Hi
Im feeling very upset and scared, iv got breast cancer IDC Grade 2 with one lymph node infected out of four…and been reading up on this, and now i’m worried that is mite have spread to other part’s of my body, is there a chance that this will happen ?? or that it will come back … after my treatment, Is it going to get me in the end no matter how much i fight… do i give up now… when i first found out i didnt know that it could spread … like the threads i have read…it has scared me so much, i did go out at first but now i don’t want to go any where feel very flat and deflated…
what do i do to reasure myself of this??
can any one help…is this normal to have all these bad thoughts ??
sal x
Dear Sal
I’m sorry to read that you are feeling so low at the moment, it may help to ‘talk’ to someone in confidence about how you are feeling. Our helpline team are there to offer you support and a ‘listening ear’, they are specialist breast care nurses and people who have had an experience of breast cancer so will have an understanding of what you are going through. The number to call is 0808 800 6000 (weekdays 9-5 and Sat 9-2).
Our telephone support group may also be of interest to you, here you have the chance to get together once a week to talk with people in a similar situation to yourself. It works by linking you together by phone so you are able to discuss the practical and emotional impact of living with breast cancer. The groups are completely free (we pay for the phone calls) and as long as you have access to a phone and have a quiet private place from which to call, you can join us from anywhere in the UK.
There is also Breast Cancer Care’s peer support service. The telephone service aims to quickly put you in touch with one of our trained peer supporters, who has had a personal experience of breast cancer. Our peer supporters are from diverse backgrounds and ages and have experienced different types of breast cancer and treatments. They are ready to listen, offer skilled emotional support and share their experiences and understanding.
I hope these are of some help to you Sal
Best wishes
Lucy
Hi Sally
I am waiting for my path report - it has been delayed. However, I can relate to how you are feeling. I had a scare at my pre-med, when my chest x-ray showed up a mark on my lung. For that short time between being told and getting my CT scan results, was the worst time of my life. To me at that time, I had secondaries, and my bc was no longer ‘curable’ just maintainable. however, my scan came back that the mark was ‘probably TB’ from many years ago (even though Ive never had TB!!)
Anyway, what by bcn has told me is that if there is anything found in my nodes it is because they are doing their job correctly, by catching and filtering infection. It does not mean that it has spread. I notice that a lot of women are offered full node removal if there is node involvement, but my hospital use radiation only (I have been told). Chemo then mops up anything that may have been missed as a precaution.
Have you been offered any further scans that will show any spread? I think that is the norm. Grade 2 is not the most aggressive either.
Your team will be keeping an eye on you closely after treatment has finished, to catch any re-occurrences early.
Your oncologist will probably be the best person to speak to about this - or your bcn.
Hope this has helped.
Lisa
Hi
Ok i under stand i think every one who is going through this will think the same thing …
i will try and carm down …and i will talk to my bcn and ocn
many thank’s for your reply’s
sal x
Hope you are feeling a bit better - it really is hard to deal with this all in the early stages. It’s a bolt out of the blue and takes a lot of getting your head round.
Remember we are here whenever you need to rant or whatever questions you have.
Hi Sal
I was dx with grade 3 IDC last nov, with 5/11 nodes affected and her2+
Within my health board it is the norm to send you for further scans (lungs/liver/bone) where path report shows grade 3 and lymph node involvement, prior to deciding on an appropriate course of treatment. My scans were fortunately all clear (though don’t get me wrong - I still worry about every twinge lol).
I think if your onc had any concerns they would have done this, and as Lisa has said they will keep an eye on you as your treatment progresses.
take care
Margaret
Hi Sal
the way I look at it now is that we are lucky that our lumps are found at all Because the care and the range of treatments available for us is amazing. I had a mastectomy with imediate reconstruction 2 weeks ago tomorrow and although I am a bit sore I am feeling Really possitive now. I managed to meet my friend for coffee in our local shopping centre today and even laughed to myself about people trying too hard not to look at my breasts.
Your nodes are filters and catch the little demons so yours are doing thier job. Your head will be all over the place for a while and that will come and go too. But you will get it together and never never never give up!
Take care Diane x
Hi Sally , I was meant to read your post !
last August I was diagnosed with a grade 2 tumour 1 lymph node imvolved similar to you . I’ve had a lumpectomy , been through chemo and finished my 30 radiation therapy sessions today!
so its the end of 9 months treatment and I’m still here and having a glass of champagne at the mo ! I have been through every emotion possible and feel a bit battered and bruised but can honestly say it wasnt as bad as I thought it would be . Fear was one of the worst things especially in the early days and I still have my moments . I have a different range of emotions to deal with now. I have never had any scans and to be honest am not going to push for any. I am going to accept the docs opinion that we are at early stages and the lymph glands are doing their job . There are many stages aead of you , take one step at a time.You wil get through it , really you will.
Cally x