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Pregnant and diagnosed with BC

21 REPLIES 21

Re: Pregnant and diagnosed with BC

Hi Linds13

Whilst on the forum thought I would say hello. Guessing you will still be having chemo, maybe coming to the end of it? If you found your way to the Facebook group then I'm sure you will be getting lots of support. Take care. Love xxx

Re: Pregnant and diagnosed with BC

Hi Faye

I remember you too and I can't get over the fact your little girl is 4 years old! I hope she continues to make you smile as she grows.

Thank you for letting us all know how you are doing and for sharing your story especially for new members to the forum for whom I'm sure it will come as some relief to know there are other ladies out there who have been through the whole experience and come out the other side especially having chemo whilst pregnant.

I hope your preventative surgery goes as well as it can do - please keep us posted when you can - always great to hear from you as I know you have posted since you gave birth - you are an amazing supporter of this forum in your own right. Take care, good luck with the surgery and keep on enjoying family life. Love xxx

Re: Pregnant and diagnosed with BC

Hi, I'm late coming to this thread as I don't visit the website very oftern now.  I was diagnosed at 12 weeks pregnant back in October 2009.  I had 5 cycles of chemo whilst pregnant and one afterwards.  Finally I had rads.

 

My reason for writing was to say that my incredible daughter has just turned 4.  She is the sweetest, kindest, funniest, smartest little girl and she makes me smile every day.  Chemo doesn't seem to have done her any harm at all 🙂

 

I'm BRCA1 and my journey isn't quite over yet (preventative surgery to come) but you do get through it.  I remember Tors and Swissmiss fondly for their support when I needed it most - you're both amazing for supporting others for so long.  Thank you xx

 

Faye

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Re: Pregnant and diagnosed with BC

Hi Swissmiss,
Thank you so much for your reply. My poor head is still spinning, but I have learnt to take each day as it comes. I am lucky my little boy is changing all the time and that he makes it so worthwhile. I have also realised how lucky I am with all the support from my family and friends. I could not do this by myself. Just to add to my woes, my husband, myself and the baby had flu when I started my chemo, so I felt horrendous (baby wouldn't sleep longer than an hour during the night) but the upside is the second chemo should be a breeze! I am already feeling like a normal person again and the baby is back to sleeping most of the night. Thanks again, love and best wishes x

Re: Pregnant and diagnosed with BC

Hi again Linds13

 

You may have come across this post already but I have just lifted it from further down the thread:-


The Facebook Group is called the Younger Breast Cancer Network (UK). I think this is a private group rather than a public forum like this one but I am sure you will be made to feel most welcome and I know from previous posts on here that there are ladies who are pregnant or who have been pregnant whilst dx who can maybe offer you some support as well as others along the way.
If you can face it, it may be worth your while reading through other posts in the pregnancy category. I know BCC also do a leaflet you can download so worth looking for that too.
Also, have posted below a link to a publication which you may find helpful:-
http://www.rcog.org.uk/files/rcog-corp/GTG12PregBreastCancer.pdf
Best wishes. xx

Re: Pregnant and diagnosed with BC

Hi Linds13

 

Sorry you have to find yourself to this part of the forum - congratulations and commiserations in one fell swoop hey!  I don't know too much about IVF but understand it is pretty tough going so there you are pregnant with a longed for baby and then you are hit towards the end with a bc diagnosis.  It sounds like you couldn't script it but sadly it does happen and numbers are increasing.

 

It probably hasn't sunk in yet because you have been going through so much all at the same time.  In answer to your question as to do you just cope well, from my own experience and reading on the forums, yes, you will be amazed at how you will cope BUT and this is a BIG BUT, we all do it in very different ways.

 

It will certainly help if you have an immediate support network of family and friends around you for sure.  After that, there is support out there but it depends whether you want it ie post-natal groups to meet fellow new mums - it can be pretty isolating as a new mum at the best of times but even more so with a bc dx.  This not only gets you out meeting other new mums, some of whom hopefully will become friends, but it also gets you away from bc for a short time as this time with your baby is precious and although it will be hard at times you will want to treasure this time you have with him and make sure this horrible disease does not take this from you.  It will also be worthwhile speaking to your Health Visitor as they should be able to help with any other services or support that is available.

 

There is another forum, which is on a private facebook page, that is aimed at younger women and there are lots of ladies on there I believe who have been pregnant when dx, some having to have chemo whilst pregnant.  I can't remember the exact name of the site so will find out and post it for you as you may want to check it out.  I think you may get more support on the facebook site than this one to be honest as people tend to come here first and then migrate over.  Try and look over previous posts on this forum too.

 

You say you have your first chemo on Wednesday - not obviously something you are looking forward to especially with your newborn but although chemo isn't nice, most people do get through it, some have few side effects, some have a much harder time on it.  You will take strength from your baby to get through this but I think the best advice I can give and it is rather a cliche but its to try and take it 'one day at a time', break that down into bitesize chunks of just getting through a morning or even just the next hour and try just focusing on your little boy.  I used to get frustrated with the hospital not answering my questions, their answer was always 'its complicated' but it is only now looking back that I realise maybe they were right in some respects by just dealing with me on a 'need to know that day' basis - does that make sense?  As each chemo session went by, they would be more forthcoming in dealing with my questions.  I think what I am trying to say is that your mind is working overtime and you can become overwhelmed and they want you to concentrate on getting through your chemo as best you can and in your case enjoy as much as you can being a new mum and snatch those precious moments away from the nasty jaws of cancer.  Again, we are all different, some people want to be armed and informed with as much information as they possibly can but some just don't so each to their own.

 

I hope all goes as well as it can do with your treatment on Wednesday and hope you can keep us posted with how you and your little boy are getting on.  With best wishes. Love  xxx

 

 

 

 

Re: Pregnant and diagnosed with BC

Hi Linds13

 

Welcome to the BCC discussion forums.  I am sure your fellow forum users will be along soon with some much needed support, they have a wealth of knowledge and experience between them.  In the meantime could I suggest you give our helpline team a ring and have a chat with them about your thoughts, they're here to support you through this.  Calls are free, 0808 800 6000 lines open weekdays 9-5 and Sat 10-2.

 

Take care,

Jo, Moderator

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Re: Pregnant and diagnosed with BC

Hi
I was diagnosed at 39 weeks, told I had breast cancer and had to go straight up to the maternity section to be induced. I gave birth to a beautiful baby boy. I have had two surgeries since and will start chemo on Wednesday. Had numerous test as they seemed to think it had originated somewhere else. Triple negative grade 3, I don't know if it's the fact that I have my baby boy that it never really sank in until now, when I have to start chemo that I have cancer. I am absolutely petrified of what it will do and how it will affect me looking after my boy. I was unable to fall pregnant naturally so I had to have IVF so he is my only one, early menopausal as well. I don't want to miss out on a thing. Do you just cope?

Re: Pregnant and diagnosed with BC

Dear L_Rap

 

Thank you so much for posting an update for us all and I am delighted to hear that you now have a new addition to the family in your beautiful baby girl.  

 

Yep, you have been on a roller coaster for sure and as you say treatment is still ongoing and will do for some time.  Good luck with the op and the rest of your treatment - you are certainly going to have a story to tell your gorgeous girl when she grows up and I am sure she will give you the strength to keep looking to the future.

 

Don't pop onto the forum very much now to be honest but really glad I did tonight.  With my very best wishes.  Love xxxx

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Re: Pregnant and diagnosed with BC

Hi ladies, just wanted to provide an update.
I was 11weeks when diagnosed, had mx at 16 weeks (with expander implant), had 4 rounds of EC chemo from 24weeks and gave birth to my beautiful baby girl at 37weeks (induced) on 15th October. I coped well with the EC and had great care whilst pregnant. I wanted and tried to breast feed but my milk supply wasn't sufficient but the NHS have funded donor breast milk for us, Great support from the infant feeding team.
Treatment has continued post baby, had my last TAX last week and have op scheduled for rest of lymph nodes removed end of Jan. it's been a roller coaster of emotions but we got through it!
There's still a long way to go with recon, Herceptin and tamoxifen but the important thing is that despite initially being told I would have to terminate my pregnancy I found the information and support I needed to challenge that view and we now have our beautiful daughter and I'm hopefully on the right road to a happy healthy future. X

Re: Pregnant and diagnosed with BC

Hi Billy and welcome to the BCC forums
I am sure you will soon have lots of support and shared experiences here from your fellow users, please also feel free to call our helpliners on 0808 800 6000 for practical and emotional support, lines open weekdays 9-5 and Sat 10-2

I am posting a link to further information and support ideas which you may find helpful, you will find a link to a section about breast cancer diagnosis during pregnancy on the left hand side:


http://www.breastcancercare.org.uk/younger-women?utm_source=Homepage&%3Butm_medium=help_you&...

Take care
Lucy BCC

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Re: Pregnant and diagnosed with BC

Hi, ive just been diagnosed and have to have more tests. Im 23 weeks pregnant. Is everything ok with the baby while you had surgery?
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Re: Pregnant and diagnosed with BC

Hi ive just been diagnosed aswell with grade three type. Apparently early stages but have to have more tests incase its anywhere else. How r u feeling and have you started your treatment? My doc thought it was mastitis aswell! I so wish it was aswell. This is my second baby and im 23 weeks pregnant aswell.

Re: Pregnant and diagnosed with BC

Hi Tors
Good to catch up with you too - like to pop onto the forum from time to time because I know when I first came on here when I was dx whilst pregnant in 2006 there didn't seem to be anyone in the same boat as me and it made me feel even more alone but I then went on to discover there were a few of us about.
Not on facebook and have no plans to sign up but if I do change my mind I will definitely look you all up - strength and support in numbers hey!
Maybe we should do a fundraiser involving all the children born whose mum was pregnant or had recently been pregnant when dx to raise not just funds but awareness too - maybe your group has done something already. It would be good to have something on the home page here from time to time.
Really glad you pop in from time to time too by the way. Stay well and keep on keeping on! Love xxxx

Re: Pregnant and diagnosed with BC

Hiya Swissmiss, it's lovely to catch one of your posts again (in a 'we're both coming back here to help people kind of way obviously, not a we need help again way!)

Thanks fr signposting people to the group. We've had several pregnant members in the YBCN facebook group, and at the last count I think we've had 4 YBCN baby boys born so far......there are also some members currently pregnant and more members who have very young children than I would like to count.


I Hope all is well with you, feel free to join our FB group still, if you change your mind at any stage!

Re: Pregnant and diagnosed with BC

Hi E

I am sorry to read about your recent diagnosis, in addition to the support here please feel free to call our helpliners for futher support and information on 0808 800 6000, lines are open 9-5 weekdays and 10-2 Saturdays

You may find the following links useful to the BCC 'Breast cancer in pregnancy' information, you will also find a publication which you can order:

http://www.breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/breast-cancer-during-pregnancy

Take care

Lucy

Re: Pregnant and diagnosed with BC

Hi again E
The Facebook Group is called the Younger Breast Cancer Network (UK). I think this is a private group rather than a public forum like this one but I am sure you will be made to feel most welcome and I know from previous posts on here that there are ladies who are pregnant or who have been pregnant whilst dx who can maybe offer you some support as well as others along the way.
If you can face it, it may be worth your while reading through other posts in the pregnancy category. I know BCC also do a leaflet you can download so worth looking for that too.
Also, have posted below a link to a publication which you may find helpful:-
http://www.rcog.org.uk/files/rcog-corp/GTG12PregBreastCancer.pdf
Best wishes. xx

Re: Pregnant and diagnosed with BC

Hi E
Again, as with L_Rap, sorry you have to join us on here but hopefully you will find some support from others who are in a similar situation to you. If not, maybe it would be a good idea to join the Facebook group that was set up by Tors that L_Rap refers to above - I will try and find the link and post it for you. I do think many ladies who are dx join this forum and then make their way to the Facebook group.
I remember that sinking feeling trying to take in the dx when I was 30 weeks pregnant. There I was with precious new life growing inside me yet there was a very real potential death threat growing inside me at the same time too - so cruel. But, I think you will find strength from your baby and your other children to get through this but you won't even begin to get your head round things until you have your full pathology results which you say you get next week - yes, it will feel like the longest week and your mind will be racing for sure. Not sure if this will help but looking back from when I was dx I used to get frustrated at the Hospital giving me information on a piecemeal basis but really in hindsight it was probably best as it made me take things one step at a time so try to not look too far ahead - get through to Wednesday first, get your results and then take it from there. Try and focus on baby and your children.
Will try and dig out the link for you but keep posting when you can and hopefully you will get some other replies. Take care and best wishes. Love xxxx

Re: Pregnant and diagnosed with BC

Just want to send you (((hugs))) E.

It's hard enough getting a cancer diagnosis...I can't imagine what it must be like to be diagnosed when you're pregnant.

I know there's a facebook group for younger women with bc so perhaps you could join that. I can't give you a link to it as I'm far too old to join it...you're the same age as my daughter.

You could also post on the "Newly diagnosed" section of the forum...you'll get lots of support there xx
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Re: Pregnant and diagnosed with BC

Hi,
I found out just yesterday that I have cancer, both in a lump and my lymph nodes. I'm 23 weeks pregnant with my 3rd. Wont get my full diagnosis until next Wednesday. The longest week of my life. it all started with the doctor thinking I had mastitis. I wish it had been! Im 33 years old. Can't quite believe that I am sat here typing this. My mind is running in a million different directions. Still cant believe i actually have cancer.

Re: Pregnant and diagnosed with BC

Hi L_Rap
Welcome to the forum but sorry you are having to join us. I think there were a few ladies on here in a similar position to you but I don't think they come on that often any more - I think they probably found their way to the Facebook group that you have joined.
Being dx with breast cancer is bad enough in itself but to be dx whilst pregnant is very hard and can be very isolating. I was dx whilst pregnant back in 2006 and since then more ladies have come on here to share their stories and offer support to others in a similar situation.
I hope by bumping this up you will get a few more replies because it certainly helps if you have a cyber friend in tow. Good luck to the two of you with the rest of your treatment and keep us posted when you can. Best wishes. Love xxx

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Pregnant and diagnosed with BC

Hi,
I'm just wondering if there are any other women in similar position to me.
i have found a few lovely ladies on the Facebook group and their advice and support has been invaluable.
i'm 40, and was diagnosed at 11 weeks back in April. I had a mastectomy at 16weeks in May and am now waiting for chemo to start. I also have a young son who's 3.