I hear what everyone is saying but you have to understand a few subtle things. Your oncologist is an expert in looking after your cancer and understands the treatment options available to you in light of all other issues. CT scans, MRI scans, PET scans and bone scans etc are not their area of expertise. It is a bit like asking a gynaecologist to comment on a problem with your shoulder. It may not be obvious but interperation of scans and X rays is a completely different medical specialty. Your oncologist may well look at the scans but I would be far happier knowing a radiologist (Xray specialist) has looked at them and given their opinion.
I hate waiting for CT results but would not be happy to accept an unreported scan. I have asked for scans to be re-reported on rare occasions when I don't believe they have asked the right question and so the radiologist hasn't answered the question. Radiologists answer the question they are asked such as "is there a broken bone?".
My last scan report spoke about a stable cyst and a healed fracture. These hadn't been mention before so my doctor requested clarification. They just hadn't been mentioned before but were there!
I guess what I am trying to say is trust the doctors and if you are not sure ask for another opinion
Hi, I know my onc looks at the scans but as she says she is not the best person to interpret them so she usually waits for the reports before relaying anything to me. I hope this helps xxx
That's a very important question! it's OUR bodies, OUR scans after all.
My 2p'worth is that the reports are often sufficient. At my recent clinic appt I asked a question about my scan, I have bad chest pain so I had wondered about fractured sternum. Nothing on report but my onc said he'd look at the scan itself (no fracture 🙂 ) so I hope anyone's onc would be willing to look again if specifically asked.
Re scans being "hard to read" I had this problem with CT scans, capecitabine was working well on my liver mets but the tumour areas didn't show up clearly, so I now have PET-CT scans instead. These are more expensive, I think, but give a lot of information and don't need breath-holding or a contrast dye 🙂
Do you know if your oncologists look at your CT scans or just read the reports? I've just had an experience, for the second time, where I have been told that everything is stable on one scan and then the next scan reports new mets and says how much they have changed/not changed since the last scan so they were obviously visible on the previous scan but not mentioned. This has affected my treatment twice now and I'm not happy. Before I say anything to my onc I'd like to get a feeling for whether they are meant to do anything more than just read the CT reports. I do appreciate that something might be hardly visible on one scan and more visible on the next one, but this does not seem to be the case this time as the 'new' lesions are reported as not having changed since the last scan.