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Recently diagnosed

Wemblo
Member

Re: Recently diagnosed

Hi ladies. Following all your stories. It's a rocky road but all for a good reason. I'm further down the line, post surgery and rads but still pleased this place exists for those down days.

I'm a lady of leisure so haven't had to make a return to work decision. But seriously I still don't feel I'd be ready for full time yet so take your time ladies.

Pleased you've got a friend to meet today Judi you've had a rough few days xxx
ollisj6
Member

Re: Recently diagnosed

I will never leave you ladies we are friends now but will join chemo forum going to meet a friend today need it im feeling really down in the dumps today Love Judi xxxxxxx

gazzlyn
Member

Re: Recently diagnosed

Hi Sarah, Will you get paid if you are off? if so I would take your time and let your body tell you when your ready xx

Re: Recently diagnosed

Judi glad you got a date...it is a scary time,but you will get through it and we are here for youX
Will you be joining the chemo Forum too like Loobylou11?I will once start my course,but will come on here too,as want to keep up to date with my friends .Love Rachelxxxx

Re: Recently diagnosed

Hey Ladies....
Lynn,Thankyou for your advice😊....I wouldn't class my job as too stressful,but can be very tiring and they have enough staff,so they are okay with me having as long as need...which is good of the boss,it's just money really,but my health is more important😊X
Sarah...I'm sorry you have been in pain...but nice to have a relief from it,take it easy lovelyX
Rachel xxxx
loobylou111
Member

Re: Recently diagnosed

Judi, best of luck.
I will probably be in the chemo gang soon! Shame we have to get ill to get well but a few months in our lives is a small price to pay. Take care n keep us all updated asvto how you get on. Xxxx
keepmumsane
Member

Re: Recently diagnosed

Hey judi,  big hugs xxxx♡

Sandie

ollisj6
Member

Re: Recently diagnosed

Hi Ladies just had a call from chemo nurse booked me in for Thurs 29th to start treattment feeling scared Love Judi xxxxxxxxxxxxx

JETS
Member

Re: Recently diagnosed

Lynnn and Rachel - I'm waiting for my post surgery results before planning anything but am v worried about return to work already - like Lynn a stressful job that I can't really do half mast .....however, there are plenty that do work through chemo sometimes scheduling sessions before weekends etc I'm mindful that I will need to have a phases return eventually but am dreading how tired I might be - I've been shattered post surgery (I have so much energy normally) and worry that hormone treatment will completely sap me. but - days at a time ladies!
S xx
JETS
Member

Re: Recently diagnosed

Oh Judi - that's so horrible - the MRI machine broke when I went for my MRI (I was lying all ready to go in) but luckily they had another that was working! Hopefully all will be ok on Friday.

Glad that others getting 'good' results -if good is the right word in the scheme of all of this!!

I've made it 5 hours without painkillers today followed by only one paracetamol so am having a mini me celebration.
Lots gentle hugging
Sarah
gazzlyn
Member

Re: Recently diagnosed

Hi Rachel, well I am just getting over the surgery and have no idea what my plan is. I am hoping just radiotherapy with no chemo and the plan would then be that I would stay off work until after then. Emotionally I don't feel strong enough for work at the moment and my job is so stressful I just wouldn't be able to give it my all. I think your Consultant is wise to say wait until you start your treatment, you don't want to put pressure on yourself in case you don't feel well enough to go back xxx
gazzlyn
Member

Re: Recently diagnosed

Oh no Judi big hugs to you, how awful that you have to go through that all again. Hospital trips are so tiring at the best of times. xxx

Re: Recently diagnosed

Oh Judi😕....I'm sorry lovely,what a blooming pain in the ..., can't believe you've now got to go back Friday.Love Rachel X
gazzlyn
Member

Re: Recently diagnosed

That's really good news Cheryl that there is no spread, hope they sort out your treatment plan soon for you xx
ollisj6
Member

Re: Recently diagnosed

Im so pleased for you cheryl i love to hear good news Love Judi xxx
ollisj6
Member

Re: Recently diagnosed

Hi ladies just a quick update went today for my muga scan as i will be having Herceptin lovely lady (radiographer) put me at ease cannula in arm (rubbish veins) sat for half an hour put some more in sat for 10 mins went back in got laid on table for scan on heart next thing sorry hasant worked cannula must have moved so radioactive substance went somewhere but not where it should can you come back Friday i feel like crying. Love to everyone Judi xxxxxx

Re: Recently diagnosed

I wonder if any of you ladies are back to work or what opinion you have about returning to work?Its driving me crazy being off work,but as I'm starting Chemo soon have been told by my Consultant to wait until I see how I deal with the treatment first Rachel X

Re: Recently diagnosed

😊that's great news Cheryl!Very happy for you and once you get the treatment plan sorted then you are on your way to getting to the finish line!Im inpatient too,so am hoping my Oncilogist can give me a date to start soon X
I think I've heard of that oncotype....is it a place online patients can go to take a test to see what their survival rates are against the treatment they have?A book I finished reading mentioned a couple of these places,I did have a little look.I think they are no good for me though,as I'm triple neg,but if your are pos Cheryl that site would be useful for you?Xxx
Rachel
13gerbera
Member

Re: Recently diagnosed

So pleased for you Cheryl, great news that nodes and margins all clear and I hope they manage to sort out the next stage of your treatment quickl y:)

 

Can't help with your question I'm afraid but I'm sure someone will be along soon who will know.

 

Take good care of yourself

x

Sharon

Chez666
Member

Re: Recently diagnosed

Hi Ladies, I got my results today and there is no spread and all margins were clear, they can't finalise my treatment plan at the moment due to my stroke. They think chemo but need to work out the benefits of chemo against the risk for any further strokes. Deffo radiation and hormone but need to sort out my menopause as can't tske tamoxifen. So really good news and still questions to be answered but have got to learn to be patient, which I am not !! I hope all those pre op/awaiting resultsare hanging on in there, it's so hard but this forum is a major blessing and light in what seems like a bleak tunnel but you have been so far such an enormous help. X x x ps has anyone used the oncotype DX diagnostic ?"??? Cheryl x x

Re: Recently diagnosed

Morning Judi😊
I'm out for a nice walk too,cold but lovely and sunny😊,makes you feel better afterwards doesn't it?X
Bet you will be glad like me just to get things going....I'm just waiting now to see Oncologist to start my Chemo I'm Cheltenham....it sounds okay there and going to visit the centre next week as they have a place you get can get advice on wigs,diet etc,so that should help.Prob going to get my hair cut short before too😕....but don't want to just see it all falling out,so thought it would be best thing.
That sounds like a long time Judi...but good they are thorough and then once everything is okay you can get going with the treatment.
Take care ladies and good luck Tuesday Judi ...hugs Rachelxxx
ollisj6
Member

Re: Recently diagnosed

Hi Ladies hope you are having a nice week-end we are going out for lunch then a brisk walk its freezing but will blow the cobwebs off i am going for my muga scan on Tuesday 90 minutes didnt realise it takes so long at least ill know my heart is ok after that,then when results are in hopefully get started on chemo i just want to get on and finished im impatient !! sending lots of love to you all Judi xxxxxxxx

Re: Recently diagnosed

Thank you ladies😊....yes Cheryl amazing what we class as 'good news'...!Xxx
Wemblo
Member

Re: Recently diagnosed

Denny. Fingers crossed here for you too. They've so many options for beating this now. Good luck xx
Wemblo
Member

Re: Recently diagnosed

Rachel, Pleased to hear you're ok after a long stressful day. Pleased you are so positive about the results. I'm just greatful that that there's so many amazing treatments now for this interruption in our lives. Enjoy that glass of wine you deserve it xx
Chez666
Member

Re: Recently diagnosed

Hi Denny, like RAcehl sorry to hear that the blighters were found but chemo zapping and our mental,zapping will give em something to think about. Good luck with the body scan. X x
Chez666
Member

Re: Recently diagnosed

Hi Rachel well you have earnt the glass of wine and hope you had a comfortable night and good sleep. Sounds like the plan is coming together, 😄 and if you don't need radiotherapy at the end that will be a bonus (interesting what we now see as bonuses!!) so fingers crossed... Have a nice weekend and try and relax a bit. Mine are in on Tuesday 😳

Re: Recently diagnosed

Hey Denny...sorry to hear they found little nodules...but good news that Chemo will zap those little blighters and they stand no chance!
I've actually not had a body scan,not sure why,does it depend on what type you have?When is your chemo starting?Hugs lovelyxxxx

Re: Recently diagnosed

Morning ladies..X
Sorry for delay in getting back to you,but very emotional and tired last night after late appointment,so thought I'd leave it until this morning 😊
Was a good result(as much as can be in our situation)...so lymph nodes clear and margins(after Masectomy)surgeon very happy and so as I'm Triple Neg,I'm having Chemo anyway,which I knew.So seeing my Oncologist in 2 weeks and should start a course soon after,which will prob be about 18 weeks of Chemo(3 weekly) and he thinks I may not need Rads after fingers crossed😊...so am pretty positive with that news.Think I'll have a glass of wine tonight and treat for tea😊.hugs Rachel xxxx
ollisj6
Member

Re: Recently diagnosed

Hi Rachel hope you are ok after such a long wait yesterday speak soon Love Judi xxxx
dennymac
Member

Re: Recently diagnosed

Hey guys so I got my test results this morning and was told my bone scan was clear but the CT showed two small nodules in my lungs 😞 so my consultant gonna discuss me in the mdt tomorrow and probably change the type of chemo they planned to give me. They seem to be optimistic they can shrink it so fingers crossed xx
Chez666
Member

Re: Recently diagnosed

And understandably so, please make sure you don't feel pressured to hurry up when you go in, you are important 😄

Re: Recently diagnosed

Thankyou Cheryl...X
I am silently fuming...now been waiting 50mins,even the receptionist has packed up and gone home!I can understand appointments get behind,as us ladies have different things to ask and each patient is different...but I'm a bit anxious and want to get in there😊love Rachel xxxx
Chez666
Member

Re: Recently diagnosed

Keep smiling, know we are all with you and are silently fuming thst they are behind...x x x x

Re: Recently diagnosed

Hey,still sat in waiting room,think they are running behind!xxx
ollisj6
Member

Re: Recently diagnosed

Hi Rachel have you got your results yet lots of love Judi xxxxxxx

Re: Recently diagnosed

Thanks Judi xxxx
ollisj6
Member

Re: Recently diagnosed

Sending lots of love will be thinking of you love Judi xxxx

Re: Recently diagnosed

Thankyou Sarah😊Xxx

Re: Recently diagnosed

Thankyou Wembloxx
JETS
Member

Re: Recently diagnosed

Rachel - hope it goes ok this afternoon xxx will b thinking of you x sarah
Wemblo
Member

Re: Recently diagnosed

Good luck. Positive thoughts winging their way to you all.

Re: Recently diagnosed

Morning ladies.😊
Am feeling a bit anxious and sick today,just got a call from the BCN saying my results are in and to go in this afternoon....am glad they are ready and trying hard to be positive,but still feel like a nervous wreck!
Goodluck for your results of your scan Rachel Xx

Re: Recently diagnosed

Denny...goodluck for your results for tommorow lovely,I'm sure they will be fine and yes you will worry about ever ache or pain,cough etc,but think it's part of it,as we are do more aware of things once we get the diagnosis.Try to relax,take some deep breaths and we are always here for a chat ok?Rachel Xxx

Re: Recently diagnosed

Hey Judi😊....bet the wigs looked great...why not go for a different colour,style...you may aswell!Im going to look at wigs,once my treatment plan is underway.hugs,Rachel Xxx
dennymac
Member

Re: Recently diagnosed

Thanks sandie and everyone else for warm welcome! Definately helps talking to others going through the same thing! Should get CT and bone scan results tomorrow and my treatment plan... Starting to worry about it! Hmm that lingering cough etc etc I can't wait to get all the information so I can get on with my treatment xx
ollisj6
Member

Re: Recently diagnosed

Sorry forgot to say good luck for results ladies love judi xxx
ollisj6
Member

Re: Recently diagnosed

Hi Rachel feel a lot better than i did now things are moving in the right direction wound no problem whatsoever went to try a wig on yesterday wasant as bad as what i imagined my husband thinks i should go a different colour to my usual blonde might be a bit wacky for a change Love Judi xxx

Re: Recently diagnosed

Hi Sandie😊
Things sound like they are moving forward for you?Be glad when I know what treatment I'm having.just want to get things going now!
Take careXx Rachel
keepmumsane
Member

Re: Recently diagnosed

Hi Rachel,  agree,  my appitite and sleeping patterns are ruined. Xx hugs lovely.