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Recently diagnosed with Triple Negative Breast Cancer

21 REPLIES 21
AngeNut
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

I'm was 68 a week ago and just been diagnosed with TNBC.n

so sorry your Mum is having all this again - dreadful. 

X

AngeNut
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Thank you Ann. Glad you at peace.

I had lump and clear surround from breast and 2 cancerous nodes in 1st layer ( nearest breast) removed. 

6 more nodes in outer layers were clear. They do say they have it all so chemo and radio  is 'insurance' .

Id never hard of it til 3 weeks ago but it seems a bit of a b****** for wanting to visit! 

Winder what causes it!

I DO know I've been very lucky by being caught by routine Mammogram. Surgeon said I had a good radiologist - who on recall when scanning 'wasn't sure' and kept going over - decided to do biopsies - thank God he did!

1852
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi kelligirl sorry to hear about your mom m I am older than most tn ladies I had mastectomy and chemo in 2014  your mum must be a strong  to have got through cancer diagnosis before .i think it affects people differently I was very tired a lot of the time but one advantage to being older is you can rest without having 

any demands. I'm sure her bcn and chemo unit nurses will answer most questions here are a few tips I found helped 

keep a record of how you feel so you can tell onc about any probs

drink plenty of fluids especially days before and after chemo

rest when you can

get out when feeling well enough

accept help if offered

suck frozen pineapple when having chemo 

dont suffe r in silence  if unwell ring bcn or chemo unit for advice

these are just a few tips others will come up with more 

best wishes to your mum hope all goes well DE N

Kelligirl
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

 

Hello!  My mother who is 70 years old was just diagnosed two weeks ago with TNBC.  She had an initial lumpectomy but just had another yesterday to clear margins.  She had three very small tumors( 9 mm, 7mm. and 1 mm)  also 3 small in situ tumors as well. All nodes were negative.  She is Stage 1.  However, due to the tumors being Grade 3 they highly recommend  she  do the TAC x 6 chemo protocol followed by 6 weeks radiation.  

She has been through all this before when she was 55.  She had Endometrial (uterine) cancer.  Was Stage 3C and was given 6 months to live due to the grade and type of cancer. She had a Sarcoma/ small cell tumor mixed.  Highly aggressive and rare.   She had surgery and chemo!  It's been 15 years and she's been perfectly healthy!! 

 

The doctors at the Cleveland Clinic have told her that this time around the chemo will be very taxing on her and with her age I worry about that.  I know it's necessary but just want to help as much as I can.  I live out of state and plan on traveling back and forth to help her through the worst of chemo... as she lives alone.  Any tips would be greatly appreciated!!   The doctors told us women of her age don't normally get TNBC.  She tested negative for the BRCA 1 & 2 genes.

 

 

 

 

AnnDaw
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Ange they will probably do a scan after your chemo to see how much your tumour has shrunk. I had chest abdomen and pelvis scan after my mastectomy and before chemo. The reason it was done this way was because my nodes showed clear on ultrasound but when tested during op were found to contain cancer cells. If they had showed up on ultrasound they would have done my node clearance at the same time as mastectomy which would have saved me going under the knife twice. If you would feel better about having a CT scan I would push for that. Once I knew nodes were involved it put my mind at rest knowing it hadn't travelled beyond them. Hope how I've written this makes sense.xxx 

AngeNut
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Sorry flower girl, I replied to you thinking you were Roseanne and can't find it now.. I was saying Im the same as you!
AngeNut
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Flowergirl, 
I am same as you - Stage 2, TN in left  - 3cm but clear margin and 2/8 nodes involved. My tumour was Grade 3 but don't know if that's same as TN?
I start chemo Friday 3x FEC and 9 weekly followed by radiotherapy.
A scan not mentioned - yet...
I was 68 yesterday.
Ange x

cja72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Yass, looks like you've not had a reply... Please tell her to feed this back to her chemo team who I think should liaise with oncologist. No one can help with what they don't know about and they rely on our communication to them as much as we do the other way. Hope you and your mum are coping.
yass
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hello everyone,

 

I hope I have chosen the right thread to ask this question on - hopefully not intrupting the flow!

 

My mother has been diagnosed with Triple negative BC stage 3, and has been undergoing chemo. She is about to do her fourth session soon and is now feeling a hardned area in her healthy breast (the left), she says it is exactly in the same location as where her cancerous tumor was in the right breast - right under the armpit.

 

However, this was not there a few weeks ago - she is worrying about it and I would like to let her know that it is actually a somewhat common consequence of chemo in it's causing of the calcification of cysts in healthy breasts. However, I not being a doctor and not having had breast cancer -can only say so much. 

 

Have any of you ladies experienced this before? And can any of you say based off your experience whether a tumor could possibly grow in another breast whilst undergoing chemo?

Thanks a bunch everyone, you are all inspiring and amazing.

 

Yas xx

Jinny69
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Roseanne my tumours had been there a while also another one had joined and grown next to it I had surgery first they were bigger than they thought on ultrasound als had 21 nodes removed with 9 positive I'm 18 months from surgery and a year since treatment x

Jinny69
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Did they offer you the testing? They have never offerd me the testing xx

Roseanne72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Mad4cavs,
Thank you for posting, I was really interested in whether anyone had a lump there as my oncologist said it's a rather unusual place to have it 🙈 when do you expect to have surgery and does your lump cause you a lot of pain? Sorry for all the questions it's just because it's such an unusual position to have it 🙊 that's great about the page on fb, I'll go on and have a look right now, please keep in touch with your progress, love and hugs Roseanne xxx
Roseanne72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Tracy,
It's strange how different hospitals/areas approach things differently, I guess it's what they think is best for that individual's circumstances and at the end of the day we all have the same outcome. I think it's only natural to fear the worst when you know it's been there for some time, however if my consultant/surgeon had no concerns then I'm happy with that, after all they're the experts that see this every day 👍🏻 how do you feel about having a mastectomy? I can honestly say I am not concerned at all at the thought of losing them? I've also to be tested for the BRCA gene and if it comes back positive I wouldn't have the option anyway, the boobs would have to go, my only concern is my girls would also have to be tested. The positive I can take from that though is they can have preventative surgery which they would both have anyway.... I think my girls and I have now discussed every eventuality which is a good thing as we are all prepared no matter what 😊 I have no doubt we will both be getting good results on Tuesday or possibly Thursday at the latest for me and our chemo should be starting not far apart either, it'll be good to be able to share our experience and progress and also to celebrate when we kick the big C's butt!!!!! Sending you lots of good luck, love and hugs for Tuesday 👍🏻 please let me know how you get on, I'll be thinking of you ❤️xxx
mad4cavs
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Rosanne I have. TNC too same place but caught early still having chemo and radiotherapy.I belong to a group on Facebook to uk breast cancer support page always someone there to answer straight away.

Roseanne72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Jinny, thank you for your reply, it's comforting to hear that good results still come out of something that's so devastating at the time. The fact you had 2 tumours and 9 positive nodes plus the size of it and you've come through it helps me so much. I hope you are feeling so much better now and can move forward leaving all this behind you, please keep in touch. Take care ❤️ Love and hugs Roseanne x
Flowergirl12
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Roseanne
Pleased you are doing ok and good news re scan results. I know how you are feeling, and wanting to find reassurance , its totally natural. Im sure everyone in this position does the same. I had it all pretty much diagnosed on the day, i only had to return to find out the grade, but I know there are different practices when it comes to the diagnosis and treatment.
I had the lumpectomy first, then last week another WLE for a clear margin. I go on Tues for result of that. Hope it will be clear as think next step would be a mastectomy. Then it will be chemo then rads and thats it as am TN so nothing else for me or not that theyve mentioned. BC Team werent troubled in slightest by that only me that wigged out when it sank in and I read about it. I was told by my surgeon upon diagnosis what stage it was and 2 node involvement likely from ultrasound and biopsies they did that day, although not definite till tumour removed, but they were right it was 2, he also knew from its size and his experience how long it had been there so although an aggressive cancer he said it was still early stage and about the size when many woman find them. Your surgeon is right, but not worrying is easier said than done. I am here if you just want a chat or to sound off about anything. Will be thinking of you on Wednesday. Big hugs Tracy Xx
jinny2611
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Roseanne I'm triple neg and had 2 tumours in left breast measuring 5 cm and 9 positive nodes I was digonosed april2014 just finished treatment November I found lots of answers on here and friends x
Roseanne72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Tracy,
Thank you for your message, I had my op on Wednesday to remove my lymph node which they are doing another biopsy on again just to be sure 🙈 my bone scan, liver and kidneys are ok but still await CT and MRI results, I'm starting my chemo on Wednesday to shrink the lump as it's 3 x 3.9cm still don't know the stage or grade as they have advised they can't confirm that until it's been removed. I read you have had your lump for approx 18 months and i feel better knowing I'm not alone in how long we've had it. I was told I have lumpy breasts which is why it wasn't detected even though I felt it it was dismissed as nothing to be concerned about it. I think you will no doubt feel let down in a way, however I was told by my consultant that she will fix me and not to worry about how long it's been there so I feel slightly relieved 😊 what treatment are you having Tracy? Thank you so much for replying as it does help immensely to speak to someone going through the same, love Roseanne xxx
Flowergirl12
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Roseanne
How are you doing, have you had any results back yet?
I am stage 2,TN in left boob, 2 nodes involved. Was told by surgeon that I had probably had this approx 18 months going by size etc. although had mammogram over a year prior to diagnosis it wasnt picked up and never would be as found out I have dense breast tissue.
Its a very lonely, surreal time when first diagnosed and its hard to comprehend what is happening to you.
Take care and like Sheena im here if you need to talk or just vent frustration.
Take care
Tracy xx
Roseanne72
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi Sheena, thank you for your reply, I feel I have been on a roller coaster of emotions for the last week and I'm trying so hard to be positive but in reading through some stories I haven't read any yet that have had a lump for as long as me nor any mention of having a lump where I have mine. It is the size of an olive or small grape and feels like a bone which I think is why I'm so scared. Sorry, I'm waffling on a bit here and rudely have not even asked about you. Are you currently going through treatment at the moment? Thanks again for your reply, I feel like there is a life line out there now. Roseanne x
missmore
Member

Re: Recently diagnosed with Triple Negative Breast Cancer

Hi roseanne I noticed you haven't got a reply. Here for you to talk to anytime x sheena x
Roseanne72
Member

Recently diagnosed with Triple Negative Breast Cancer

Hi everyone, I hope this works as I have only recently joined this forum and had posted a few times but so far no replies so I don't know if it's something I'm doing wrong. Anyway here goes, I was only diagnosed last week with TNBC and I am currently still awaiting a bone and CT scan etc and I have no idea yet which stage or grade I have, although thankfully I was told it hasn't spread to my lymph nodes though as a precaution this has to be removed before my chemo starts. My lump is under my left breast sitting right on my breast bone which is quite painful, also it has been there for over a year due to being misdiagnosed. I'm really worried in case it has spread elsewhere due to it's location and wondered if anyone else has had BC there also.

Nervously waiting on all test/scan results and replies 😩🙊

Thank you in advance

Roseanne x