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RECENTLY DIAGNOSED

9 REPLIES 9
poemsgalore
Member

Re: RECENTLY DIAGNOSED

Hi SW1

 

Firstly, it isn't inevitable that it will return. It might, but during and after treatment you will hear a lot about risks of recurrence, and the only thing we can do is hope that it won't. As for whether it is worth having chemo or not, only your oncologist will have an idea about that. However. here is a link to the Predict Tool that might give you some idea:

 

http://www.predict.nhs.uk/predict.shtml

 

Put all the information you have about your cancer, then try it without chemo added and again with, to see what the difference is. There is some risk with chemo, but any side effects we might have can be treated with various drugs our medics can give us. We have an appointment about 2-3 days before each treatment is due, where we have a blood test and a chat with our onco about our side effects. Thousands have been through it safely and relatively few really bad effects. You will hear some bad stories, but those who don't have a bad story don't really talk about how easy it was for them. I have several other serious health problems, and even my onco was a bit worried about me having chemo - but I can honestly say, that apart from one occasion I sailed through it.

 

As for your diet. I can't answer that as I don't  know what your regime is. Just eat a normal, healthy diet. Plenty of fruit and veg, along with good quality meat (if you're not a vegetarian). Avoid sea food and shellfish as that can be a bit risky for anyone. But fish (especially high in Omega 3). Make sure any eggs you eat are well cooked and no runny yolks. 

 

You're not being selfish at all. You are just trying to find the best way to deal with this - as we all did in the beginning. You will soon find yourself wondering what all the fuss was about, and helping others with advice and support.

 

Sending you big hugs and wishing you well for your treatment.

 

poemsgalore xx

Jaine
Member

Re: RECENTLY DIAGNOSED

Lizzy22 you sound as if you have a similiar diagnosis to me.  I had my lumpectomy yesterday, still feeling a bit shell shocked, but Ok.  If you read the threads on here you will see most of us go through a whole range of emotions.  As I left hospital at lunchtime today, I felt a bit weepy as well as feeling elated that it had gone so well.  I hope you have people around you who can take good care of you.

Janet_BCC
Member

Re: RECENTLY DIAGNOSED

Hi SW1

 

Welcome to the forum where I'm sure you will find a lot of support from fellow members.

 

As well as the support on here you could also give our helpline a call for information and support.  The opening times are 9-5 on weekdays and 10-2 on Saturdays.  The number is 0808 800 6000

 

Very best wishes

 

Janet

BCC Moderator

Dana1
Member

Re: RECENTLY DIAGNOSED

Hi Sue

No need to apologise on this site we don't judge as we have all been there. With the other questions I can only say we have to hope for the best and trust in the future. XxD
Guest user
Not applicable

Re: RECENTLY DIAGNOSED

I don't even know how to begin this as I feel I have fallen down the rabbit hole and found myself in a pertifying other world.

After 5 inconclusive biopsies a lump (1.9mm) ectomy confirmed grade 3 (that's bad I now realise) invasive ductal carcinoma.  It's oestrogen positive (just) and I am being advised to have chemotherapy the idea of which is frightening beyond words.  As someone who has always tried to follow natural alternatives the idea of the very scariest heavy duty drugs makes me feel sick before I get near them.

I realise there are so many of you out there and want to send my very best thoughts but at the moment I feel almost frozen with fear.  Is it inevitable that this disease returns?  Is it worth having chemo?  How risky is it?Does diet help or am I imposing this mad dietary regime on myself  pointlessly.

 

So sorry for my selfishness but I promise to contribute more helpfully when I feel a bit braver. Sue

mary32
Member

Re: RECENTLY DIAGNOSED

Hi Lizzy

 

I just wanted to add my reassurrance too. I had wle and snb early September,  lymph nodes clear. I went back to work in between surgery and radiotherapy. Just completed the rads last week and back at work doing a shorter week for now.

 

Mary

lizzy22
Member

Re: RECENTLY DIAGNOSED

Thank you I am so pleased I joined the site. As I have said I will be glad to get my surgery done and other treatment. I have great support from my family , but is a comfort to hear from people that have battled or are battling BC.

love and best wishes 

xxxxxx

JCJ
Member

Re: RECENTLY DIAGNOSED

I had WLE and SNB after a recall from a routine mammo, so I know exactly what sort of state you are likely to be in, mentally. Yes, your emotions will be all over the place. It's such a shock and it's all so frightening.

 

I had my dx (diagnosis) in Feb 2012, WLE/SNB on 22 Feb. SNB results on 6 March clear nodes BUT grade 3, so asked if I would like to have chemo. What a decision! (and another huge shock as it hadn't been mentioned up to this point!!) I eventually declined it. Radio therapy April/May 2012 - 15 sessions. Now on Zoladex (2 years) and Tamoxifen (5 years)  hormone therapies.

 

I'm only telling you all this because I'm now back at work and almost back to 'normal', with just the occassional panic and a few minor, mildly annoying SEs from hormone therapy/scar tissue. I started a phased return to work in June 2012, and was back up to my full timetable by September (I work in a school, so I had August off anyway!)  

 

I know messages from people who had come out of the other side of treatment and were NED (No Evidence of Disease) helped me when I was 1st dx, so I'm hoping this will help you.

 

It seems terrifying from where you are now, but you WILL get through it, and be well supported by your breast cancer care team and everyone on here. Cry when you need to - don't try to be too brave - but also notice and enjoy the things that make you happy!

 

Good luck. Hugs.

4littlecherubs
Member

Re: RECENTLY DIAGNOSED

Hi kath,
Sorry to hear your also on the breast cancer emotional roller coaster too....you will have good days and bad days but as time goes on and you get over each hurdle you will start to feel much better and in control again. Its good that it been caught early and yes its routine to have SNB at the same time so try not to look into things too much (easier said than done) this is a great forum to be, I had a mastectomy 3 weeks ago luckily my nodes were clear and they managed to clear all the cancer so I only need radiotherapy which starts on saturday and tamoxifen tablets but this forum has helped me so much as im sure it will you. Im sure there will be some more ladies along soon to give you words of encouragement.
((((Hugs)))) xx
lizzy22
Member

RECENTLY DIAGNOSED

Hi everybody

I was diagnosed on the 6th November. I had been for my routine mammagram and got recalled. I had to have a core biopsy. When I went back for results was told it was caught early 8mm and treatable. But I am okay sometimes and then so low.I cant wait to get my surgery done , which is on 5th December. Just need to get this out of me.I am also having SNB at same time. My consultant says this is done even though ultra sound showed alright. I have also got to have radiothrapy. I hope when I get my final results I dont have to have anything else.

 

Kath xx