Hi Kirstykat - I couldn't just read this and run, as I've been in the same sort of situation as you. I had my treatment (mastectomy and reconstruction with an implant) at my local hospital, and it was not a good experience. Bureaucratic c*ck ups, unpleasant staff, and a very poor cosmetic outcome.
I spoke to my lovely GP about this (actually just a chat on the phone - didn't even need to go into surgery), and she said I had the right to be referred to anyone on the NHS in England, and if I gave her the name of a consultant I liked she'd do the rest. I don't know the exact ins and outs of this "right" - I know there are exceptions - maybe someone on the helpline here would know more?
I'm so glad I persevered with this. I'm now seen for my follow ups at the breast clinic at a fantastic hospital, and have been referred by them to an excellent plastic surgeon who is putting things right for me. There really is so much they can do.
I found what helped was researching breast surgeons who work privately but also do NHS work - there's plenty of information about their credentials on line, along with patient testimonials etc. I then made an appointment to see a couple privately and chose one I really liked. She's the one my GP referred me to. It's not a cheap option of course - I think I paid about £200 for a consultation. Might be a possibililty though?
Really hope you get a good result. Keep pushing for it! We deserve it after all we've been through.
All the best,
I had this and got the bulge removed by my surgeon (who is also a PS), he did it whilst doing another op for a small recurrence in the skin elsewhere. The bulge has not come back and that is over 6 months since the op. If you would like more details please send me a PM. Hope this helps a little bit.
K M x