Fantastic news Lizzie!! Tooting my horn and banging my pots and pans as I parade around the kitchen for you! FF
Hi all. Saw my oncologist yesterday and the chemo is working after only 2 cycles! There has been a significant reduction in my effusion and he is really happy that it seems to be working so well. My dose has been reduced by 20% to try and prevent the cellulitus rearing its ugly head but hopefully this way, I will get my day 8 chemo which up until now I have missed. Hope everyone else is well.
My ovaries were removed in October 2016 when marker CA 15-3 was growing and a PET scanner did not show any disease. The first 2 months is very difficult to get used to diagnosis. I was in depression. Now that I know there are others like me, it's easier. I hope soon NED. Regards !!!
For the first time, they are confronted with the diagnosis of breast cancer 2011. June was my surgery followed by chemotherapy and radiotherapy. By December 2016, when I was diagnosed with metastasis in the pleura, diaphragm and pericardium. I had pleurodesis and my eastern and 400 ml fluid. Began Chemo 08/02/2017 Taxotere 4 courses. A scanner showed Ned. He also appointed xeloda. What was your treatment. Thanks.
Good luck today Littlelizzie,
yes, long term Penicillin v twice a day has really made a difference to my cellulitis attacks...much less of them nowadaysxx
Enjoy your time away from all the rubbish. Sounds like you will have a great time and be able to be in a better place than last year. Happy anniversary as well. Sending you lots of hugs over the pond 😊
ps Littlelizzie, good luck with your treatment today, hope all goes well. X
Little Lizzie, I'm ok. My treatment failed . Stating a new treatment May 8th. Going away for a few days first! This year has been rough so far for us. Exhausted from problems. Will be leaving Friday and will get to see my 2nd next fiend after my hubby. Last year on May 8th, he had come and was out to breakfast with me when I got a call my brother committed suicide. He helped hold me live me back together that day. This time him and his wife are going to help us, celebrate our 35th wedding anniversary. Looking forward to a good time!! Take care of you! FF
LittleLizzie, Glad to hear you are all fixed up. You sound ready to keep on keeping on! Good for you!!
The cellulitus has all cleared up now thank goodness. Having my next lot of chemo tomorrow and hoping there won't be any further problems. I have had a complete diet overhaul to try and boost my immune system naturally as my diet before was shocking but if it happens again, I am going to ask for long term antibiotics. Whatever it takes to get through this!
Hope all is well with you 🙂
sorry to hear about your skirmish with cellulitis...hopefully all cleared up now? I have lymphoedema and get cellu sometimes....I am on filgrastim which prob helps my immunity, plus permanent prophyllactic penicillin v to try and help my arm.
Oh NO Lizzie!! I'm sorry to hear that. I hope with some antibiotics you can make a quick recovery and get out of there!! I hope this isn't from your chemo. Wish I was closer so I could bring you some treats! Hugs! FF
Lizzie, so glad to hear you have a treatment plan in place. I'm sure you start to feel better in no time. Fingers crossed for your scan results. xx
Lizzie, I'm glad you are starting treatment! I haven't had taxol, but have had "gem"! My onc said most people tolerate "gem" well. It worked for 8 months for me! It always amazes me how these drugs work for each of us. We are all different! I hope it makes breathing easier! FF
Thanks Funnyface. I will mention steriods on Monday. Other than my breathing and a slight cough, I feel well! Have now had an appointment for a CT scan next Thursday and lymphodema nurses on Tuesday so a busy week ahead!
Lizzie, Glad you have a very supportive partner and questions ready. I also wanted to tell you that steroids can help with breathing.
Stresshead, Thanks for chiming in here with your experience with pleural mets. I haven't really had much experience with pleural effusions. I did have some fluid in the bottom of my lungs a couple times, but no problems with it.
Hi Littlelizzie, you are not alone, i too have pleural mets. I started with really severe breathlesness to which i had to submit and go to A&E. I had pleural effusions and had to have a chest drain. I dont want to frighten you or anything .... it wasnt pleasant but it did help. I also had pleurodesis which is like a glue which seals the lung and the pleura so the fluid cant build up again. The first one didnt work so i had to go through it all again but that did seem to do the trick. I had oxygen and oramorph and am reviewed regularly . I do need oxygen still on exertion (but that rarely happens!!). I am now almost a year on and amy scans since have shown no progression there (i also have bone and skin mets).
I'm sure once you see your oncologist you will feel better...lets hope its not too long. Your partner will see you trough this just as he stood by you before but remember we are all here to lend support. If theres anything i can help with please either post or PM me. xx
LittleLizzy, Welcome. I do have lung mets, but I don't have any personal experience with mets in the plueral fluid. I do suggest you push for that oncologist appointment. You will feel better when you know you have a plan and are trying to fight! Best of luck. FF
Sorry i have no experience of pleural or lung mets, mine are in my bones so far but I do know a secondary diagnosis is not a death sentence. There are many treatments out there and women who have been living with lung mets for years..I'm sure someone with experience of lung problems will shortly respond to your post . You've obviously been badly served by your breast care team let's hope you get better from oncology and you get an appointment soon. Meanwhile, a big warm hug. B xx