66.5K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Petrified!

11 REPLIES 11
Kateday
Member

Re: Petrified!

Hi snowy
I was diagnosed in aug but didn’t find out it was tripple negative till October I’m 37
I now stay away from google as it’s very old study’s
I had surgery first and have had three cycles of chemo now
I can advise the first few days we’ll werre rotten after each cycle but then day by day it gets better
Have plenty of drinks in the house also maybe spicier food than normal as it can effect taste badly I
It did mine so I need strong flavours just to taste the food xx
Nikki49
Member

Re: Petrified!

Hi snowy,

I was diagnosed with TN at the age of 49

I had surgery, chemo then reconstruction surgery.

Breast cancer is not the death sentence it once was.
Please don’t google anything, at best it’s out of date and will only scare the bejesus out of you x

Not going to lie.....surgery makes you uncomfortable for a few weeks and chemo makes you feel rough for a few months.

I will be 55 in January and NED (no evidence of disease)😊

Best of luck to your Mum x
Snowy123
Member

Re: Petrified!

Thank you for your reply. That’s helpful to know. I think she’s just fearful because she has had increasing back pain over the last few months and her legs have been causing her some problems recently. She had a back problem a few years ago so it could be related to that but you know how our wonderful minds work wonders and take us to another train of thought. I’ll ask her to mention it to the consultant if she’s worried.
Take care x
Owl lady
Member

Re: Petrified!

Hi Snowy

I had no CT/MRI  or PET scans after diagnosis.  The cancer was found by routine mammogram I then had an ultrasound for the biopsy . Even after finishing treatment they will only do scans if you go back with any symptoms .The stage is usually worked out from the biopsy or after surgery.I didn't ask for scans to see if the cancer had spread, maybe if you ask they will .

 

Snowy123
Member

Re: Petrified!

Sorry to be a nuisance but nobody has mentioned to my mom about further tests and scans ie CT/MRI or PET scans. Should she be having them to check for the stage or spread of disease? Thanks x
Snowy123
Member

Re: Petrified!

Thank you Owl Lady for getting back to me and giving me some advice regarding how to help mom during treatment. I will let her know those tips thank you.

Its good to hear the treatment is do able. She is having her chemotherapy first rather than the surgery. She is just waiting dates now which is tough but hopefully we should know more next week.

Take care
X
Owl lady
Member

Re: Petrified!

Hi Snowy

I was diagnosed with TN cancer two years ago by a routine mammogram. I was 61yrs old. It is frightening but once you have a plan and treatment starts it is a lot easier. Make sure your mum drinks lots of water during treatment and on good days takes a walk even if its to the end of the road. I would find the 2nd 3rd and 4th day after chemo the most tiring and would rest, after that each day would get better. If you have any questions please feel free to ask. Your mum will be fine , the treatment is do -able.

ann-m
Community Champion

Re: Petrified!

Hi Snowy, 

Again just to emphasise, it sounds like mom's bc has been picked up early, so thank goodness for that.

My bc was not TN, but like your mom, it was screening that found it & I also had no idea.

I was diagnosed nearly 3 years now & all's well. I understand that especially for women who are in the screening age range, outcomes are excellent, so chances are she should recover well, as the vast majority of us do.

As Annie says, it's really best to step away from google, it only feeds anxiety for no good reason, a lot of it is out of date & is not specific to your mom's situation, let alone the scare stories & those pushing an agenda out there. It's best to stick to reputable sites like this one, Macmillan, NHS Choices, cancer Research UK, for example.

Anyway, I'm now so glad I went for that mammo, as I nearly didn't!

ann x

Anniej
Community Champion

Re: Petrified!

You are very welcome, and just a reminder to look after yourself, too. This is a very exhausting journey you are both going on. X

Snowy123
Member

Re: Petrified!

Hi,

I cannot thank you enough for getting back to me. I’ve just sat and cried reading your response! It’s so lovely to have a reply from somebody like you who can shed light on the situation because you have been there yourself.

It’s so hard hearing your mom has breast cancer and I suppose it felt like a double blow when I heard them saying the words “aggressive and rarer type of cancer”. It absolutely petrified me and after looking on google I got myself into a sheer panic. I have told myself I need to start looking at the most up to date and repeatable sites and also remember that everyone is different in their journey.

I have to be grateful that we have the NHS screening service that managed to find moms cancer with a routine mammogram. She cannot feel the lump so I feel lucky that she was called up when she was.

Sorry to hear about your secondaries but so pleased they are under control. And thank you so so much for taking the time to respond to me I can’t tell you how one little message like that has lifted my spirits massively.

Xxx
Anniej
Community Champion

Re: Petrified!

Hi Snowy, just want to say what a lovely daughter you are supporting mom through this. I haven't had your moms type of cancer, but someone will be on shortly, I'm sure, who can help. In the meantime can I advise you not to google. There is always an unpleasant ending, and Google is not a doctor. Instead, why don't you download some appropriate information leaflets from this site? They were a great help to me when I was diagnosed two years ago. Just don't get ahead of yourself or you may find it a bit overwhelming. They are especially useful for meetings, and enable you to ask appropriate and relevant questions about the disease . Get a notebook and jot down your worries and concerns . Also useful for taking notes at meetings with the Onco as your mind will skitter about a bit. I was diagnosed at age 70 , and I was Er+, with an aggressive tumour . I've had surgery, full lymph node removal, chemo and 25 sessions of radiotherapy - and I'm here to tell the tale! I have secondaries in both lungs which are well under control with two types of meds, so it's not all doom and gloom. Not saying the journey is easy, but definitely doable. It is a time of worry, and I remember that so well, but once your mom has started her treatment you will be able to focus on getting her through it. You may want to look at adjusting her diet as chemo alters taste buds, getting paraban free gels and soaps as the skin becomes more sensitive with treatment, and using gentle walks to both lift the spirits and keep those joints moving. Remember, the medical team is on your moms side, and her success is their success. Best wishes to you both. X

Snowy123
Member

Petrified!

My moms final results are back. She has triple negative breast cancer and due to have chemotherapy in the next few weeks followed by surgery.

I just want some reassurance from other people that things won’t be as bad as I am expecting. I’ve just googled TNBC and I am now say sobbing, having a panic about the future.

Thanks x