71.9K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Recently diagnosed - lumpectomy

36 REPLIES 36
Mand
Member

Re: Recently diagnosed - lumpectomy

Hi nicky - that's good news. Take time to recover from the op and let hubby spoil you!

I am 5 days post op now. Back to the consultant for lumpectomy results and to discuss what happens next tomorrow.

Allow yourself time - I needed to. We go through so many emotions but it does get a little better slowly. I can't believe I just said that lol. But, I suppose it does. Think what we were like at diagnosis and how far we have come!!

I know I am doing well. A couple of wobbly days but I think I am coping (just) remarkably well.

If you need to know anything that I might be able to help you with then please do ask me or PM me. The dressing plaster is a pain but I have picked up a few tips from the other ladies on here. Just search dressings but don't freak yourself out with some of the stories. Just keep it dry and as clean as possible. If you think it needs changing before they have advised then get to your surgery, hospital or BCN nurse. It is normal to have the dressing on for a week as mine has been. But, I will be glad to get the blasted thing off tomorrow and have a good scrub lol.

Get hubby to get you some dry shampoo to spray in your hair as I haven't been able to wash mine since last Wednesday!!!!

If you can't get in the bath just have a "lick and promise" (a saying from my nan!) with a few wet wipes!!!! You won't stink for long lovely lol.

Rest up and take care sweetie.

Lots of love - Mand xxx
nickynew
Member

Re: Recently diagnosed - lumpectomy

Dear all, had my op and lymph check yesterday, all went well as far as I can make out. I didnt speak to my consultant after op but he told my husband that the lymph node he took out was clear. Feeling very sore which is normal and looking like a smurf with my blue boob from the dye! My CT scan was clear too so pleased about that. Will know more I guess when I see consultant again on 10th December. Good luck to everyone on here. It does sound as though we are all being looked after well.

xx

Mand
Member

Re: Recently diagnosed - lumpectomy

Hi helvellyn, welcome!

Good luck for your results too sweetie.

This forum has certainly helped me from reading the ladies individual stories, what to expect and amazingly informative.

Mand xxx
helvellyn
Member

Re: Recently diagnosed - lumpectomy

Hi.  I have been reading many stories but not posted yet. 

Nickynew - good luck for op. I was diagnosed with DCIS and a tiny bit of invasive cancer  - only 10mm.  I had WLE and SNB last Tuesday and so far so good - just got to wait for results.  Hoping it will all have gone and I will just need radiotherapy to finish it off.  I wish you lots of luck for your recovery.

To all other ladies in this "club" - good luck for whatever your stage of treatment is.  Thank you for this forum.  I read so many stories to help me come to terms with this and to help me find answers.

xx

Mand
Member

Re: Recently diagnosed - lumpectomy

Hi all, I am post op 4 days now. Yesterday was hard - had a bit of a meltdown! I think it was having a bath and my dressing coming away and seeing my boob! I feel battered.

I am trying to stay positive. That's all you can do. I just wanted to get the op out of the way and deal with that stage.

I am now preparing myself for appointment with the consultant on Wednesday to find out what happens next.

I think out of all this it is the waiting and not knowing. Once you have the information you can start to deal with it.

Sending all you lovely ladies lots of love and hope you're all doing well.

Mand xxx
Jo_BCC
Member

Re: Recently diagnosed - lumpectomy

Hi nickynew,

 

To help you along I have put for you below the link to some of BCC's publications you might find helpful.

 

http://www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early...

 

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/your-operation-recovery-bcc1...

 

Take care,

Jo, Moderator

nickynew
Member

Re: Recently diagnosed - lumpectomy

Thanks, Im so scared... never had an operation before and never really been ill. Hope everyone on here makes a speedy recovery.

xx

 

Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Mand - I hope you're recovering well hun xx

Nickynew - Sending you positive thoughts and good luck wishes for tomorrow's op xx

Wishing us all a restful Sunday xxxx
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Hi Ashby, even though you didn't get to see your surgeon before you were discharged, you should receive a letter soon inviting you to attend a post-op results appt with your surgeon.
Its usually arranged for 2-3 wks after surgery.
I was so tired when I got home at 4pm day of discharge, day after op, I slept for 11hrs. 8pm til 7.30am. Its quite ok to feel confused, tired, tearful, even relieved and/or angry all at the same time after your op. Anaesthetic can do some weird and wonderful things to our bodies and brains! Mix that up with the fragile state our emotions may be in at the same time...
No wonder we don't know if we're on our head or our a** e sometimes!
Go with the flow.. cry if you need to, rant and rage if you want to... and remember we are here to offer support, as is the BCC helpline, and your breast care nurse xx
Sending you a ((((hug)))
Hope you feel at least a little bit better today
Love Lesley xx
Mand
Member

Re: Recently diagnosed - lumpectomy

Sending you my love and you are in my thoughts ashby.

It certainly is what they call it - a roller coaster.

I am just hoping this nightmare will end.

I haven't come on the forum since my op but it does help me knowing that there are you ladies going through the same as me.

Stay strong - I am trying to xxx
ashbymeadow
Member

Re: Recently diagnosed - lumpectomy

Pleased to hear you making progress and have plans for treatment....lucky you.

I had my op Thursday was discharged 7.45pm .

didnt see any Dr after op on the day have no idea when i am to return .Was  told to change my dressings on day 5 and thats it .feeling confused now and very tired.

Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Forgot to say...
Hello lovely ladies, hope you are all continuing to do well.
Its late evening two days post op. Boob is tender and bit swollen but nowhere near as bad as I had imagined. Getting by with taking painkillers every 6hrs today. Being up and dressed, and sitting on can't be ar**d chair is great, I highly recommend it!
Best wishes for a speedy recovery ladies
Love and ((((hugs))))
Lesley x
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Well op day was eventful! I booked into same day admissions dept at 7am, saw surgeon and anaesthetist at 8am. So far so good!
Walked down to nuclear meds for 9.30am appt to have radioactive isotope injection and imaging. Staff there were very apologetic as they explained that the courier hadn't arrived yet with the radioactive liquid.
He was caught up in heavy traffic. Apparently my local hospital doesn't have the space needed to make the stuff, so a bigger hospital 40 mins drive away makes it and courier delivers it every morning.
He finally arrived, which meant I didn't have injection until 10am, then I had to massage area to encourage liquid to drain through to lymph nodes. Staff said it was beginning to drain through, but very very slowly. Eventually I.had to lay on special table for 30mins in the position technician manouvered me into. Then a further 7mins in different position. i got back to admissions dept about 11.20am. Apparently my op had been booked for 11am and my surgeon and anaesthetist were fuming that I was late back! Nurses rushed me to cubicle to get changed into gown and socks, identity bracelets were put on my wrist and ankle, reckon it would make it into the Guinness book of records, it happened that quick! I checked clock in pre-op room as I was being anaesthetised and it was 11.30am. I found out that nuclear meds staff forgot to phone admissions dept to explain why they were running late. Oops!
So skip to after op, and I'm now in recovery room. I came round to a male nurse asking me if i felt ok. Yes i feel fine i told him. I looked around and saw a senior nurse looking at me. Then another nurse asked me if i definitely felt ok. I'm fine i said, and could do with a nice cup of tea!
i was having my obs done every 10 mins, which was odd.
At 1.30pm I was taken up the ward, and the male nurse accompanied me. He told me that I'd caused a bit of stir after my op, I was a very grey colour and wouldn't come round. They did my obs every 10 mins and let me wake up in my own time, watching for change in my colour. All that took long time he said. Got to ward and had headache and high blood pressure. Ive never had high blood pressure, its usually 120/70 or lower.
Even when I was discharged Thurs afternoon I still had headache and high BP. I'd had paracetamol every 4 hrs, and oral liquid morphine during the night, nothing worked. Back home I slept 11hrs straight, and that did the trick, I woke up headache free!
Surgeon removed lump and two lymph nodes, and biopsy on first node shows provisionally its clear. In two weeks time at post op appt with surgeon I'll get full results. My discharge forms state lump is invasive carcinoma NST (no set type). So its back to the waiting game..... 😞
nickynew
Member

Re: Recently diagnosed - lumpectomy

Thanks for your kind words. Mand - how did your surgery go today, all OK I hope. Had bone scan today, my third injection of the week and I hate needles! Love to all xxx

Jaine
Member

Re: Recently diagnosed - lumpectomy

Well that's done.  Had surgery yesterday.  In hospital at 7.30 a.m. and it was all go.  Anasthetic knocked me out (yes I know it is supposed to!)  I had thought I would be going home, but was dizzy and whoozy until about 5.00 am. this morning.  I am now at my cousin's being looked after.  Feeling very relieved that this part is over and the doctor was pleased with how it had gone.  It doesn't hurt as much as I thought it would. 

 

Hope everyone else on here is doing well.  I find it great to read everyone's stories, to know that there are people where I am, and what is happening ahead of me, and to remind myself of how I felt when I was first diagnosed.  I supposed I should see the paper they sent me out with, exercises, post op care etc.  I thought I would be getting a rest, but I am filling my diary up with appointments.

 

Dana1
Member

Re: Recently diagnosed - lumpectomy

Good luck and thinking of you all xx
Mand
Member

Re: Recently diagnosed - lumpectomy

May - Mand here. Hope all is going okay for today. Waiting myself to be called down to theatre. You're in my thoughts and all those lovely ladies that are having surgery today. Good luck!

Mand xxx
Joanne1973
Member

Re: Recently diagnosed - lumpectomy

Thanks Lesley,

 

I'll be thinking of all you lovely ladies having your ops this week.  You are all strong and courageous women, you can do this!!!

Much love to you all

X

Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Hi Joanne1973, so lovely to hear of your successful surgery hun, huge congrats to you.
I keep thinking about us all, afflicted by this awful disease, but so lucky to be united in this special band of sisters, helping each other out in oh so many ways. Its truly wonderful.
Love and (((hug)))
Lesley xx
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Insomnia Rules! Never mind, plenty of time for sleep when I'm under anaesthetic tomorrow!

Dear Mand, DD, and Jaine, good luck tomorrow, and nickynew good luck for Monday.
Wishing us all successful results from surgery and sending out love and hugs to you all.
Think positive thoughts girls.
((((hug))))
May aka Lesley xx
Jaine
Member

Re: Recently diagnosed - lumpectomy

I have my surgery in the morning. It's good to know that people on here understand how it feels. I shall feel happier when I get the results in two weeks. Hopefully only radiotherapy to get through.  My thoughts are with you all. I know I am not alone.

Mand
Member

Re: Recently diagnosed - lumpectomy

Yes May. I do think I am lucky to being treated same day. I know that the last 10 years there has been massive advancements. I am keeping everything crossed for you sweetie - stay in touch and let me know how you get on. Just in one day I have heard some amazing stories of why some women are here and you are definitely one of them. I hope you are being pampered big time! Xxx
Mand
Member

Re: Recently diagnosed - lumpectomy

Nicky - I can so so relate to how you are feeling. Friends, family and work colleagues are doing their best but they can't imagine how we feel about all this. It is so hard and I do totally understand how you are feeling. Good luck for 25th. Keep in touch with me - now that I have found this support I want to know how all you lovely ladies are getting on. It's mad mad mad but I feel at home here lol

I don't have to pretend how I feel if you know what I mean - sending you a massive hug and lots of love Nicky.

Mand xxx
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

By the way, same for me, if biopsy on lymph node positive, then I'll go straight to theatre for removal of more. This procedure wasn't avail 10 yrs ago. I had 14 nodes remove then, but cancer only in first one. There's been many improvements in procedures which is good news xx
Jo_BCC
Member

Re: Recently diagnosed - lumpectomy

Hi nickynew,

 

Welcome to the BCC discussion forums, you've come to the right place for some good, honest support from the many informed users of this site.  To help you along I have put for you below the link to one of BCC's publications you might find helpful.  Also, if you need to talk to someone in confidence, then our helpline team are just a free phone call away, 0808 800 6000 lines open 9-5 weekdays and 10-2 Saturdays

 

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/your-operation-recovery-bcc1...

 

Take care,

Jo, Moderator

Mand
Member

Re: Recently diagnosed - lumpectomy

Hi Joanne. That's great news. I hope I am in the same position on Friday and giving the same news to you all. You are all in my thoughts and prayers - especially May xxx
Joanne1973
Member

Re: Recently diagnosed - lumpectomy

Hi Mand, yes thankfully my nodes were clear.  Wishing you all the very best for your surgery, I will be thinking of you and all you other lovely ladies going for ops this week.

 

Keep strong

🙂

X

Mand
Member

Re: Recently diagnosed - lumpectomy

Oh May! That was a shocker. I'm sorry I feel stupid now. Worrying about my little op on Thursday and you have been through all that. Amazing - truly amazing to hear that you are so far on and now are dealing with all this again.

I don't know you but I wish I was there holding your hand and being there for you.

My love to you darling. Let me know how you are and I so admire you!

Mand xxx
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Thank you Mand xx Had guide wire fitted today by Radiologist, was completely painless thanks to local anaesthetic. Roll on tmoro now!
I had aggressive grade 3, stage 2b, ILC, 10 yrs ago. Had mx, FEC chemo, rads, delayed recon by DIEP flap... Just one month away from 10th anniv of no evidence of disease... and wham, this lump appears in unaffected breast. Typical!
Good luck for Thurs hun... Yes lets catch up after op days xx
nickynew
Member

Re: Recently diagnosed - lumpectomy

Hi Mand, I was diagnosed on Wednesday 13/11/13 too. I have a Grade 2 Invasive Duct tumour about 2cm by 1.5cm. Still in total shock to be honest. My story is...  a painful lump appeared the day after i had a mammogram at the end of July. GP said he wasnt particularly concerned as the mammogram came back clear and it was a good sign that the lump was painful and to come back in a month. Was lulled into a false sense of security thinking it was a bruise or an infected cyst etc. After a month went back to GP and got referred to breast clinic and had ultrasound and biopsy which freaked me out as I was still thinking nothing was wrong at that point. 2 weeks later got the results that have knocked the stuffing out of me. Had CT scan today, bone scan Friday and operation Monday 25th. its all happening quickly and i feel overwhelmed. Im almost 52, have never had anything wrong with me, never had an operation and cant believe this is happening to me. Family, friends and work being great but still feeling Im going to wake up from this nightmare one day soon. Just want to say good luck to you, its somewhat comforting to know that there are other women going through the same thing. xxx

Mand
Member

Re: Recently diagnosed - lumpectomy

Hi DD - wishing you well for tomorrow. Fingers crossed for no further surgery or treatment for you.

I do feel lucky that if the biopsy on my lymph nodes are positive that I will go back down to theatre that day. I know some of you have to wait for the biopsy results and after waiting a week to see my consultant for my diagnosis was hell.

Lots of love to you all and good luck for tomorrow xxx
Mand
Member

Re: Recently diagnosed - lumpectomy

Hi Joanne. It was good to hear from someone post lumpectomy and how you are feeling. So pleased to hear you we're driving within a week!

Have you had the results from the lymph nodes biopsy yet?

Mand xxx
Mand
Member

Re: Recently diagnosed - lumpectomy

Hi May, it is good, well not good but you know what I mean, that I don't feel like the only one going through this. It is so hard to take all in but after my wobbly, a good cry which I haven't done so far, I'm feeling a bit better. Mine is envasive grade 3 - it has already started spreading and the lump is about 1.5x2.0 cms. They haven't said anything about radiotherapy and I'm not too sure I want to know about that yet! I do fear the chemo if I have to have it but I'll deal with that later - one step at a time!

Wishing you so much love for tomorrow. I hope it all goes well. When you can - let me know how you get on sweetie. Mand xxx
Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Hi, I had my first operation on the 18th October, level 1 lump removed and 5 x lymph nodes - was originally told that they were negative but the lab. found a tiny minute bit of Cancer in one of the lymph nodes - so I am back in tomorrow for my 2 nd operation to remove all the lymph nodes.  Still looking at just radiotheraphy - fingers crossed no more of the 'C' word will be found.   Stay positive. xxx

Guest user
Not applicable

Re: Recently diagnosed - lumpectomy

Hi Mand, I'm having same op as you tmoro. I've got pea sized, grade 1, slow growing cancer. Are you having the radioactive isotope and blue dye injections, to locate lymph nodes?
Hopefully, I'll just need radiotherapy once op wound site is healed.
Best wishes and good luck for Thurs.
Ask any questions you want, this is good place to be for advice and support xx
Joanne1973
Member

Re: Recently diagnosed - lumpectomy

Hi Mand, just wanted to send you some good wishes. I'm just a bit further down the line than you, I had my lumpectomy and 2 lymph nodes out on 23 Oct then had a bit more surgery because didn't have quite a clear margin.  Just wanted to let you know that the surgery is absolutely do-able.  It wasn't nearly as bad as what I expected and was back driving after a week. Yes my arm and shoulder was stiff and achy for about 2 weeks but completely back to normal now, felt like I'd lifted a few heavy weights at the gym.  I still get the odd twinge and ache here and there but know it's just my body healing.  I absolutely know how scared and anxious you are feeling.  You really will start to feel more in control soon, it's just such a huge shock at the beginning. Wishing you lots of luck for your surgery, keep in touch and let us know how you get on.

Xxx

Mand
Member

Recently diagnosed - lumpectomy

Hi everyone - I was diagnosed on Wednesday - lumpectomy booked on Thursday. With a biopsy on lymph nodes and possible further surgery on Thursday if the biopsy results are positive. Is anyone else in the same boat as me?

Love to you all. Mand xxx