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Really nervous about reconstruction

42 REPLIES 42
peacock
Member

Re: Really nervous about reconstruction

Hi all

Just catching up with this thread and glad to hear that Mally is doing so well so quickly after the op in April that is very encouraging.

Well I still haven't had my recon, and am not sure when it will be but am hopeful it will be before the end of this year.

I have had reduction in the good side though, I asked for this because was fed up with being so lopsided and suffering quite a lot of shoulder pain probably due to being uneven. Anyway, I was only in hospital for 2 days, the op went well although was more painful than I expected for about 3 days but I am delighted with the result and for me it is so lovely to have ONE boob that is like an 18 year old one! Still bruised but getting better all the time.

So hopefully I should know around September when my date will be and although anxious and worrying about how painful/uncomfortable it is going to be I am looking forward to being "complete" again.

Take care all

Guest user
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Re: Really nervous about reconstruction

Thanks a mill for the update.
Im hoping to have the diep done (eventually). I had a mastectomy 4 weeks ago, and will be starting chemo shortly. I think it will be a year and a half before I can have it done. But its nice to hear good stories about the op!

Guest user
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Re: Really nervous about reconstruction

Hi Ladies,

Well just to let you know I'm 6 weeks post opp and all settled down, its all looking good, boob and tummy, my tummy is nice and flat and my boob is spot on to my other boob, so really pleased with the out come, it has made me feel so good about myself again, well worth the pain, xxxxxxxxxxxxxxxxxxxxxxxx, just looking forward to hol's now x

Guest user
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Re: Really nervous about reconstruction

Hi Carolyn

yea had dep tram from tummy, yes it was sore it is a harsh opparation, but it is worth it as my boob looks fab i love it, the recovery is a lot longer and slow, it's been tree weeks now and still swollen very ....and uncomfy but getting there, looking forward to my flat tummy, but think it will be a few more weeks before it all settles down and looks like a tummy tuck .

well hope you are ok
sal x

Guest user
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Re: Really nervous about reconstruction

Hi all

Glad to hear your doing ok mallysally, was your op very painful are you pleased with the results. I havent had word yet but wait in hope. Did you finally decide on the tram flap op.

Glad your back

Love to all Carolyn x

aqua
Member

Re: Really nervous about reconstruction

Hi Sal

I had my Tram Flap Recon 3 months ago and though my tummy and back is now pain free I also still have days when I am so tired. I have to say that is one of the worse things, I used to suffer from sickness too though not as much now. I for some reason lost my taste buds for about a month, though fine now. Surgeon put it down to long op/medication.

Recovery seems so slow but you will get there

xx

Guest user
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Re: Really nervous about reconstruction

Well its just over2 weeks.. still very tender, standing better , still getting days where i feel sick and hav'nt got alot of energy..hope every one is well sal xxxx

Guest user
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Re: Really nervous about reconstruction

Hi C arolyn

Well had my dep flap recon...was in hospital for a week, it was hard going and was very sore, but know i am home and getting better, day by day I'm getting stronger and straighter lol... as i could not stand up straight. I am very pleased with my new boob it is beauty, and yea my new tummy, but most of all it is my boob that i am very pleased with, my surgon was fab and his hands are amazing....
I hope you are well and when do you have your opp ?? keep me informed, i will let you know how i'm doing as it is 12 days since i had opp, and doing quite well. xxxx

Guest user
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Re: Really nervous about reconstruction

Hi mallysally

I am having right tram flap reconstruction. Hope you get on ok and I will keep looking on the site for your update. Hope you get on ok

Love and best wishes
Carolyn x

Guest user
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Re: Really nervous about reconstruction

Hi carolyn

I.m going into selly oak for my opp, birmingham, looking forward to it but not if you know what i mean, but be glad when it is all over and yea fingers crossed that it dont get cancelled again would be very up set as I'm looking forward to having time off work lol...., so you are looking to having it done to ? are you having the same as me ???? i will let you know how things go , so keep a look out about aweek after my opp will pop on and let you know how I'm going , thanks for the concern, hope you are well

sal

Guest user
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Re: Really nervous about reconstruction

Hi Mallysally

Good news glad to hear you have a new date. Hope it does'nt get cancelled this time. I patiently look for a letter every morning but being realistic it will probably be about sept/oct. Let me know how you get on. I will be thinking of you on 22nd. Which hosp are you having it done at.

Love

Carolyn x

Guest user
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Re: Really nervous about reconstruction

Hi Ladies

got new date for my opp....22nd so hoping it does not get cancelled this time, so will keep you informed, still scared but exited to xx

Lucy_BCC
Member

Re: Really nervous about reconstruction

Hi Sal

Your thread about taking aspirin with tamoxifen is in breast awareness and some users have replied to you here, the link is below:

http://www.breastcancercare.org.uk/forum/viewtopic.php?f=6&t=25478

Best wishes
Lucy

Guest user
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Re: Really nervous about reconstruction

Hi ladies .

just a quick one, can you take asprin when you are on tamox ????
I have read that if you take 2 aweek it will reduce the risk of reoccurance ????? any feed back on this would be great

sal

Petal5
Member

Re: Really nervous about reconstruction

Hi

I am thinking about a reconstruction after mx and wondered if you can give me some advice.

How long do you have to leave it after radiotherapy before the operation can be done - I think you have to give the skin time to heal etc?

What is the usual waiting list time?

Guest user
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Re: Really nervous about reconstruction

So pleased for you and glad you are the road to recovery ...well done..i cant wait to have my opp .and if you look above i was ment to have mine this week but got cancelled ...so gutted ,but hey ho ..it will be my turn soon .....i hope i am as good as you ..3 weeks and your up and about thats good ...xxxxxxx

Guest user
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Re: Really nervous about reconstruction

Hi All
Well after waiting for 18mths i too have just had my diep recon that was 3 weeks ago, i cant believe how good my boob and tummy look its the best thing to come out of this!! I have a 3 year old girl and a 13year old step daughter and a wonderful man and mother who have supported alot, im very grateful. It is a very nerve racking experience but i would recommend it to anyone.
I will be honest and say it's not all been easy prob because i like to be busy even during chemo i insisted on no help i was going to do things for myself im so glad i did it really got me through it all!
There is only so much tv, reading and relaxing u can do lol.
Its been 3 weeks now and today i have started doing some light work sad but its put a smile on my face lol.
It's a strange time for me have felt really down and low in the last week but have spoken to some professionals and had a good chat which helped.
I wish anyone about to have an op the very best of luck
take care
Charleen xx

Guest user
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Re: Really nervous about reconstruction

Hi Ladies
got some bad or sad news ..my opp got cancelled day before i was due to go in ..i was very up set about it as i got myself all worked up and mentaly ready for my opp..so now I'm sat here waiting for the phone to go or a letter to drop through the door..to let me know when i will be going in ... after sorting work out, my husband sorting time off work..and know we have to go through it all again, so lets hope ladies that it wont be to much of a wait, as really i should have my new boob today 😞 will let you know when i know xxxxxxxxxxxxxx

Guest user
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Re: Really nervous about reconstruction

Hi Mallysally

Good luck with your op. I had a Diep last March, the nipple in October and the tatto last week.

I must say although breast cancer can be /is crippling, I have never felt so good about my body, larger boobs and a flat tummy, it really was worth the surgery.

Pancake

Guest user
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Re: Really nervous about reconstruction

Thanks mallysally i would love to hear how your op went good luck and good recovery.
Carolyn x

Guest user
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Re: Really nervous about reconstruction

Of course we want to know how you get on, because on this website everyone cares about everybody, whatever their situation.

All I can say is that after 13 months with one breast missing, I was very grateful to benefit from a successful LD reconstruction a year ago, so much so that I had an LD flap on the healthy side to match 11 weeks ago, and all is absolutely fab.

Yours will be a much longer op and rehabilitation, of course, so that is why I am sending you my wishes for a successful op and recovery.

Bubs x

Guest user
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Re: Really nervous about reconstruction

Hi ladies

will keep you posted and let you know how i'm getting on ..

bubs will let you know how it went if you would like to know??

and Carolyn i will let you know to if you would like...and i know what you meen about having to put your family thought all the upset of you going back under the knife and the recovery time.. but i feel as thou i'm not whole and part of me is missing..and need to put closer to it all and try and feel me again..if that makes sence..it will be almost 2 years that i had my masecto..so yea looking forward to opp but not the pain and not being able to get to gym and work ..but will be nice to have some time out xxxxx

Guest user
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Re: Really nervous about reconstruction

Good luck mallysally for your op. I am on the waiting list for tram flap surgery it should be later this year. I am nervous but really excited. I had a mx 3 years ago and like others just woke up one day and thought the time is right I thought long and hard about it but needed the 3 years to come to the decision on my own. I do feel a bit guilty about putting my family through more but deep down I know that once I have this done I will turn a corner.
Once more good luck for your op and thanks to this wonderful sight for all the help and support it offers.
Carolyn x

Guest user
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Re: Really nervous about reconstruction

Good luck, I hope all goes well for you, and we'll all be thinking of you. Keep us posted!

Bubs xx

Guest user
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Re: Really nervous about reconstruction

Hi Ladies
well next wednesday i'm in hospital havind recon from tummy..scared but looking forwardto it ...in a scary way. well ladies will keep you in formed xxx

Guest user
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Re: Really nervous about reconstruction

I had my tram flap 11th Dec 07, it is a long op but well worth it for me.

I came out of hospital day 5, walking was slowish and I had to bend slightly so as not to pull the tummy, my kids were 10 and 8 and because the op was the week before school hols this helped recovery no end, I went to the school carol service on day 8, sons football do day 10 and was in town with my daughter on day 12 doing last minute light shopping (she was carrying the bags and my husband was taxi). For my checkup on christmas eve my husband did the food shopping and dropped my off at the hospital door, my PS and his team were shocked when they saw me walking the corridor unaided + getting on and of the bed.

I built my walking daily but did not feel safe to drive (emergency stop) until week 8, I went back to work after 9 weeks and was back at the gym about 3/4 months. I do 3 to 4 high impact classes per week and just watch the lower tummy excercises. I wore a lovely dress when I celebrated my 40th and had a cleavage again, I also dont have to worry re the prosthesis falling or slipping out.

I would suggest easy food, it can still be healthy, I couldn't even cut a potato to start with, we lived on M&S prewashed and chopped bags of veg and sliced melon etc and teach your kids how to make you a cup of tea.

Also when in hospital put all your essentials in easy reach before the op i.e. phone, face wipes and creams, you will be bed ridden to start with and your arms will be sore from being taped back for so many hours.

Good Luck

Debbie

truffle_shuff
Member

Re: Really nervous about reconstruction

Hi, just to say

i had ld flap in may and the one question i kept asking everyone , was regarding pain control, the answer was that the medical team would be failing if i felt any pain what so ever. Trusted them and had to say they were correct , i felt not one twinge of pain, had lots of drugs which kept on coming, did not have to ask , team came to bedside every 4 hours with top ups.

I have no regets and it has done wonders for my recovery, so glad I put myself first for once and went for it, despite being the biggest mardy bum I know.

take care xxx

peacock
Member

Re: Really nervous about reconstruction

Hi all

I had a visit with my PS yesterday following a CT scan of the abdominal area, which wasn't clear enough but hopefully I will know next Friday of what option is best for me, ie free tram or tram/diep.

I am scared about it, as the PS advised me that I will be in a lot of pain and will ask myself "why did I have it done" just after the surgery. We all suffer pain differently and I don't think I have a very high pain threshold, is it bad ladies?

I've had 3 ceseareans and have no tummy muscles at all, but he said it doesn't matter. I'm also concerned about scar adhesions from the previous C sections. I will probably be having surgery next March' ish.

I've made my mind up that I want the surgery, I need to look and feel normal again but have been upset by a family member suggesting why would I want to put myself through such a big op just for vanity. Typical, no support just negativity, as if they really understand.

Here's hoping you all recover quickly from surgery and start to enjoy your new bodies ladies.

truffle_shuff
Member

Re: Really nervous about reconstruction

love that tits on the brain.

i had mast and immediate reconn in May , needed to see a boob not a flat area , must say im so pleased with the results , want to show everyone, dont of course but joking apart, the op was less painful than the blinkin flu jab ive just had .

good luck to all waiting for the recon although you will not need luck it will be fine

hugs to allxxxx

Guest user
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Re: Really nervous about reconstruction

Thanks for some feed back ..as it all helps you get through the scared times.. i can't wait till i can look down and see a pair of boobs..and not worry what top to put on ..always wearing scarfs round my neck,
and feel hole again .....i have been with out my boob for 18 months ..and its been hard for me,,,,so glad i hav'nt got long to go till im balanced out ..sal x

Guest user
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Re: Really nervous about reconstruction

Hi there
Am post op 3 weeks tomorrow from an ELD reconstruction and just wanted to encourage you and say it is definitely worth it! Am still stiff and sore but pottering around and the boost I got from looking down after my mx and seeing the breast still there, to all intents and purposes, was incredible. I was lucky (!) and was able to have immediate reconstruction so only the one big op (6 hours) and 5 days in hospital. You will need some help but I am a lot better than I had anticipated.
Wishing you every bit of luck and a speedy recovery.

Guest user
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Re: Really nervous about reconstruction

tits on the brain ...i ment tips!!!!!!!

Guest user
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Re: Really nervous about reconstruction

Hi Bosley

I Know what you are going through..as i myself is waiting to go in and have recon ....I'm scared but excited to .....I have decided to have tram belly.... I'm not looking forward to being laid up in bed and not be able to be mobile, and having to go through the pain again...but think it will be worth it in the long run .. i DID SEE THAT some of the ladies on here have gave you some tits on what to get ready before the opp////i would like some tips to ..sal xx

Guest user
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Re: Really nervous about reconstruction

Bosley, when they see the smile on your face because of the surgery, your friends and family will understand! Good luck! x

Guest user
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Re: Really nervous about reconstruction

Thank you so much, all really positive comments and I feel happier now. I know it is what I want, my family and friends are supportive, but they do not really understand why it is so important to me to have it done. I will call on you all again after christmas for some more tips.

Guest user
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Re: Really nervous about reconstruction

Hi Bosley,

Yes it's a big op - but it is SO worth it. I too have three young children (13, 11 and 9) and it's certainly not easy having to get cover etc. - but it's not forever.

I had a right breast MX with immediate TRAMflap reconstruction five weeks ago. I'm now driving, have walked the dog and generally feel fine. My tummy is still tender - but they give you a corset to wear for the first six-eight weeks which provides both literal and emotional support!

The scar is big - there's no getting away from it. I've had three casesareans so I thought I knew what it would be like - but it's far bigger as a scar and obviously as an op. Mine was over 10 hours from start to finish. But I'm delighted with the end result. I have a proper cleavage and other than no nipple (yet), it looks and moves just like an ordinary boob. It's only slightly smaller than my other one and when I'm in a bra, it really doesn't show.

And I no longer have any caeasarean flab! First time I've been able to see my nether regions in a long time!

My experience of timing etc was a week in hospital - bed bound for 2 days then limited shuffling around after that and then a week at home in bed without any kids in the house as managed to farm them out. To be honest, whilst it was weird not having them here, it was the best thing as I could just rest without having to worry about them. When they came back, I had my mum here too to help. And after that, I was pretty much able to cope myself. But you really will need lots of rest in the early days - that much anasthetic really does take it out of you.

The very best of luck to you. As I said, it's a big op - but really worth it. x

Guest user
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Re: Really nervous about reconstruction

Hi,
I had my mastectomy and immediate reconstruction 3 weeks ago.
I opted for for an implant as i wanted minimal scars - the least
damage to my body as possible.For me personally i needed immediate

Guest user
Not applicable

Re: Really nervous about reconstruction

Hi

I just had a delayed DIEP reconstruction on 29 October and have completed my second week of recovery. I can't tell you how thrilled I am that I had this op - I'm now the proud owner of a new breast and a lovely flat tummy!!

We all recover at different rates, but I found the best thing for me was to be very organised before surgery. I'm thankful to a member of this forum who gave me lots of tips via private messages - everything from having things at waist level etc.

Everything has gone well for me and I'm doing a lot at the moment. My tummy is tight but I'm managing and am not nearly as disabled as I thought I would be.

Bosley, it is hard to ask friends and family for more support, but if this is important to you, then the comfort you can take is that the support you need will not go on indefinitely. It will be time limited and the benefits to you will be huge in the long term! Good luck!

Gill x

Lenny
Member

Re: Really nervous about reconstruction

hi,

i had a recon in june this year and altho' it is the biggest op i've ever had it is the best decision i have made since i was first dx in feb 2008. i've had a tram flap and the tummy tuck is the source of most of the discomfort but it is still so cool having 2 boobs and a cleavage again and just putting your bra on with no prosthesis.i'm now waiting for the other one to be tweaked and a new nipple, tatoo etc. i'm on a thread on here where we have all had recons and not one of us regrets the decision... some have grown kids and others young kids and everything in between and it is all do-able. you will need support for the 1st 3 weeks or so and you will need 3 months off work if you work, it is a major op but it trully is worth it..

whatever decision you make will be right for you...

lots of love,

lenny
xxxx

lisaf
Member

Re: Really nervous about reconstruction

hi similar position as you, hopefully deciding on same tummy option at same time as second masectomy due to potential rads damage but scared stiff at thought of it and recovery times etc. Good luck, thoughts are with you as i have the same scared feelings xx

Guest user
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Re: Really nervous about reconstruction

Dx 2 years ago and TRAM flap recon almost five months ago. I am delighted with the result, and feel as if I've got my body back. It is absolutely _your_ decision, however. I thought long and hard about it, and one day just woke up knowing it was the right thing for me. I'm 62, and don't for a moment think I'm 'past it'.

The resultant tummy tuck is a great bonus. The surgeon also did a reduction/uplift on the other side so I have a matching pair 🙂

The best thing I did was hire a hospital bed (I'm in Australia) for home recovery. I only needed it for 3-4 weeks, but it was well worth it. There is NO way I could have got out of bed without assistance, and the Dr had also insisted I was to sleep with something behind my back, and my knees elevated - jack-knife position. Make sure you know what painkillers you will need .. I don't mean to scare you .. but it is better to be prepared.

On the days when I felt sore and stooped, I reminded myself that 'time really is the best healer'. Proven correct. Good luck with your decision-making.

fairyem
Member

Re: Really nervous about reconstruction

Hi,

I've only just had my mastectomy (last thursday) and have my implant in but not filled up yet. After my chemo and radiotherapy I am planning to have a proper recon. I've done some research into not having one and there are a people that decide they're happy with their body without the recon but for me I feel the need to have it done.

It is hard thinking about how much people will need to do for you but that shouldn't sway your decision. You have to do what is right to make you feel happy and confident with your body. People will willingly help and support you through it. You've been through enough already that you had no control over, now this is your opportunity to take control and have a boob back.

Have you asked your family and close friends how they feel about having to support you for a bit longer?

Em x

Guest user
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Really nervous about reconstruction

I have been determind to have reconstruction since my mastectomy last June and now have a date in February for my op. I have decided on the tummy one so I do not have to have an implant. I do feel worried about putting my family through this, but I just hate looking in the mirror and feel un sexy. I am really concerned about recovery I have 3 children 3,4 and 11 and the doctor has told me it is three months recovery and I will need constant help with kids for at least 3 weeks after op and cannot drive for 6 weeks. This all seems really scary. I had to call on so much help during my chemo I just do not know whether I can do it all again. Any advice would be greatfully appreciate