Hi, just diagnosed 3/12/14, IDC grade 3 & looks like it could be TNBC, just waiting for last test result. Mam lost her fight in 1986 but treatment changed a lot since then. Had blood test with geneticist last week & got to wait 6 weeks for results.
Have my echo on 5th & 1st chemo on 12th. Dreading losing my hair. My lump was 25mm but can feel it has grown in last 2 weeks. It nips a little bit as well, is that normal do you think?
Would like to join FB page too please.
I klnow it feels awful at first... the bad news just seems to keep coming, but everyday you're moving closer to starting the treatment that is tailored to put you right again. Honestly, you WILL feel better once you get on the ride, however bumpy it is.
Finally joined the forum today, after spending several evenings catching up on earlier posts and waiting for the kids to be out! I would love to join the private facebook page, please, if someone can help me with that - I understand a newbie can't send pm's?
I was diagnosed with type 2 invasive lobular cancer on 22nd October (date seared into my memory!), first thought to be 15mm tumour; MRI said it was 40mm; had WLE and sentinel lymph node removal and surgery in December. Every time I go back to the hospital the news gets worse; supposed to be having a CT scan for staging purposes and was not looking forward to any results from that. Surgeon said both nodes came back positive and multiple margins of the lump were positive. Met oncologist on 23rd December who told me the tumour was actually 67mm so I'm to start chemo as soon as my wound has healed and not to wait for the CT scan now. Was managing pretty well up to that point!! Pretty emotional Christmas but doing better now.
Anyway, glad to have found a group of ladies who'll be going through this cancer trip at the same time as me. I have a feeling it's going to be a bumpy ride.
Thank you, lost this thread in the space of an hour..nap time maybe. Messaged brewster as I saw her mention it but will pm you too.
Hi ladies, im recouperating from mastectomy pre christmas, due to see the oncologist in january for chemo. I am not in the uk so wasnt allowed to join young bc facebook page, but hoping I can join you on this chemo page ..please 🙂 its hard to find chat groups.
Hugs ladies, if not, I' ll still be here chatting.
As I said im rubbish at things liike this but looking forward to joining.
Should i send you a pm message?
hi evie, if you would like to PM me here with your email address I will invite you to join our jan chemo starters page.
Just click on my name here (katherine62) and send me a message.
Welcome to the forums, I’m so pleased that you are finding them helpful.
Whilst waiting for replies to your post maybe you would like to give our free helpline a call where the staff can offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
Hi. I Just joined the forum
This my journey so far. It has all happened very quickly.
First annual mammagram on Thurs 30/10/14
Called back for core biopsy Thurs 6/11/14
Diagnoised Thurs 13/11/14
Surgery on Friday 5/12/14
grade 2 invasive ductal carcinoma 16mm also 17 lymph nodes removed 7 infective all healing well now waiting Chemo FEC-T to start. Have opted for the cool cap no appointment yet.
I have found the webpage and forum very helpful it has answered alot of my questions I had and hopefully those I will have in the future.I would love to join the fb page. I live Surrey/Hants Border area.
To use the private message system you can do it two ways, one by clicking on the messages tab at the top right of this page (near the sign out button) this takes you to your private message area and where you can search for the user you are looking for - using their user name.
Alternatively if you click on the icon of the user you want to send a private message to (within a thread) this will take you into their profile and then there's a link from there for you to send a private message.
Hi there... I'm afraid the only way you can join in is to have a FB page, but they are really easy to set up, you can use an alias if you want so no-one will know it's you. And NO-one wil ever know that you've joined our group. Have a think. We are all finding it really helpful positive and cheering and you can SWEAR if you want to.
Hello Brewster, Jane, Maggie, Mariena12, Annie, Karen, Bel, Womblemum, Sam and Helen.
Can I join please?
I am new, I've done a lot of lurking and reading, but never actively posted. I was diagnosed in September, and for one reason or another, only saw onc last week and now have a plan.
I start chemo on 13 Jan (same as Sam), I am 3 FEC and then 3 T. I am having PICC fitted on 8th Jan - not delighted to have it inserted so many days before treatment, but I suppose it gives me a chance to get used to it.
I feel upset about it all, as I'm sure many of us do, but I am hoping to grit my teeth and get on with it.
Thanks Em - looking for a waterproof sleeve at the moment actually - another lady said she got one on prescription so will check that out next week at Dr 🙂 Karen x
Just popping onto this thread - I actually started my chemo last week but something occurred to me today. I know a lot of people like to be prepared in advance with wigs etc, but the one thing I forgot was a cover for my picc line so I can take a decent shower!
So if you are starting after xmas and are going to have a picc line it might be wise to order now
Good luck ladies - have a good Christmas.