Hi Ladies, (previously posted in radiotherapy - revised)
Having been in the complete doledrums it helped to read 'the blues boob blog' - sounds like a good song title!!!
My recovery has been interrupted by the onset of an infection which put me back in hospital for 4 days. Came out yesterday after IV anti-biotics - continuing orally at home. They havn't been able to determine the site of infection but breast care team visited me everyday and are happy with wound - still waiting on skin swab results and an ECG. So am 1 week+ on from op but still in bed - but, going to finally get to have a hair wash!!! Starting to get dreads!
The infection presented as: day 2/3 generally feeling unwell; day 4 vomitting and high fever (this is the point where GP called ambulance). Had anti sickness injection before leaving for hospital; which thankfully worked. Once in hospital I had continuous headaches which were helped by IV paracetamol. Blood tests showed definate infection. Had chest xray - fine. Temperature continued to spike until IV anti biotics. Am slightly worried that, when treatment is finished it will all start again. Breast care team said that infection will 'look' for any weak points i.e. the op site so need to keep am eye on it.
So - I should be able to be feeling better by now but not happening!!! In the scheme of things I'm going in the right direction as I couldn't have typed this 3 days ago! Oh and I've started actually eating the chocolate that I'd been given as get well gifts (not like me to not want chocolate so definately improving!!)
Best wishes to you all, I hope things are improving for you. I wil definately be taking up radiotherapy can't be doing with all this again. And yes, thank goodness for regular mammograms it could have been a whole different story as I wouldn't have known. Follow up should be Friday but myhospital notes sy 2nd Dec. Will check.
X Jak60 virtual choc all round!
Hi Cla 46. Hope you are having a better day today. I know how you feel about about thinking every little bump, lump etc is going to make you panic. I think most people who are dealing with bc are exactly the same. I know that I am. That and the constant thought of a recurrence which I am trying to put to the back of my mind. It's only when I come on here and read about other people's situations, it brings home that I'm not the only one having to deal with what's happened and I appreciate some are having a much tougher journey than me.i have just had my 12th rads out of 15 today and am looking forward to it finishing so I can try to begin to be more positive about the future. Hope everything goes well for you.
Janey, managed to keep my paws off the chocs, so sending it off to you pronto. So glad to hear that you're 'just' going down the rads & anastrozole route - I'm a year on now! After making you wait so long, you've now got to the next stage quickly. Hopefully it will all be a piece of cake, I'll look out for you if there's anything I can help with - and keep sending you chocs of course. Rubycat xxx
Felt so bad at eating all the chocs that I got you ALL some more. Just got to keep my paws off them.
Looks like a busy day for lots of you tomorrow, so sending you peaceful spaces filled with gentle hugs. Rubycat xxx
Helen and Janey, all the best for your appointments tomorrow. I'm hoping that you find a good positive way forward with your treatments x
Oops Janey, I was about to go out into the garden too when I found this big box of chocs ...... still, they were really scrummy. I was just going to have one, then I had another, then I had to finish the row, then the other side of the box needed evening up - you don't get that many chocs in a box nowadays - somebody must have pinched some when I wasn't looking.
Glad to hear your good news Cla, hope you all get good news soon.
Ah the shooty stabby pains, remember them well....probably it'll be even worse for you having had a second attempt at clear margins ( I am presuming that is the second surgery reason?). 'Welcome' to the site, and glad to see you've made your first post. Welcome in inverted commas because nobody wants to be here here, but it's a great place if you need to be here. I am really hoping that you aren't heading to a third surgery, and it's not dragged out even further for you. I'm not surprised you are feeling so teary after the second surgery, one is bad enough! Just to warn you that the shooty stabby pains might resolve, as the nerves repair themselves fom the trauma, but may return during some part of radiotherapy. This freaked me a bit, but I was told the RT really jangles those healing nerves and delays their final healing until after RT.
Oh Janey, that's just pants. It's all we can do to gear ourselves up for any results and delays are AWFUL and FRUSTRATING. I'd be up in bed now, with a dvd, chocs and cup of tea (hopefully made by someone else). You are allowed to feel sorry for yourself, it is so hard to take. Sending you BIG BIG HUGS.
Hello Cla46, Yes I had 2nd wle weeks after first and it was a totally different experience. With first, I felt fine straight away when I woke up, and seemed to only have mild pain (and that was more at underarm site & not the wle). 2nd time was a totally different experience. Pain was a lot worse and much sharper shooting pains that took my breath away. Some very sensible people on here explained exactly what an anaesthetic does to our bodies and having two so closely takes much more getting over (perhaps they can come back and explain it again, as I can't remember now ) Do let your family see how much you need them now, they will actually be glad that they can offer you not just practical but emotional support too. Sometimes we need a good wail, I always think it's best to let it all out. I'm now a year on, so looking back on that time, it's all quite a blur, but you will get through it all. Wishing you all the best for your results on Weds - let us know how you get on.
Hi Sarah sorry to hear that you are feeling down. It is a perfectly normal way to feel apparently. You don't need anti depressants. After the surgery there are all kinds of emotions. For several weeks I turned into someone who cried at the slightest thing (totally out of character!!!!). Ring you Breast Care Nurse and have a chat with her. Mine helped me so much, she explained about all the emotional stuff and understood exactly what I was feeling like. Maybe a bit of time off work and lots of time resting would help. Just remember, you will feel normal again one day!!!!!! Anne
I think the moderators might delete your post because it is an advertisement which is against the Forum rules.
Thank you to everyone who has written on this thread. I had my 2nd WLE on thursday and really struggled with my emotions today. I didn't seem to suffer like this in feb when i had the SN investigation on for my first
WLE 5 weeks ago but it makes sense now having read that it is harder to recover from anesthetic if you have 2 ops quite close together. Feel so sorry for my husband as he gets the worst of it! Hoping a good nights sleep tonight will put me in a better place emotionally tomorrow.