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Plueral mets. Can someone help me?

34 REPLIES 34
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Re: Plueral mets. Can someone help me?

Thank you Funnyface. I have had a little happy dance myself! Hopefully with a slight reduction in the dose I will still have the same results without the dreaded cellulitus. Have you started your new treatment yet? If so, how's it going? Hope everyone else is well 😊

Much love

Littlelizzie
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Re: Plueral mets. Can someone help me?

Fantastic news Lizzie!! Tooting my horn and banging my pots and pans as I parade around the kitchen for you! FF

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Re: Plueral mets. Can someone help me?

Hi all. Saw my oncologist yesterday and the chemo is working after only 2 cycles! There has been a significant reduction in my effusion and he is really happy that it seems to be working so well. My dose has been reduced by 20% to try and prevent the cellulitus rearing its ugly head but hopefully this way, I will get my day 8 chemo which up until now I have missed. Hope everyone else is well.

 

Littlelizzie xxx

 

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Re: Plueral mets. Can someone help me?

My ovaries were removed in October 2016 when marker CA 15-3 was growing and a PET scanner did not show any disease. The first 2 months is very difficult to get used to diagnosis. I was in depression. Now that I know there are others like me, it's easier. I hope soon NED. Regards !!!

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Re: Plueral mets. Can someone help me?

Hi krasy. I started gemtaxol chemotherapy in April. Have had 2 admissions to hospital with cellulitis but otherwise doing OK. After chemo, i wI'll have my ovaries removed and then will be on letrozole. Hoping I can soon be NED too.

Littlelizzie x
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Re: Plueral mets. Can someone help me?

For the first time, they are confronted with the diagnosis of breast cancer 2011. June was my surgery followed by chemotherapy and radiotherapy. By December 2016, when I was diagnosed with metastasis in the pleura, diaphragm and pericardium. I had pleurodesis and my eastern and 400 ml fluid. Began Chemo 08/02/2017 Taxotere 4 courses. A scanner showed Ned. He also appointed xeloda. What was your treatment. Thanks.

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Re: Plueral mets. Can someone help me?

Thumbs up Lizzie!!

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Re: Plueral mets. Can someone help me?

Hi Funnyface. I'm home! Chemo went well so just hoping the cellulitis doesn't raise it's ugly head again. Sorry to hear that your last treatment failed but a few days away sounds wonderful and I hope you have a lovely time. You deserve it!

Nicky08, thank you for the good wishes. Really feeling the positivity coming through from this forum and it's really uplifting.

Moijan, I will definitely bear the antibiotics in mind. I'm hoping there isn't a recurrence but if there is, I can go armed with the info you have give. Thank you 😊

To everyone who is part of this forum and all of you who have supported me, I just want to say that I think you are wonderful, inspirational and caring. We all have our own crosses to bear bit it makes things that little bit easier knowing you are all there.

Sending lots of love and hugs to you all

Littlelizzie xxx
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Re: Plueral mets. Can someone help me?

Little Lizze, Hope you are done your treatment and back home!

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Re: Plueral mets. Can someone help me?

Good luck today Littlelizzie,

 

yes, long term Penicillin v twice a day has really made a difference to my cellulitis attacks...much less of them nowadaysxx

 

Moijan💚💚💚

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Re: Plueral mets. Can someone help me?

Hi FF

Enjoy your time away from all the rubbish. Sounds like you will have a great time and be able to be in a better place than last year. Happy anniversary as well.  Sending you lots of hugs over the pond 😊

Nicky xx

ps Littlelizzie, good luck with your treatment today, hope all goes well. X

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Re: Plueral mets. Can someone help me?

Little Lizzie, I'm ok. My treatment failed . Stating a new treatment May 8th. Going away for a few days first! This year has been rough so far for us. Exhausted from problems. Will be leaving Friday and will get to see my 2nd next fiend after my hubby. Last year on May 8th, he had come and was out to breakfast with me when I got a call my brother committed suicide. He helped hold me live me back together that day. This time him and his wife are going to help us, celebrate our 35th wedding anniversary. Looking forward to a good time!! Take care of you! FF

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Re: Plueral mets. Can someone help me?

Hi funnyface. Yep, ready to get on with things and show this little bugger what I'm capable of!

Hope things are good with you and sending lots if positive thoughts.

Littlelizzie xxx
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Re: Plueral mets. Can someone help me?

LittleLizzie, Glad to hear you are all fixed up. You sound ready to keep on keeping on! Good for you!!

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Re: Plueral mets. Can someone help me?

Hi Moijan,

 

The cellulitus has all cleared up now thank goodness. Having my next lot of chemo tomorrow and hoping there won't be any further problems. I have had a complete diet overhaul to try and boost my immune system naturally as my diet before was shocking but if it happens again, I am going to ask for long term antibiotics. Whatever it takes to get through this!

 

Hope all is well with you 🙂

 

Littlelizzie xxx

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Re: Plueral mets. Can someone help me?

Hi Littlelizzy,

 

 

sorry to hear about your skirmish with cellulitis...hopefully all cleared up now?  I have lymphoedema and get cellu sometimes....I am on filgrastim which prob helps my immunity, plus permanent prophyllactic penicillin v to try and help my arm.

 

best wishes,

Moijanx💚💚💚

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Re: Plueral mets. Can someone help me?

Thank you funny face. I have lymphedema and have now developed cellulitis. On IV antibiotics until Friday and then hopefully home on oral antibiotics before next chemo on 18th April. At least I got one in! Xxx
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Re: Plueral mets. Can someone help me?

Oh NO Lizzie!!  I'm sorry to hear that. I hope with some antibiotics you can make a quick recovery and get out of there!! I hope this isn't from your chemo. Wish I was closer so I could bring you some treats! Hugs! FF

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Re: Plueral mets. Can someone help me?

Thank you stresshead. The chemo wasn't too bad Unfortunately i have ended up in hospital with an infection 🤕. Not the best of starts! Xxx
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Re: Plueral mets. Can someone help me?

Lizzie, so glad to hear you have a treatment plan in place. I'm sure you start to feel better in no time. Fingers crossed for your scan results. xx

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Re: Plueral mets. Can someone help me?

Thank you Funnyface. Just want to get on with it now! My onc said this chemo is not as bad as FEC which was awful for me so hoping for an easier time. However, if it works i don't mind feeling iffy for a couple of months! Xxx
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Re: Plueral mets. Can someone help me?

Lizzie, I'm glad you are starting treatment! I haven't had taxol, but have had "gem"! My onc said most people tolerate "gem" well. It worked for 8 months for me! It always amazes me how these drugs work for each of us. We are all different! I hope it makes breathing easier! FF

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Re: Plueral mets. Can someone help me?

Hi all.

Saw the oncologist on monday and starting gemtaxol chemo on tuesday. If all goes ok, can have my ovaries removed after and will then be on AI for as long as it works. Still having some problems with my breathing but onc reckons that will resolve as the chemo goes on. CT scan tomorrow but won't get the results until 20th April. At least something is happening now. Just wanted to thank you all for the support.

Sending positive thoughts to all

Littlelizzie xxx
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Re: Plueral mets. Can someone help me?

Thanks Funnyface. I will mention steriods on Monday. Other than my breathing and a slight cough, I feel well! Have now had an appointment for a CT scan next Thursday and lymphodema nurses on Tuesday so a busy week ahead!

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Re: Plueral mets. Can someone help me?

Lizzie, Glad you have a very supportive partner and questions ready. I also wanted to tell you that steroids can help with breathing.

 

Stresshead, Thanks for chiming in here with your experience with pleural mets. I haven't really had much experience with pleural effusions. I did have some fluid in the bottom of my lungs a couple times, but no problems with it. 

 

FF

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Re: Plueral mets. Can someone help me?

Hi Moijan. My partner is coming with me and has told me he will record the meeting. We have a long list of questions and want to be as prepared possible. Hopefully things will be more positive this time.
Hi Stresshead. It's nice to hear from you 😊. I have had one plueral effusion drained already and the chest guy did mention a pleurodesis? Still feeling breathless but much improved compared to two weeks ago. Luckily i have had very little pain with the effusion. Thankfully i have my onc appointment on monday. My partner will be with me and i will have all your positive thoughts in mind. Xxx
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Re: Plueral mets. Can someone help me?

Hi Littlelizzie, you are not alone, i too have pleural mets. I started with really severe breathlesness to which i had to submit and go to A&E. I had pleural effusions and had to have a chest drain. I dont want to frighten you or anything .... it wasnt pleasant but it did help. I also had pleurodesis which is like a glue which seals the lung and the pleura so the fluid cant build up again.   The first one didnt work so i had to go through it all again but that did seem to do the trick.  I had oxygen and oramorph and am reviewed regularly . I do need oxygen still on exertion (but that rarely happens!!). I am now almost a year on and amy scans since have shown no progression there (i also have bone and skin mets).

I'm sure once you see your oncologist you will feel better...lets hope its not too long. Your partner will see you trough this just as he stood by you before but remember we are all here to lend support. If theres anything i can help with please either post or PM me. xx

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Re: Plueral mets. Can someone help me?

Well done. Good to get someone to make a note of what the onc says....he will expect this, a lot of us either take notes or get a friend to...also I go in each time now with any questions on my iPad and just give it to him. To be honest I can remember what he says, but you might not as you both are possibly still in shock.
Best wishes for Monday,

Moijan
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Re: Plueral mets. Can someone help me?

Thank you Moijan. I have an appointment with my oncologist on Monday so hopefully will be feeling a little better emotionally this time next week 😊. My partner and I have a barrage of questions so i hope the onc is prepared! Sending hugs and positive thoughts to everyone having to live with this.

Littlelizzie x
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Re: Plueral mets. Can someone help me?

Hi Lttlelizzie,
Sorry to hear about your news. And sorry your surgeon was unhelpful... I think they specialise so breasts are probably his remit.

Actually I think you are better off with the oncologists as they will have seen many others like you before ... am certain it is not unusual xxx by now hopefully you will have been given an appointment or even have been seen ? Travel hopefully... they will tackle it for you and then you will be able to adjust to the news. My nets are liver and bones but actually we are all in this together and are here for you.
Hugs, Moojan💚💚💚
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Re: Plueral mets. Can someone help me?

Thank you funnyface. I have read your posts and you are an inspiration! I will phone the hospital today and bug them x
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Re: Plueral mets. Can someone help me?

LittleLizzy, Welcome. I do have lung mets, but I don't have any personal  experience with mets in the plueral fluid. I do suggest you push for that oncologist appointment. You will feel  better when you know you have a plan and are trying to fight! Best of luck. FF

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Re: Plueral mets. Can someone help me?

Dear bonariensis,
Thank you for your kind words. Even though my partner, family and friends are wonderful, it's nice to speak to people who understand. This forum has kept me going the last few days. Hopefully my onc will be more positive than my surgeon. Big hugs to you too.
Littlelizzie x
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Re: Plueral mets. Can someone help me?

Dear Littlelizzie

Sorry i have no experience of pleural or lung mets, mine are in my bones so far but I do know a secondary diagnosis is not a death sentence. There are many treatments out there and women who have been living with lung mets for years..I'm sure someone with experience of lung problems will shortly respond to your post . You've obviously been badly served by your breast care team let's hope you get better from oncology and you get an appointment soon. Meanwhile, a big warm hug. B xx

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Plueral mets. Can someone help me?

I just wondered if any of you lovely ladies could give me some help? Last Thursday, after 3 months of being pushed between departments at my local hospital, i was diagnosed with a recurrence of er+ breast cancer and cancer cells in plueral fluid that had built up around my lung. I am absolutely terrifed and have no trust in the local breast care team. The surgeon last Thursday literally washed his hands of me. They have referred me to oncology but i don't know when my appointment will be. I was given no support or advice and i had to ask the breast cancer nurse how big the tumour was and what type of cancer it was. I am trying really hard to be positive but i just feel like I've been handed a death sentence. I'm only 41 and my wonderful boyfriend nursed me through it all before and i don't know if I can put him through it again. I just feel so hopeless. Xxx