Pleased to hear you are finished, nearly, with this elment. Hope it's been OK-ish? Did you do 3 weeks or 4.. I can't imagine how on earth I'm going to do the daily commute for it (we're based Surrey/south London here) and I work and have kiddies... bad enough with 3 different schools and work on the best of days.. I may just get down to HR airport and bolt - I am so over it all now especially as this element for me after the my earlier mastectomy for DCIS was never in-plan originally -
Have you had any shrinkage or shape change or any side effects?? I know that is usually a bit further down the line, IF , it happens? I hate all the waffle with hospitals varies for patient to patient etc etc,,,actually I just hate hospitals full-stop....
off to the gym to shke it out....!!
My surgery was wide excision, so radiotherapy was the next step. But only after they then checked the nodes, as once the initial surgery had been completed, my diagnosis changed from DCIS to an invasive cancer.
I am very frustrated at not moving forward sooner but am finally being kind to myself & lowering expectations. Hope this may have helped, if not best wishes anyway x x
Thanks for your update - very helpful. I like most of us work and have 3 young kids so I don't come onto the forums, too much but tonight I have been dropping my eldest son off at school for a 2am departure to the Ajax stadium NL!! Sounds farmore fun - I should have just got on with them!!
geeG and Lexilou- do you mind if I ask you how you have ended up with radiotherapy and a masectomy please? (it is pretty rare, isn't it) I know that usually RT is reserved for those women having breast conserving tissue? I am in this situation, myself, because my mastectomy wasn't completed successfully. I felt 'nodules' which were residual disease rehrowing just a few months later. Further assessement has shown deeper than normal breast tissue under my skin envelope (i had a skin sparing mastectomy) I have had some of this removed by my first WLE and await a further followed by radiotherapy and then a very robust screening plan to keep what's been left under-check.
This was all compounded by the hospital policy to not check all margins with masectomies as they somehow even after the wide-spread adoption of the SSM mastectomy still state that a masectomy means the excision of all breast tissue.
I have my planning appoitnment in early April, as I just cannot go back to the "hospital" or whatever that got me here I am with a new clinic up in town and will have my radiotherapy at a site about an hour's trip from my home - 35 minutes further away than the hospital that did the mastetcomy.
Sorry I can't find it in myself to be geneous re how much vaugeness there is in the treatment of BC I actually think most of it is nothing more that a strategy to avoid patients being able to formulate valid objections and questions... but of course it is the Google age and that doesn't have to stop you.
Thanks for the update...... Take good care and don't try to be a superwoman 🙂
I didnt have the reconstruction you each have had as there was sufficient tissue to refashion using a reduction style technique. My rads finished at the end of last summer and i have a firm lump remaining at the treatment site. (This has been ultrasound scanned, result of surgical treatment and rads not suspicious of new disease). Whilst working thru treatment is great if you can, i feel utterly miserable as am feeling am a failure as not yet back to full time work due to fatigue. Once i hit the fatigue wall coherent thoughts and speech goes.
I suppose i am writing this because we all vary so much the *wait and see* is the only advice they can give other than general advice.
I have learnt to be kind to myself and adjust expectations. I have a job i love, and am good at, but to be good at it i need a fully functioning brain, otherwise am a liability, and as such could lose my professional qualification.
Good luck ladies, may you continue to remain well and find this next phase not too challenging. LL
Thx so much for replying. Very useful. To be honest I'm a bit weary of the standard "the individual reactions vary" approach . I really don't think any other profession would be allowed to fob us off like it and be tolerated. surely some sort of indication of outcome on a sliding scale should be possible.
Whilst waiting for replies you might find it helpful to call our Helpline to talk things over. They'll be able to offer practical information as well as emotional support. The opening times are 9-5 on weekdays and 10-2 on Saturdays. The free phone number is 0808 800 6000.
With best wishes
Another few months in and I find myself on another board! Hoping for some useful, been-there-done-and- it- was-actually-OK advice from anyone who is able to help, please.
I had a SSM and immediate DIEP reconstruction, in April 2014. Unfortunately I have just also had a WLE to remove residual disease and some "left in" glandular tissue in the anterior (below-skin) of my breast. Now recommended, of course, to have RT as an insurance for the rest of the breast and as a mop-up in the area of residual disease.
Has anyone else been through RT after a autologous reconstuction?
Did your breast harden, shrink, change shape etc etc..
was it temporary or for good?
What precautions/creams did you use?
Were you uable to keep working through the course? I read, as with all of this, very mixed views. mopstly that you get a it grumpy toward the end - well tbh noone will notice I am furious x grumpy!
I now understand (hindsight is such a good thing - as is doing your own research!) that some of the Breast Units are as a matter of course including post-masectomy radiotherapy after DCIS, particularly over a large area. Due to building knowledge that this archtiecture can often be multi-focal and more wide-spread and hard to fully image. But clearly that is for the 'treating' hospital to make the call.
Has anyone had this as a next step?
thanks all, in advance.