Hi, I'm late coming to this thread as I don't visit the website very oftern now. I was diagnosed at 12 weeks pregnant back in October 2009. I had 5 cycles of chemo whilst pregnant and one afterwards. Finally I had rads.
My reason for writing was to say that my incredible daughter has just turned 4. She is the sweetest, kindest, funniest, smartest little girl and she makes me smile every day. Chemo doesn't seem to have done her any harm at all 🙂
I'm BRCA1 and my journey isn't quite over yet (preventative surgery to come) but you do get through it. I remember Tors and Swissmiss fondly for their support when I needed it most - you're both amazing for supporting others for so long. Thank you xx
Faye
Hi again Linds13
You may have come across this post already but I have just lifted it from further down the thread:-
The Facebook Group is called the Younger Breast Cancer Network (UK). I think this is a private group rather than a public forum like this one but I am sure you will be made to feel most welcome and I know from previous posts on here that there are ladies who are pregnant or who have been pregnant whilst dx who can maybe offer you some support as well as others along the way.
If you can face it, it may be worth your while reading through other posts in the pregnancy category. I know BCC also do a leaflet you can download so worth looking for that too.
Also, have posted below a link to a publication which you may find helpful:-
http://www.rcog.org.uk/files/rcog-corp/GTG12PregBreastCancer.pdf
Best wishes. xx
Hi Linds13
Sorry you have to find yourself to this part of the forum - congratulations and commiserations in one fell swoop hey! I don't know too much about IVF but understand it is pretty tough going so there you are pregnant with a longed for baby and then you are hit towards the end with a bc diagnosis. It sounds like you couldn't script it but sadly it does happen and numbers are increasing.
It probably hasn't sunk in yet because you have been going through so much all at the same time. In answer to your question as to do you just cope well, from my own experience and reading on the forums, yes, you will be amazed at how you will cope BUT and this is a BIG BUT, we all do it in very different ways.
It will certainly help if you have an immediate support network of family and friends around you for sure. After that, there is support out there but it depends whether you want it ie post-natal groups to meet fellow new mums - it can be pretty isolating as a new mum at the best of times but even more so with a bc dx. This not only gets you out meeting other new mums, some of whom hopefully will become friends, but it also gets you away from bc for a short time as this time with your baby is precious and although it will be hard at times you will want to treasure this time you have with him and make sure this horrible disease does not take this from you. It will also be worthwhile speaking to your Health Visitor as they should be able to help with any other services or support that is available.
There is another forum, which is on a private facebook page, that is aimed at younger women and there are lots of ladies on there I believe who have been pregnant when dx, some having to have chemo whilst pregnant. I can't remember the exact name of the site so will find out and post it for you as you may want to check it out. I think you may get more support on the facebook site than this one to be honest as people tend to come here first and then migrate over. Try and look over previous posts on this forum too.
You say you have your first chemo on Wednesday - not obviously something you are looking forward to especially with your newborn but although chemo isn't nice, most people do get through it, some have few side effects, some have a much harder time on it. You will take strength from your baby to get through this but I think the best advice I can give and it is rather a cliche but its to try and take it 'one day at a time', break that down into bitesize chunks of just getting through a morning or even just the next hour and try just focusing on your little boy. I used to get frustrated with the hospital not answering my questions, their answer was always 'its complicated' but it is only now looking back that I realise maybe they were right in some respects by just dealing with me on a 'need to know that day' basis - does that make sense? As each chemo session went by, they would be more forthcoming in dealing with my questions. I think what I am trying to say is that your mind is working overtime and you can become overwhelmed and they want you to concentrate on getting through your chemo as best you can and in your case enjoy as much as you can being a new mum and snatch those precious moments away from the nasty jaws of cancer. Again, we are all different, some people want to be armed and informed with as much information as they possibly can but some just don't so each to their own.
I hope all goes as well as it can do with your treatment on Wednesday and hope you can keep us posted with how you and your little boy are getting on. With best wishes. Love xxx
Hi Linds13
Welcome to the BCC discussion forums. I am sure your fellow forum users will be along soon with some much needed support, they have a wealth of knowledge and experience between them. In the meantime could I suggest you give our helpline team a ring and have a chat with them about your thoughts, they're here to support you through this. Calls are free, 0808 800 6000 lines open weekdays 9-5 and Sat 10-2.
Take care,
Jo, Moderator
Dear L_Rap
Thank you so much for posting an update for us all and I am delighted to hear that you now have a new addition to the family in your beautiful baby girl.
Yep, you have been on a roller coaster for sure and as you say treatment is still ongoing and will do for some time. Good luck with the op and the rest of your treatment - you are certainly going to have a story to tell your gorgeous girl when she grows up and I am sure she will give you the strength to keep looking to the future.
Don't pop onto the forum very much now to be honest but really glad I did tonight. With my very best wishes. Love xxxx
Hi E
I am sorry to read about your recent diagnosis, in addition to the support here please feel free to call our helpliners for futher support and information on 0808 800 6000, lines are open 9-5 weekdays and 10-2 Saturdays
You may find the following links useful to the BCC 'Breast cancer in pregnancy' information, you will also find a publication which you can order:
http://www.breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/breast-cancer-during-pregnancy
Take care
Lucy