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Radiotherapy and Fibromyalga

10 REPLIES 10

Re: Radiotherapy and Fibromyalga

Hi there Mary,

 

good you you have got rads out of the way but I'm sorry you're suffering a bit at the moment. I hope things improve for you. I've got off lightly so far but just had 12th rad with two more to go. Only now beginning to see slight reactions but not drastic yet!! i might regret saying that now. Take good care of yourself. Sue xx

Re: Radiotherapy and Fibromyalga

Boobywoo I don't have fibromyalgia but the treatments are harsh enough for anybody so I'm not surprised you feel as you do. I hope you get your fibromyalgia under control again soon. Listen to your body xxx

Re: Radiotherapy and Fibromyalga

Asking for reduced hours sounds a very good plan Boobywoo x

Re: Radiotherapy and Fibromyalga

Thank you all for replies. I have had my fibromyalgia under control for a couple of years. Really hadn't thought of consequences of the impact of all this. I have a demanding job so thinking when ready to return to work will ask for reduced hours first week. Thankfully will have 10 days Christmas break before rads start. Really think I am not going to work during rads as work and hospital are both 25 miles in opposite directions from home ! X

Re: Radiotherapy and Fibromyalga

Hi Boobywoo,

 

take things as easy as you can, don't push yourself to recover any quicker than the body can manage. I've got M.E. The anaesthetic and 2 surgeries wiped me out but over a couple of weeks I picked up. I've had a week of rads and although I feel tired it's probably the travelling etc rather than the treatment so far. Sending love and hugs, you're not alone x

 

Re: Radiotherapy and Fibromyalga

Hi Boobywoo,I finished rads 2 weeks ago and just now am feeling shattered.Back aches and of course I panic thinking oh no is this something sinister but have to gather my thoughts and try to be sensible, I also have multiple sclerosis so that could also be cause. Please be kind to yourself.xxMary

Re: Radiotherapy and Fibromyalga

Thank you Terri. My legs and arms were terrible after my operations and I feel like I have been hit by a bus but that's probably 2 ops in 3 weeks as well as the fibromyalgia . Polymyalgia is worse I believe
Wendy xx.

Re: Radiotherapy and Fibromyalga

Hi Boobywoo

I have polymyalgia & my legs have been really aching. Thought it was side effect from chemo but just finished my 1st week of rads and it's worse, feels like I'm walking in sand! Never thought it could be rads? Will have to ask on Monday as this would explain the awful aches.

Don't feel lonely..... we're all here & you can do this 😄

Lots of love

Terri xx ❤️

Re: Radiotherapy and Fibromyalga

Breast cancer !

Re: Radiotherapy and Fibromyalga

Feeling very lonely. Does no one suffer from fibromyalgia who is going through radiotherapy for breastfeeding cancer ?!

Radiotherapy and Fibromyalga

Hi, this is my first post. Had re-excision for DCIS high grade last Thursday 1 week after initial wide excision, thankfully Consultant chased results so second biopsy margins confirmed OK yesterday. Now to heal and told to expect radiotherapy in New Year. I did not react well to anaesthetic and surgery and feel like I have been hit by a bus this week due to my fibromyalgia, which is normally under control. Has anyone had adverse reaction to radiotherapy who has fibromyalgia  ? Feeling very anxious , thinking stupid thoughts like what if the surgeon missed anything and it grows before radiotherapy starts.