No apologies necessary, Rattles!
Apparently our lymphoedema publications (both prevention and for people with lymphoedema) are coming up for review in the next few months and I've highlighted this thread to the team so they can take your feedback into account when reviewing them.
Also, the next issue of Vita magazine is featuring lymphoedema and what to wear for the summer, so keep an eye out for that.
Keep giving us feedback and I'll make sure it gets to the right people.
Thanks guys, I'll definitely pass that feedback on again. It's really useful to hear exactly what you'd find most helpful and see if we might be able to address that. I know we are doing some specific work on body image coming up, so I'll see if we've included elements related to lymphoedema in that. I'll also pass it on to our publications team, so they can take it into account when reviewing the information we produce.
I'll also let the nursing team know how helpful you found your Ask the Nurse response, Elinda - I'm sure they'll be really pleased to hear it.
Don't worry about giving us your feedback - it's the only way we'll know if we're meeting people's needs, which is obviously what we want to do!
Hi everyone, and especially Rattles, Elinda and Quail, who asked about the BCC lymphoedema sessions
I had a chat to Suzi Copland, our Head of Services for the South, and here is her response:
"As has rightly been pointed out on this thread Breast Cancer Care runs Information Sessions on lymphoedema. The aim of these sessions however is to provide information and guidance about lymphoedema (including reducing the risk and outlining the variety of treatments) rather than teaching people how to perform manual lymphatic drainage, which is a very specialised form of massage not undertaken until therapists have had intensive training.
"Our Information Sessions usually have 15-25 people present and it could be hard to teach this size of group the techniques involved in manual lymphatic drainage because of differing individual needs and circumstances. This doesn’t mean that we would never provide an alternative type of service to address these needs in the future and I’ll certainly discuss this with the services team. Self lymphatic drainage methods are taught by MLD practitioners, once the client has been assessed and shown how to perform this safely.
"Our Helpline and Ask the Nurse email service are also able to provide information and support to people on a whole range of issues associated with breast cancer including how to manage lymphoedema. They would also be able to signpost to local specialist lymphoedema services where available for callers. The Helpline is a Freephone number – 0808 800 6000.
"Also just to say that The Haven runs lymphoedema classes and the Lymphoedema Support Network has produced self management DVDs and can help people to identify local therapists."
I hope that's helpful.
Hi Rattles, Elinda and Quail
Just to let you know that your queries have been passed on to the relevant teams at BCC