i was diagnosed in Feb with invasive in right boob and later from mri scan they found something of concern in left boob - I have said all long if one goes they both go - I was to have had surgery in March - but chemo was put first - I have seen surgeon a few times since March and he has said my decision and I just keep repeating bi-laterial - My advice to you is keep strong repeat bi-laterial and look to get a second option / see other doctor. As my chemo is going well the oncologist said lumpectomy the last time I saw here - I said No one has spoken to me re a change of plan I am still having bi-laterial.
While I'll miss my boobs I plan to reduce my changes as much as I can for repeat - STAY strong!!! and push for what is right for you - as I am a 36E losing both and reconstructing both to be the same will be easier in long run
I'm back on the forum after having my mx and wondering how it's going with you, whether you've spoken to your surgeon again or decided to change surgeon. Hope all's well with you,
Hi I'm sorry you're going through this. I wanted bmx for my ER+multifocalIDC+DCIS but was refused at the time, they said to see how I felt later on rather than make a panic decision given my highly anxious frame of mind.
So, I am the same as Southpool, in that uni mx to deal with cancer and then I saw a psychologist, who liaised with the breast care team and then they agreed to remove the remaining breast. I am having mx with immediate recon done next week, which is ten months after initial surgery.
best of luck and hugs
Oh my goodness. You poor person. I had a Mx one side due to high grade DCIS,last year, and my lovely surgeon said she would do the other side, as had implant from mastectomy some years ago.It never really looked right.In fact, it had twisted over the years!
Hope it all goes well, and can so understand. You could have a BOGOF, have one side done and get the other one done for free!!! I would ask to get the other side done, can so identify with you.If not, ask to speak to another surgeon.
You will find the fight you need, we all have had to do it in one way or another.
I have completed 8 chemo and now surgery, and when I look back I can't see where I got the strength from, but you just do it!!
Good luck and make sure you fight your corner, this is your life. I think sometimes that although the teams helping us are excellent and understanding, they don't understand really unless they have been in the same situation. No one an really understand, and that is why this forum is so good. We have all been there and all had the same sort of problems.
Just thought I would reply to your problem. I don't write often, but do read regularly.
I have just had a double mx (7th May). I opted for this as I had invasive in the left, and also very small DCIS in the right. I also lost an aunt and my sister to BC.
Luckily my surgeon never questioned my decision, but I would say that if he had I would have gone ahead with a second opinion. So I think this may be somthing you might want to consider.
The whole thing is hard enough without having to fight with the team that is supposed to be helping you!!
You must do whatever you feel is right for you, and if that means putting up a fight then do it. All that matters is that you get well and have peace of mind.
Good morning MM, I don't have any experience to tell you about, just popped on to say how awful it must be for you and to wish you well.
Like you, I have lobular cancer and knowing it can be there and not show up on mammograms or show as a lump and could have been there for ages scares me too.
I've decided to opt for mx on my left breast, having been told my op next week will be a WLE with the possibility of a mx depending on what they find. I'm also thinking I will ask for a mx on my other breast. I've already had 3 WLEs on that, and feel just the same as you about cancer being present in it.
Good luck in your doubls struggle, MM.
It sounds like you're having a pretty difficult time at the moment. I'm sure some of the other users will be a long soon to offer you their experience and knowledge. In the meantime you might find it helpful to talk things through with a member of staff on the BCC helpline. Here you can talk through your thoughts and concerns with someone who will offer you a listening ear as well as emotional support and practical information. The number to call is 0808 800 6000 and lines are open weekdays 9 to 5pm and Saturday 10 to 2pm.
Best wishes Sam, BCC Facilitator