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Postmenopausal bleeding and more! :/ x

10 REPLIES 10
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Re: Postmenopausal bleeding and more! :/ x

Hey mc

So fat fingers scuppered my first attempt. 

Hooray for sunshine and twittering birds 😄

And,,,, i hope your Mam was as well as she can be 😄

Re macmillan nurses.... i used the contact number on the website. They have different options, but am sure if they cannot answer your specific questions they will know where to point you.

Sending you warm fuzzy thoughts as they are the softest x x x

Lexilou x x

Member

Re: Postmenopausal bleeding and more! :/ x

Hi Lexilou x

Thanks for replying! Yes luckily I have family but to be honest I don't really want to offload on them too much as I feel they've been pretty traumatised as it is with the breast cancer - without me voicing my fears x

When I hit a low point yesterday I rang the helpline - it certainly helped for a little while. 

Re the MacMillan nurses - can anyone ring them? I think I'd really like to talk to someone who knows about uterine cancer ... or not uterine cancer ... as the case may be!

 

I guess the first anniversary must be the worst one - everything is a bonus when you have been through what we and so many others have been through -  and there are so many who have dealt with or are dealing with much worse than me xx

 

It was lovely & sunny here today too! I went to see my Mam who is in an EMI residential home near here x and yes I took great pleasure in the birdies and the sunshine on my face too! A couple of life's lovely little pleasures 🙂 xxx

 

 

 

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Re: Postmenopausal bleeding and more! :/ x

Hey Mammycat

Have you a nearest & dearest you can safely confide in ? Someone who will listen & allow you to talk about all of your fears ?

Having said that, I found when sinking into the pits & I have spoken with either MacMillan or the Breast Cancer care advisers - just having someone listen without the stories of *others they know* and *those who had x, y & z & came thru it* has been really reassuring.

I have yet to make the 1 year anniversary & have had many wobbles (it seems even more wobbles once active treatment has ceased), but when speaking with the specialist services mentioned above I found they offered that unbiased listening ear I seemed to talk myself into comfort.

(Today it is beautifully sunny here - am just back from a lovely walk listening to the birds chirping hope you too have something simple to lift your spirits)

Bigs hugs to you in this unsettling time xx Lexilou

 

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Re: Postmenopausal bleeding and more! :/ x

Thank you Lexilou x

I'm so sorry to be negative but I feel like I'm sinking into that dark place again 😞

I'm trying so hard to tell myself that this is not going to be cancer - to stop worrying until I've had the tests - it may be something totally benign - but the horrible thoughts keep on coming back!

xxxxxHeart

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Re: Postmenopausal bleeding and more! :/ x

Hey Mammycat - well donr on setting teh ball rolling & liasing with your GP & the next round of hoops... Strength and agility to keep jumping.
Thinking of you,
Lexilou x
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Re: Postmenopausal bleeding and more! :/ x

Hi All x 

Just an update - my GP just rang and she is doing an urgent referral to a gynae for me. My endometrium is 15 mm thick Man Sad Nothing else abnormal seen

xxxxxx 

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Re: Postmenopausal bleeding and more! :/ x

I've been through this myself.  The NICE guidelines state that if someone is referred to a specialist with pmb that they should be seen within 2 weeks; although in my case it was 3.  I had an ultrasound followed by a uterine biopsy then booked in for a hysteroscopy when they found a polyp; which was removed a month later.

 

A good website to go on is SIGN so may be worth looking at that; here's the address  http://sign.ac.uk/guidelines/fulltext/61/index.html 

 

Hope all goes well x

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Re: Postmenopausal bleeding and more! :/ x

Hi I,ve got the same symptoms as you but have been taking tamoxifen for 2 and a half yrs. I was sent to our local gynae unit last week for a hysteroscopy after having a vaginal bleed. It was only light but Inhad all my pre meno symptoms, feeling grumpy, bloated and cramps. I hadn, t had a period for 5 yrs either I,m 56. I have to go back for a general anaesthetic to get a better view of what is going on. The consultant said it, s the meds we have to take. A lady named RevCat has a thread somewhere on here that I found v informative as I was quite worried as well. i know this sounds glib but try not to worry your body has been through a lot and it may be the letrozole. The consultant told me it could be the tam but because of the bc diagnosis Of BC we are seen within 2 weeks. I also frequent a group on facebook and a lady on there is on anastrozole and her periods have restsrted as well. Tell you what if we get a second life after this one I, m putting in a request to be a fella!!!

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Re: Postmenopausal bleeding and more! :/ x

Hi Mammycat,

Really feel for you & encourage you to take you courage in your hands and do go & see your GP.

Any lady who develops post menopausal bleeding should be investigated. You will be taken seriously purely because any lady with this symptom should be, though you have heightened anxiety due to your experiences to date. Hopefully your GP will be super sympathetic & arrange tests post haste - only to help allay your fears.

I would write these fears down - because ultimately I want to please and sometimes forget to make my case in the most forceful manner. And sometimes I forget all my fears with the anxiety of the appt.

If you struggle to get an appt & are asked is it urgent - say YES !.... you have had these symptoms for sometime & you are worried. Dont elaborate that to the reception team - but share with the GP when you see them. If no appts ask for a GP to call you back - but make sure you are in touch with your GP surgery as it opens its phone lines or doors first thing tomorrow.

I am only recommending this swift course of action because you are worried - you need answers & to get those you need a decent conversation with your GP.

Hope all goes well, thinking of you x

Lexilou

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Re: Postmenopausal bleeding and more! :/ x

Hi Mammycatx

 

I'm sorry to read you're having a tough and worrying time at the moment.  Whilst you are waiting for the other users to reply with their knowledge and experiences do give the BCC helpline a call on 0808 800 6000.  Here you can share your thoughts and concerns with a memeber of staff who will offer you a listening ear as well as emotional support and practical information.  Lines are open weekdays 9 to 5pm and Saturday 10 to 2pm.

 

Best wishes Sam, BCC Facilitator  

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Postmenopausal bleeding and more! :/ x

Hi All! Just after some advice and to see if anyone else has experienced this x

 

I'm a 52 year old who was diagnosed with Grade 11 invasive ductal breast cancer in October - no lymph involvement found - I had a double mastectomy with immediate reconstruction in November and am well on my way to recovery - all done and dusted in just over 3 months!

 

At the moment though I'm in tears and absolutely worried sick - terrified to be honest!

 

I'm postmenopausal and not had a period for at least 5 years - but for the last year or so I've been having some worrying niggling symptoms:

 

  • Period like pains/cramps on and off for the last year or so but this has settled to a dull constant 'periody' ache over the last 6 months
  • Also a dull aching lower back and pelvic pain 
  • Vaginal discharge for around the last 4 months (this had totally stopped with my very last period so I was surprised to see it back!)

 

Not surprisingly I suppose (since my BC diagnosis) these symptoms have started ringing alarm bells!

So I asked for an ultrasound months ago and eventually got one week last Friday - this showed an abnormally thickened edometrium - so the alarm bells are ringing at top volume!!

 

Then this morning I've started bleeding - not a large amount but after 5 years enough to shock!

I'm beside myself now with worry - my lovely Aunt died from uterine cancer - I know it may all be fine and I'm worrying for nothing but I have this terrible gut feeling  

 

I've only just started on letrozole so don't think it's that causing the bleeding - or maybe it is? Either way with all the other symptoms..... I could really do with some support - advice - your own experiences - anything! xxxxx