The gown undid down the side too, so they folded it back to expose a strip down the side. I thought the dots were a bit small but it didn't occur to me that they would write on me again. I haven't managed to wash off all the ink from Tuesday as I can't reach across and apply sufficient pressure. I won't be wearing white bras for a while then.
I am pleased to report that today at my first visit to RT dept I was given a short gown that opened with poppers across the shoulders. Radiotherapist said velcro fastening ones were less fiddly to do up, but the velcro doesn't do well in the laundry.
Hi Leonora - I was sorry to read about the problems you are having as a patient who is also a carer. Have you had a carers' assessment from your local social services and do they know what your treatment plan is currently? If you were living in my area (I'm a social worker) you might be offered a home carer to come and sit with your husband when he can't get to day centre to free you up for your RT. Home carers vary but in my experience care at home by an experienced carer can be reassuring for people with dementia.
Your chance for RT is one that's too good not to miss, whatever the hassles (and there are many, I can see that; I'm preparing for mine in a few weeks!)
Hi again Leonora
I'm sorry to hear that you're still having problems trying to make arrangements to attend your radiotherapy appointments. I think I suggested previously for you to give our helpline a call? I don't know if you have, but they will be able to point you in the direction of some support. Calls to the helpline are free, 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2.. Also have you spoken to your GP about this, they may be able to arrange with the local authority for someone to sit with your husband while you have your treatments.
I hope you get things sorted pretty soon. Take care.
Had my last one this morning, onwards and upwards now! Not much longer for you now either, hope all goes ok for you xx (Only thing bothering me now is Letrozole and my hair shredding, hope that improves!)
Hello again Jo, and thank you for your reply to my crie de coeur .
I have read several of the BCC's booklets, and found them really helpful - but I am still chasing my tail,
trying to fix up suitable care for my elderly, sick husband; care that will allow me to be away from home for the four/five hours the treatments will take.
I have been presented with a list of twenty-five appointments for rads - but several of them are impossible for me to attend. As I explained in my first letter, I have a two hour bus journey each way, and my husband is collected by the day centre bus at 9.30, and is sent home at 2.30.
It would therefore be impossible for me to be at the hospital by, for example 9.30. I did explain my problem when I went for my, 'setting up' session, but they told me there was no alternative. I am sorely tempted to forget about radiotherapy, and take my chances.
How important is it that one should attend every single session on a daily basis?
I understand that, from the point of view of the hospital, daily attendance is a good thing ; but my husband is old, has dementia, and, (something I did not mention) sometimes has epileptic seizures.
Should he have an attack in the night, I could not send him to the day care centre - he would be far too zonked out to cope, I normally let him stay in bed after a seizure.. There is no one but me to look after him, so I would have to miss a treatment.
There must be someone out-there who found a way around a similar dilemma - all tips welcome...
I started rads last week and have had 4 out of 15 so far. I'm wearing a vest top which I pull down. This seems to be working well and I feel at least I have a bit more dignity than wearing a gown. The scarf sounds an excellent idea. Good luck to all of you
Scarf worked fine, much better than the paper towel. They were much admired by the radiographers too, certainly 'broke the ice'! Last one tomorrow for me, hope all goes well for you x
Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site. As you talk about starting radiotherapy soon I have put for you below the link to BCC's publication on this subject. With regard to coping with this whilst also being a carer for your husband, could I suggest you give our helpline team here a ring and have a chat, they may have information available that will help. Calls to the helpline are free, 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2.
Hello there, what a brilliant idea! I, too, was just offered a , 'modesty tissue' at my first session last week;( you know, the session where they set your treatment position, and do the mini tatto.) I shall certainly take a long scarf when I head off for my first real treatment. Thanks for forwarning me!
Brilliant idea, will try it this afternoon. must be an improvement on the sheet of paper towel. I have been wearing the top you can roll down too but I like the idea of a bit more coverage with a scarf. (Off to choose which one!) x
That it a very good tip. At my hospital you were not provided with a gown.
You took your top off in the radiotherapy room, and if they remembered, there would be a pillow case left on the chair where you left your clothes. This was supposed to cover your modesty fom the chair to the table. Pretty useless really. Wish I'd thought of the scarf thing.
Best of luck with the rest of your treatment.