Hi denny. Xx its a circus alright. Ive got friends here with both options, amazing how much they know about this for treatments.
Hang out with us, we're all leaning on each other too.
Ooo good stuff judi! You sound heaps better. Xx
Glad they said something that made sense, makes all the differance.
I finally got appointments for both chemo onc and radiation onc. Next tues chemo meeting snd 2nd gor radiation. We're on our way
That trial sounds interesting. ?..
Hi Dennymac, welcome to a lovely supportive group at a truly awful time in your life. This ladies will become your friends and support network, I know they have for me.
Judi, seems you have a lot to think about, hope your not too stressed about it all xx
Good Luck with your results Chez xx
Surgery for me tomorrow, so I will update on my return 🙂 hopefully some of the others that have had surgery this week will be updated also. Keep smiling girls, we can do this!!
Hi Ladies just a quick update went to see oncologist yesterday and although i have Her2 pos he still gave me the option of radiotherapy and hormone therapy because of my other results but when i pinned him down (not literally) he said obviously the percentage was higher of not reocurring with the chemo and herceptin so its a no brainer really waiting for a muga scan on heart due to Herceptin, im thinking of going on the persephone clinical trial to verify 6 months is as good as 12 months (herceptin) you cant choose its what the computer dishes out needs some thought but i may do it lots of love to everyone Judi xxxxxxxx
Hi ladies,hope you are all okay?
Ive had a pretty busy week,trying to keep myself busy,keep my mind off things and maybe back to work on Monday,so that will be weird going back
Does anyone feel the way I do...although im quite an anxious person,so this is making me even more anxious than normal....had like butterflies in my stomach and feel sicky,but appetite still okay?Had it for a week now and it pretty rubbish.
Thankyou Sharon for your good wishes I also wish Sarah and Beryl well for surgery today and tomorrow. Thinking of you all and wishes everyone the best results possible xx
Much love ladies, remember surgeons get paid big bucks and they're all a bit OCD so they're good at what they do.
Today im a month past mine and its been fine.
Thinking of you, all the time
Hi everyone 🙂
It's a big week for forumites - just wanted to wish Sarah (JETS) well for surgery tomorrow, Beryl (Matty2) for Tuesday and Lynda (Gazzlynn) for Wednesday. My thoughts and every possible good wish are with you ladies
Sorry late reply but dont often log on.Just tend to use FB.
Let me know if you managed to get onto FB.
Send me a PM if you havent and I will arrange.
Hi. Am on Day 10 post chemo cycle 1 Docetexel/ Taxotere.
Have had a couple of side effects but managed them. Nothing too bad.
Muscle aches and twitches days 4 to 8/9. Took paracetemol and were bearable.
Bad tongue. Felt like it was burnt. Bad taste.
Some things like tea tasted aweful.
All manageable for this first cycle but hear it gets worse.
Hope you ok.
Break sounds good, even with meltdowns - surely they helped as well
Having a Mastectomy Eve meal here - probably pasta of some sort to boost the carbs for Starvation Tuesday
Hi ladies, back from my break. We never go on holiday and it was lovely. All came home tanned and covered in sand 🙂 child actually said...im glad theres no tv (Yes the world has gone mad)
Glad your surgery went well cazz. Private room, good stuff. Amazing how much better you feel once surgery is done. Xx
I had a call from the oncology nurse, probably wont have an appointment till late next week or the week after, obviously they're pretty busy. She did explain my regime in general though. She said AC x4 (1 every 3 weeks) then paclitaxel 1 per week x12, starting the herceptin in there... herceptin is 1 at 3 weekly intervals for a year.
I looked up the drugs on a chemocare website in the states as the names are differant to the ones on here. (Im in new zealand) the website had side effects (boo) and where the drugs were sourced, eg plant based etc. Which as someone who has been studying organic Horticulture this last year was fascinating.
Dont know how im going to get my head around finishing it actually, was supposed to be in christchurch on a block practical course the week I saw my surgeon. Cant imagine digging compost heaps or tree planting, let alone writing a paper with words of more than one syllable! 😉
Anyway, mini holiday Awesome. I reckon a day trip would have felt nice too. Still had s few internal melt downs but nice to be some where else.
Hugs lovelies xxx
Yay pleased you are OK
It is reassuring that it recovery seems realatively straight forward. Great a private room, iI had one when my lymph nodes were removed. The mastex is in a different hospital though so don't know what to expect!
So sorry Judi, definitely not want you wanted to hear. From the tiny little bit of research I've done so far it suggests that Herceptin is the drug they use for HER2 positive but I guess your Oncologist will explain all of that (I'm still trying to work out what the difference is between an Oncologist and a Medical Oncologist or whether they are the same :()
One step at a time though, I hope you're healing well from the surgery and not in too much pain or discomfort.
Look after yourself
Hi, yes Her2+ o/e+, I was unsurprised by any of it really, not sure if I was just waiting for it all to go past me...
I was told at my first appointment with the surgeon I would need chemo. Mine was a big tumour, 5cm snd obvious from the ultrasound as a bad one. They had me set for chemo first but biopsied the least evil bit so I had surgery. Apparently the other 4cms was all pure swirling disaster. 😉 but it didnt escape, so very lucky
Its a lottery all right.
Feeling flat and tired and a bit underwhelmed by it all today.
Tomorrow we take the kiddlets to s friends beach caravan for a couple of mad swimming days and build sandcastles. Swings and roundabouts 🙂
Hi Judi, think I misunderstood your last post. Am I right in thinking you've been told the surgery was a success (lump removed with clear margins & no lymph node involvement) so the chemo is because of your HER2 positive status?
Sorry for all the questions, just trying to work out if I'm going to need chemo too (seeing consultant for my pre-surgery test results next week - gulp!)