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Primary and secondary Bone mets diagnosis at the same time

6 REPLIES 6

Re: Primary and secondary Bone mets diagnosis at the same time

Hi,Vicki,thank you for your advice xxxx I'll do that. Have got an appointment next week which has been brought forward from 6 weeks as having terrible pain in lower back. lying in bed at moment watching DVD .wishing now I hadn't given up wine loll .had one day of radiotherapy about a month ago so hopefully he'll say I can have another one ! Still don't know I'm going to get there as struggle to walk to loo! Good job I gave up the wine.
Thank you for messaging me,Ii don't feel so on my own with this site. Take care,Helen xxxx

Re: Primary and secondary Bone mets diagnosis at the same time

Just remember that being shocked, fearful, upset and emotional are just normal reactions to getting a metastatic diagnosis.  There is not set way of dealing with this, and your onc will have had others who had a similar reaction.

 

Try writing down any questions you may have so  you can make sure that you get the answers you need.  Your hubby can always ask them if necessary.  Writing down the responses is also a good idea because it can be really difficult to remember what is said, although at the time you are sure you will remember.

 

Vicki xxx

Re: Primary and secondary Bone mets diagnosis at the same time

Hi,June,thank you for messaging me. I have the invasive lobular cancer too. I'm still trying to understand what this all means and get my head around it all.in the two times I've seen the oncologist I just cry,so glad my hubby is with me as he asks all the questions. I think the doctor thinks I'm incapable of talking and can only nod through torrents of tears lol. I will look at the bone Metz thread,thank you for taking the time to talk to me,Helen x

Re: Primary and secondary Bone mets diagnosis at the same time

Catlady. Welcome to the forum although I know you don't want to be here.

Same thing happened to me I kept getting told just a cyst right unto a few month before diagnosis of Invasive Lobular cancer with spread to endemetrium, right I ovary, ribs, spine, sternum and pelvis. Multiple places in the bones - loads of small spots.

It is hard to get your head around. If you haven't already had a look the bone mets thread is full of inspirational women and I found it a big comfort to reef through.

June xx

Re: Primary and secondary Bone mets diagnosis at the same time

Hi,Jo,thank you very much for your reply xxi,ll look at the links thank you xx

Re: Primary and secondary Bone mets diagnosis at the same time

Hi 2catlady

Welcome to the Breast Cancer Care discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.  I am sorry to hear that you got both a primary and secondary diagnosis at the same time which must have been somewhat of  a shock for you , but  I am sure you will get lots of support from other users of this site who are travelling a similar path to yourself.

 

While you are waiting for replies I have put for you below links to some of BCC's publications which I hope you find helpful.  Our helpline team are also just a free phone call away if you need to talk to someone in confidence.   0808 800 6000 lines open weekdays 9-5 and Sat 10-2.   Another of BCC's services you might find of support is our Secondary Live Chat service which runs each Tuesday evening between 8.30 and 9.30pm, this is facilitated by a nurse and a moderator, where you can 'talk' in real time to others with a secondary diagnosis.  I've also put you the link to that for you to have a look at.

 

http://www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/breast-cancer-you-diagnosis...

 

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-breast-cancer-bon...

 

http://www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-resource-pack-bcc...

 

http://www.breastcancercare.org.uk/breast-cancer-services/someone-talk/live-chat?utm_source=Homepage...

 

Take care,

Jo, Moderator

 

Primary and secondary Bone mets diagnosis at the same time

Hi,I've never posted before on a site before. So heavens only knows if this will work! After attending breast clinic because of family history,on routine yearly visit in Nov 12 BC nurse found some thickening so sent me for mamo. Didn't feel right to me,but it came back all okay. By June 13 I still had this nagging feeling thickening was not 'just hormonal' change in breast,so went to GP who referred me back to clinic. Had ultra sound on the Wed and was told I had BC,had CT scan on Fri.and was told that 'it' had spread to spine and ribs. Whole world seems to have fallen from under me.,feel very scared and alone. It's been three months since diagnosis now. Waiting to see if tamoxifen is working. To cut a long rambling short,I came across this site and read some of the posts from other ladies like me and felt I wasn't alone on this scary journey .