Hi,
I would be grateful if anyone who has had a portacath can share their experience with it? What was the procedure like? My mum is having one fitted tomorrow as it is so hard to find a vein now and had problems with a Picc line. However, when i was last in the chemo unit i overheard a man with a portacath saying that he had developed a dvt because of it. My mum has had a dvt before and is always worried about getting one. I havent mentione it to her. Should she still get one fitted or not? Advice would be appreciated. Many thanks
Hi there
I had a portacath fitted back in February and I have only positive things to say about it. It was fitted under sedation so I have no recollection of the procedure but it was very straightforward. The surgeon discussed with me where he would put it and we agreed on a spot as low as possible so it wouldn’t be visible in low necked tops etc.
After it was fitted it felt a little strange and I was aware of it for a few days until it settled down but I can honestly say that I forget it’s there now as it’s invisible and I can’t feel a thing.
On the day of chemo or Herceptin I’ve been given some Emla cream to put on at home - this is a local anaesthetic cream that numbs the skin. It takes about an hour to work and lasts up to 4 hours. By the time I get to the hospital and they attach the line it is completely numb and you don’t feel a thing. No more hunting for veins or painful cannulas.
I hope this helps reassure your Mum.
Good luck
CG xx
Hi there,
I had one fitted a couple of weeks ago and the day after I had it they administered my chemo via it. The operation itself didn’t hurt. I had it done under local anaesthetic and I was sedated. The op took about 45 minutes total. Iwas in a bit of discomfort afterwards but nothing regular painkillers didn’t fix.
They talk to you about the risks and before I was given the opmthey tested my blood for clotting factors. Please just make sure your mum tells them about having DVt in the past. I was told that if I develop one I will have to inject myself with blood thinning drugs.
Does that help at all? Any questions, please feel fee to ask.
Rae
Hi,
Thanks both for your replies and i’m glad you have had no problems with the portacath. So they do mention blood clots before you have the procedure? As the only info my mum has been told is when the appointment is. thx
Hi,
They mentioned it to me as part of my consent for the op. Don’t be afraid to ask questions though if they don’t say anything.
Write them all down and take them with you and make sure you are happy with the answers.
Rae
Hi,
I have a portacath. It was fitted the morning of my first chemo treatment under local anaesthetic. I cried quiely all the way through the op ( about 40 mins) although I had no pain. I just hated the idea of what was happening to me. BUT it has been fantastic. I am so pleased to have it, having experienced the discomfort of nurses trying to find my veins, and after having had several drugs administered through a canula in my hand when I had an infection. That hurt after a while and I realised how awful chemo would have been without the port.
I hope all goes well for your mother.
Verity.
Hi London09,
Just to echo what the others have said really. I had mine fitted 6 years ago and it has never given any problems. In fact mine is sited higher up, just about 1" below my collarbone and because it is really just skin against bone there it does protrude - a bit of a bump the size of a 1p. I don’t need numbing cream at all because I don’t feel anything when the put the needle in, and when they remove it afterwards. One difference with the other posters though - my hospital doesn’t do it under local, but under a general anaesthetic.
But the bliss of not having to play hunt the vein! makes it worthwhile.
Dawn
xx
Thanks for all your replies - a great help. Just a couple more things did any of you get dvt’s? Does a doctor do the procedure or nurse technician? x
A radiologist did mine. Had it for over a year and I love it, because I avoided all the nasty vein problems. Haven’t had any clot problems (or any problems at all!) with it, and there’s much less risk of infection etc with this than with a PICC or Hickman line. And it can stay in for years if necessary. Hope your mum’s happy with it.
Hi London09
Another portacath supporter here!
Mine was fitted under a local anaesthetic by a Doctor and I had chemo using it straight afterwards. I didn’t feel a thing and even chatted whilst having it inserted - if I did doze during the procedure I certainly do not remember doing so!
No worries about having it flushed once a week and no risk of infection either and you can also forget that a portacath is there too as totally hidden under the skin so you can swim, shower, bath etc and nothing on view either. I just wish I had been advised to have one fitted BEFORE my veins gave up after my 1st couple of FECs.
Herceptin goes in and blood samples can come out. The only downside seems to be that there is a lack of training in accessing them from staff outside of chemo units. I may have the correct port, but I still need a cannula when it comes to muga-scans, ct scans or mri scans so I still have to play the occasional ‘hunt the vein’ game!
Good luck to your Mum but tell her to mention her concerns about DVT so that they can put her mind at ease.
Thanks everyone. My mum had it done under local this morning. Was ok although she got palpitations during it possibly due to the sedation so they had to monitor her blood pressure for a while after. Her dressing is very bloody at the moment and we dont recall what the nurse said about changing the dressings. Can anyone help? When did you change your dressing? We have spare dressings. She was told not to shower until wed evening. I know we can ring the unit in the morning but if someone could help once again that would be great! thanks
I had my port put in on a Wednesday and the dressing was changed at the hospital 8 days later. I still had a small area left to heal and showers were banned until I had completely healed - baths only until then. I never had to change my dressing myself, but all hospitals do things differently so perhaps best to ring the unit in the morning.
I had mine fitted last September after my veins collapsing and because I am having herceptin as well as chemo. I LOVE MY PORT!!!
Best thing I have had done since my diagnosis!!!
Hi Ladies
Had portacath fitted Thursday under local which went absolutely fine. However, since Friday I have been in pain with it which doesn’t seem to be going away. Obviously, there is a lot of swelling and the bruising is coming out but even with regular medication I am in discomfort. I usually handle pain well but starting to find this hard to deal with. Can anybody put my mind at ease and say that this will become easier to handle and I am simply being impatient or should I get it checked out by the onc dept?
Thanks. Liz x
Hi I had Portocath inserted on Wednesday last week, like you with local anesthetic, I am still sore and in some pain but paracetamol seems to be working for me.I find that the area is bruised , but is healing ok.
I was told to be aware of redness and heat , it would indicate there could be infection. I was told to go to A&E if concerned. Hope that helps.
Jean.
I had a portacath fitted on 24april under a local anaesthetic and no sedation. Done by a radiology consultant and i chatted and laughed with the nurses the whole hour - this from someone who had started a thread numbed by terror of the thought of the procedure.
I hade 4 stitches in my chest and 2 in my neck and only small dressings. Neither incision bled and i never even needed paracetamol.
Had first FEC on following day. Little spray of anaesthaesia, bit of a push and thats it. So easy and comfortable. Looking round at others in the unit with hands in bowls of hot water, heat packs, restricted movement because of cannulas, i am overwhelmed with gratitude for my port.
I do have to have cannula for muga and they get one of the chemo nurses over as i have tiny veins that go into hiding.
Would recommend a port to anyone who gets the chance. Just one thing, do ask for a plastic card. I set the alarms off in Debenhams last week and alarms will go at airports and tube stations and any venue that has highly sensitive scanners. Makes life a bit more exciting!
Much love
Pixie xxxx
I had a portacath fitted on 24april under a local anaesthetic and no sedation. Done by a radiology consultant and i chatted and laughed with the nurses the whole hour - this from someone who had started a thread numbed by terror of the thought of the procedure.
I hade 4 stitches in my chest and 2 in my neck and only small dressings. Neither incision bled and i never even needed paracetamol.
Had first FEC on following day. Little spray of anaesthaesia, bit of a push and thats it. So easy and comfortable. Looking round at others in the unit with hands in bowls of hot water, heat packs, restricted movement because of cannulas, i am overwhelmed with gratitude for my port.
I do have to have cannula for muga and they get one of the chemo nurses over as i have tiny veins that go into hiding.
Would recommend a port to anyone who gets the chance. Just one thing, do ask for a plastic card. I set the alarms off in Debenhams last week and alarms will go at airports and tube stations and any venue that has highly sensitive scanners. Makes life a bit more exciting!
Much love
Pixie xxxx
Hi ladies
Thanks for your replies and apologies for not replying sooner but I only came out of hospital last night after being there for a week.
Had to go in as my temp shot up to 38.5, they took a blood test and gave me some iv antibiotics into my portacath which was very painful and then sent me home! Later that evening my temp spiked at 40, phoned the emergency helpline and was told to come in. Put on iv antibiotics and oxygen as they thought I had pneumonia. Turns out it wasn’t pneumonia but sepsis with the result that iv antib were put directly into the portacath in the hope that it could be saved. My consultant told me that it was very rare for this to happen but everything had been done by the book. Didn’t make me feel any better!
After being on iv antib for six days they are hopeful that the line has been saved and I am now home on oral antib and feeling much better and everything around the portacath site and my neck now looks ‘normal’ much to my relief.
Obviously, I have just been unlucky but feel so relieved that they have saved this line and it doesn’t have to come out as every blood test done from the arm was a nightmare.
Going in Friday for my normal intravenous treatment and I think I’ll be holding my breath until that needle is safely in the portacath. Fingers crossed everything will now go smoothly!
Liz x
Hi Nanniespiky, good to hear your feeling better, it was very unlucky for you to end up with sepsis, you must have been very uncomfortable and in pain !
I had my 1st infusion just 6 days after my portocath was inserted, it was still quite tender and it took 2 attempts to get the needle in but it’s so much better than the canula, I am still a little sore but I think the stitches are tightening a bit now, they come out on 23 rd, hope you find friday a good experience.
Jean
Can’t believe I am posting on here again about my portacath but it is causing me grief once again and I can’t get any answers from the hospital.
Having been hospitalised after fitment with sepsis, I have had three treatments into portacath and have just come out of hospital after another stay with an infection yet again in the line. Am now on oral antibiotics which,hopefully, seem to be working as the line is not as sore or inflamed as it was.
Obviously, I am starting to get a little worried about losing this line as my onc has said that if I get another infection then it will have to come out. I really don’t feel I could cope with the vein nightmare again if this had to happen and, at the moment,feel a bit disheartened especially when one dr in the hospital asked me why I kept getting infections in the line as if it was my fault!
Would any of you ladies be good enough to let me know what procedure you go through when you go for treatment into the line. Really would like to know if there’s anything I can do to help myself or suggest to the nurses to stop this happening again. Also, I am given the cold spray before insertion of needle - would the emla cream be a better option?
Any advice would be much appreciated as I really need to keep this line.Thanks.
Liz x