Yes. I've worked out the best way is if you PM here or Brewster or Maggie or Sammy with your email address we will send you an email invitation to join.
Come! Please! You can swear on FB if you want to and it is completely utterly secret and private. No-one will see it, or know you're in the secret group, no notifications on your page that friends see, no notice that you've joined.
send me or Sam your FB profile name and description of your FB profile pic in a private nessage here and we'll join you in
Okay..... I've set up a secret facebook page, called The January Crew. If you privately message me with your facebook name I will join you......... i may have to send you a friend request first, I dunno, i've never set up a private group before.
Everyone very VERY welcome.
Do we want the moderators to merge this with the other thread the 'anyone starting in January?' one?
say what you think. this IS a democracy!
Haaa yes, had thought the same re the thrush, just what I need on top of the acid reflux etc.
I have put a call in to the doc so that she can supply me with everything I need to cope with the side effects of 288 antibiotics
Ah yes, forgot your diagnosis changed too - so ours is really similar. Wonder why the treatments are different? The 12 weekly are kinder on your body I think but just takes longer to finish.
Good idea re the facebook group - these forums are open for the world to read and sometimes a bit of privacy might be better. As you say, we can still join in these boards.
How can I put on weight in hospital?? 5 lbs on in two days ??? Might have been the cooked breakfast, lunch, dinner and biscuits I guess..plus two days of doing nothing and jugs of lemon barley.
Now need to make sure that I eat before all these tablets too - oh no!! Need to find something low cal that still takes the edge off them. Bananas?
Hey ho ladies...
Just a thought.....
what do we all think about starting a private Facebook page for us all. Obviously we'll still rely heavily on this forum, but i noticed a lot of other 'monthly Thread' women have done this?
No they thought mine was lobular but then the Onc said final reports showed it ductal. I dunno, everything changes all the time during the dignosis bit.
Hope you're taking probiotics and things Maggie..... I should think a nice bit of thrush would really put the cherry on the cake for Christmas.
Wow that's a lot of drugs Maggie. You must have felt proper poorly. How's that bagpipe drain working out?
You're an EC too. I wonder you are EC and I am FEC, when we both had similar path reports.
definitely together Jane.
Will be thinking of all of us.
Have my pre chemo meeting Monday.
I dont understand why I am having the docetexel before the FEC.
Everyone on here and on other sites where I have looked for info - they seem to give FEC first.
Hi Balli-Boo - I am a couple of days ahead of you on 30th Decmber - I am starting with EC for 4 cycles and then Docetaxel for 4 ycles with 18 cycles Herceptin. Will be thinking of you 🙂
Stepping into the unknown!
PS Glad you are feeling better Maggie 🙂
I think lots of us are starting within a few days of you so we'll all be on first go together.
Together is the key word here.
love jane x
I see from another thread that you're feeling better after your problems post-op as well..... so you and Maggie both deserve an extra good night tonight.
so pleased for you.
I will! I'm not squeamish but I don't like the thought of that tube in me for all those months. Still, they reckon easier and fewer problems than intavenous catheter... although of course not nearly as smart as MAGGIE'S PORT.
Have just ordered a waterproof sleeve for it from ebay. I shall have to test it out beforehand and see if it really is waterproof.
Bath time will never be the same again.....
I've just got a letter with my start dates which made me a bit quakey.
3rd for chemo talk
5th bloods and picc line
6th the first poisoning .
Anyone else having a picc line?... I know Maggie's on the port, so to speak, but my hospital don't do them, but they do like their piccs from the off.
Starting chemo first week in January FEC-T for six goes. I've had a LOT of wobbles about chemo, but am now resolved it's the way forward.
How's everyone coping with Christmas run-up? We (husband and daughter and me) keeping it low key but just thankful that I won't be having to cope with chemo over that time, both practically and emotionally.
Hi Brewster - sounds like we have similar diagnosis... cant wait to start either yet very glad that I will have a 'normal' xmas with my children before the challenging times ahead. Karen x
Can I join you? starting chemo on 13th January, I have had a WLE and SNB and that showed 2 of the 3 nodes damaged so had a clearance on 5th December. I'm booked to have the "picc line" fitted on the 12th then have 6 lots, 3 weeks apart. Not bothering with the cold cap, although the hair loss scares me more than anything I don't think I can cope with more discomfort than I need! Feeling positive, this time next year it will all be a thing of the past. Together we'll beat it
I am new to these forums, but believe I may be joining you ladies in the New Year.
I was diagnosed on 27th November and had WLE and SNB on the 5th December. Saw consultant last Friday for results and tumour was 21mm but thankfully clear margins and SN was clear... good so far! It has been graded as a grade 3 so they are now talking of chemo then radiotherapy and it is hormone responsive so tamoxifen for 5 years after that.
Got a meeting with the oncologist later today so feeling a bit nervous and unsure what to expect.
Have been reading the forums for a couple of weeks now, and I must say it really does help to know you are not on your own. I am so lucky that hubby, friends and family are so supportive but I guess sometimes it just helps to read about others going on a similar journey.
Take care lovely ladies xx
Hello Brewster an January Chemo starters.
I saw onc last Fri for first meeting.
Hospital just phoned. Pre chemo meeting Monday.
Having 6 sessions FEC T starting with the T first.
Thinking of trying out the cold cap.
If I can stand cold/pain and it works then great. If not then... great too as life/ death sitution.
I knew on 28/11/2014 I would be having chemo.Now I have date.
All getting closer.
I am petrified of course. Ladies on this blog have helped keep me going.
I am quite a positive person so hopefully I have helped others also.
Planning to have a nice family Christmas.
Trying not to think about chemo too much but.....
So glad that I went for that mammagram and it was picked up.
Roll on. The quicker get started the quicker next stage!!!
Cant wait to get to other side. After chemo I have to have axillary clearance then radio. So...
looking at fair few months yet.
All the best everyone on here.
Lets help each other get through.
Yayy I found you all - I am Karen, just turned 46, single mum of 3 sons, dance/fitness instructor - I have been posting on the forum since my diagnosis on 20th november! I have been using this resource as find it helps me to talk to women who understand where I 'am at' rather than friends who love me... ❤️
I start my chemo on 30th December so thought I would join this thread as well as the post xmas one. I am stage 3, grade 3 fast growing, 2 enlargements in lymph ndes but CT scan show rest of my body is clear 🙂 I am borderline triple neg...
Doc's have now moved my surgey back and need to start the chemo first as tumour has gone from 25mm to 45mm in 2 weeks 😕 Scary times, emotions everywhere, exhausted and trying to fit in what I can when I can to prepare. Just wanted to say hello and will be joining in as and when... Best wishes to everyone
Scans clear! Deep DEEP relief. Husband said it was the best news he'd ever had and we were both silly with relief. Chemo booked to start Jan 5th... I said i wanted a breathing space. XXX
Looking more and more likely to be starting with you ladies in the new year!
Port thingy and chemo cancelled because of infection in breast.
Seen surgeon today and had over 50ml fluid aspirated from under node scar - the fluid had become infected.
On antibiotics and review again Monday but unless clear nothing will happen until the new year which mentally is a bummer.
Suspect it might need to be aspirated again.
Getting very frustrated