I've attached a link to your other thread in case you have any problems finding it
Hope this helps
Very best wishes
Hi Ladies not sure what happened to my thread was admitted to hospital on Sat with a high temp started on iv antibiotics due to infection never felt so poorly in my life came home on Monday hadnt slept for nearly 2 nights in hospital feel slightly better today more bloods on Friday not sure if i will be having chemo nxt week may be delayed i seemed to be doing so well before that having a word with onc on monday mcmillan nurse has mentioned they may have to reduce dose slightly Happy days Lots of love judi xxxxxxxxxxxx
Sadly Sarah, I think a chunk of my weight is sitting with yours in a laboratory somewhere...maybe that's why the scales aren't showing a gain! Oh well, just means I can eat even more chocolate
Have you been given a new appointment date yet or still waiting to hear?
It was indeed me who said I'd lost the weight. I also am eating things I shouldn't(comfort eating) and my weight seems to have levelled off as well.
Once I'm over this 'sore patch' I will watch it more carefully but as you say will have to eat more calcium rich foods, not good for weight watching. I will find a way though, I wil, I will I will................
Hi Cheryl, one of the members on here (Kentstar) told me about the Macom make of surgery bras and they are wonderful but expensive (although RosemaryAnne managed to point me towards a cheaper one on Ebay which I also bought). Heavenly! I've been wearing a Royce one up to now and it has been painful because it's too tight and they don't make them large enough for my enormous bust (G cup even without the swelling!)
Beryl I know what you mean about gearing yourself up for the worst - time to start stuffing yourself with lots of whole milk & cheese & other calcium rich food I think just in case! Was it you who said you'd lost 50lbs or so recently? I lost 80lbs 2.5 years ago so one of the things I've been conscious of is getting fat again as a result of cancer, or more specifically, because of the amount of comfort eating I've been doing as a result of cancer. I've stuffed my face with bread, cake, biscuits etc for the last few weeks and was astonished to step on the scales this morning and discover I haven't put on any weight. Body must be using all those extra calories to heal itself I guess. Which gives me licence to stuff my face for a bit longer of course....
Yes Sharon it was to set a base line
Wouldn't be surprised if I don't need something - especially as my long bones (legs and arms) really ache since I starrted on the Anastrozole.
I think after the last 3 months I don't assume anything good unless I am told straight it is fine!
Herewego, thankyou for your advice. Was thinking on going back to work on 10th, but I honestly feel it will be too early. I feel good in myself and not too much pain, doing exercises daily. Great tip on sitting in the car, will try at the weekend. How are you doing. Lol xxx
Hi Cheryl, I got the DVD too although I haven't watched it yet (too caught up with Sherlock Holmes DVDs!) but I think the Haven is definitely worth a visit when you're well enough to travel. It's on the other side of London to where I live so travelling there on the tube was nerve-wracking but I only got jostled once so it wasn't too bad.
Thanks Beryl, I'm hoping for no more surgery and straight on to radiotherapy but preparing myself for the worst just in case so no doubt I'll be on the forum crying with fear or relief tomorrow evening!
Glad your boob is a bit less tender now the micropore has gone. Was your scan to set a baseline for future monitoring or something to do with further treatment?
Don't quite know why I feel the need to tell you all about it but I do: my new Macom bras arrived just now and oh my the relief! Honestly, I could cry from how lovely it feels to wear a bra that isn't way too small after a week of squeezing my mangled boob into what felt like an elastic band. Who knew that small pleasures could be so uplifting (if you'll pardon the pun!)
Returned from the scan (bone density) definitely tea and cake - most unscarey test I've had so anyone else don't worry - I did though!.
Have to wait now as results are sent to consultant, and if OK have to have one every 2 years.
Sharon when is your results appointment?
New boob is still sore but not as bad - tomorrow I have to remove the dressings - ouch! Just has stopped me doing the exercises though I do try some of them
Keep smiling ladies
I'm going to the London Haven too, maybe we'll get to meet in person one day which would be lovely! I came out feeling heaps better, they're wonderful aren't they.
So glad to hear you're doing a bit better now
Good luck with your test today Beryl, hope it's one of those painfree non-scary ones and that there will be tea and cake afterwards
Hi Rachel lots of love for tomorrow yesterday i felt on top of the world today i feel rubbish achy joints and feeling really tired having a lazy day hope to do something nice at weekend weather permitting think hubby should treat me to a night away although the nurse said day 7-10 white blood count could drop so prone to infections a few of my friends have stayed away streaming with cold but you cant wrap yourself in cotton wool will be thinking of you tomorrow Love Judi xxxxxxxxxxxxx
Hi ladies just wondered if anyone of you have had skin probs with chemo drugs looked in mirror this morn and looks like i have a few pimples developing on face always had a decent complection for 54!!!!!!!!!! am i going to start looking like an adolescent again!!!!!! Love to you all Judi xxxxxxxx
Hi Sarah and others
You sound as if you are finally climbing out of that dark place you were in. Good-oh
The exercises really help but I'm not allowed to do the wall climbing ones or the one that involves putting your arms round the back. At moment too sore to do most of them but was doing them
It seems everyone is feeling more positive. keep it up ladies
Hi, I am new here and so grateful. Think I posted my details in wrong place. Had wire and dye 27th jan so 1 week today for me and so far not doing bad. Keep a pillow under my arm and across my chest, had right breast surgery, at night and really helps. Love to get back to work by 10th but only if I can cope with driving. Anyone else any tips on driving. Have to wait until 20th feb for results and hope I still have this courage with me. Masses of love and strength to us all. Thanks girls xxx
I had WLE and SNB last June and I had the cording almost immediately. I was really p'd off as I did all my exercises too. I could physically see 'rope' running in two strands down my arm, and I felt the pull into the middle of my palm. I panicked a bit I must admit, but it went COMPLETELY within about 4 weeks. I too had a 'pop' but I was playing badminton at the time - oops! I also had a lump until the underarm scar which was the fluid build up. It disappears gradually over time, and I can still feel a little ridge there now. I think most was fluid but think of the rest as puckering in a bit of cloth. I have had it checked and it is absolutely fine! I think it sounds like your wound is behaving normally.
Take care, Gill
Thanks Herewego, sounds as if it is fairly normal for the axillary wound to be irritating, which is reassuring. Like you I've had no problems with the lumpectomy scar so I'll watch and learn from your experience - hadn't thought about an ingrowing hair, guess it could be that (can't tell you how much I hate having a hairy armpit, yuk!)
Thanks Rose, I'm feeling surprising well and other than the armpit thing I haven't had any trouble at all so reading about all the things everyone else has to put up with makes me feel very lucky. The armpit thing has only just started which is why I'm a bit suspicious but I'm having a laze around at home day today so hopefully it will sort itself out. My new bras should arrive today or tomorrow too and I think that will help as the ones I bought originally are far too small around the cup and very uncomfortable.
I went to The Haven yesterday and had a sort of introductory session and they are sorting out some counselling, massage and other physical therapy sessions for me. It's a beautiful place, exactly like a health spa and felt very relaxing although travelling home on the tube afterwards made me feel a bit anxious (was sitting with my arms across my boobs for fear of being jostled!). Think I'll have to check Ebay to see if they've got any spare bodies for sale, not liking my current one very much...listen to me being an old whinge bag...time to get over myself!
Right, off to watch another episode of Sherlock Holmes from the boxset that arrived yesterday. I missed it when it was on the TV for some reason and can't believe how good it is, especially since I'm not really a Conan Doyle fan.
Hi Sharon- first time round the underarm pain was far worse than that from the breast wound for a couple of weeks.I used a cushion against my chest wall to keep the arm away and relieve pressure on the armpit.
Then it suddenly stopped hurting!
Hope this is reassuring?
How are you feeling in general?
Love, Rose xxx
Morning all 🙂
Glad you're all feeling a bit better this morning. Not liking the sound of cording and micropore allergy/ 3-handed bra fittings at all though & Rose I'm so glad you're getting a bit of help at last - this independence thing is good for some occasions but I don't think post-surgery is one of them!
I'm day 7 post-surgery now and my axillary scar has started to bother me a bit, not painful exactly but uncomfortable although I can't see anything wrong with it. Is that normal do you think? It might just be that I've walked more over the last couple of days and my mahoosive too tight compression bra rubs against it slightly? Or could it be the wall-climbing BCC exercises that I've started today? Gah, hate fretting over my body, like everyone else I'm used to taking it for granted!
Well done Rose - are you going to keep going to the nurse.
have had to take pain killers again today, so this sfternoon am going to curl up with a book.
Dusting is a thing of the past (well at moment) OH has discovered how to use vacuum though. I just wish the housework fairy would come and clean the bathroom - seems it's only me to do it
All done! And even got a compliment on the tidiness of the wound. I can't take any credit for that, but it's good to hear it's not too hideous!
It was kind of a lightbulb moment this morning. I never ask for help, too independant by half, but decided if I can get help with the little things, it makes the bigger ones easier to deal with.
My motto from now on.
Have a good day, everyone
Love, Rose xxx
Bit more comfortable today but hard to put a bra on holding the dressings in place. OH had to help as it's a 3 handed job!!!!!
Well done Sarah with your popping, so pleased you feel better for it.
I read on here that sitting resting your arm raised level with shoulder helps the lymph nodes drain. I do it resting my arm on a settee cushion most evenings.
Don't think I want anyone peering at boob, didn't want OH to but circumstances meant he has had to help.Such amazing colours on it!
Watch out for that micropore!!!!!!!!!!!!!!
Hi Sarah- that pop was probably your cording sorting itself out. They mentioned the "pop" at a support group meeting I went to.
I totally wimped out re the micropore today. Stood there, fingers poised, felt sick, so rang GP and spoke to the nurse. She'll do it for me. Feel like a baby, but hey ho. If she's willing...
Good to hear you have reduced/minimal pain. Makes such a difference. I'm pain free so far today, but it usually picks up later on in the day. Gravity pulling at it, I'm guessing.
Judi, good to hear things are better for you too. If I had a wig I'd probably wear it. Hair washing is a real chore at the mo. have a lovely lunch!
Beryl, don't be a spoilsport! There must be a group of very "special" non-intimates who would love to have us flash at them! (kidding by the way- ex-convent schoolgirl, sitting on walls swinging our legs was a capital offence, let alone flashing anything else!)
Thick snow here, luckily GP only a 2 minute walk away. Really looking forward to getting the itchy stuff replaced.
Have a good day, everyone
Love. Rose xx