spread is more common with ILBC.

June

Re: Peritoneal Mets

Hello Penswift

I'm sorry I can't help but hopefully someone will see your post & respond. I just wanted to let you know someone was thinking of you.

Mildred

Peritoneal Mets

Is there anyone else out there with mets to peritoneum, omemtum and ovaries?