Recently diagnosed

[Chez666]

Hi, thanks Sharon, got a bit weepy last night and went to bed at 8pm hence up at 4am! Cazz hope all goes well today, big hugs x.
Beryl, I can't remember them using local an atheistic with the SNB but they must have done but it was horrendously painful thankfully the node was dectected after only one injection, not sure I could have dealt with another and I generally have a high pain threshold...years of being in the fire service!! 😄😄Only had one painkiller so far and that for my locked jaw!!!

[Chez666]

H Judi, just read your post, Really sorry to hear about the chemo and of course you're upset, sending you early morning hugs and lots of love & positive vibes x x s

[keepmumsane]

O judi, it just bites doesnt it.

My surgeon said he was sorry I would need chemo,  but on the other hand herceptin targets her2+so well it was almost good news. Xxx he was slightly embarrassed but said herceptin is the wonder drug,  sadly its only licensed for use with chemo. Booo.

I figure lets Nuke this thing and go home. 

I think my worst moment was when I realised it would take so much time to go through all the treatments.  But now I just want to get on with it.

We can get there,  its just going to need more than sticky plasters and butterfly kisses. 

Xxx so many hugs. Xxx

O the driving thing,  considering I've sat around and eaten fruit cake for 3 weeks best I move my wobbly (anyone else? ) legs and not drive for a bit longer , lol

Xx

Sandie

[JETS]

Hi judi x damn xxx you will get through this though xxx hugs x sarah

[rachel.collins99@talktalk.net]

Me too Sharon...it just seems to be constantly on my mind every minute of the day.
I'm trying really hard to be positive and keep things as 'normal' as humanly possible for myself and daughter...of course I have bad days and expect I'll have plenty more of those,but need to stay strong for my own sake.When I got diagnosed it felt like my whole world had fallen apart,and I really didn't think I would be so 'together' about it all.😊Xxx

[13gerbera]

Rachel I was thinking that just this morning - I had no idea just how much hard work it is to deal with cancer! I sort of knew about the hospital appts and treatments, but all the running around organising stuff and checking day to day things is just exhausting isn't it.  So glad to hear you sounding cheerful though

x

Sharon

[rachel.collins99@talktalk.net]

Lol Sandie....you done well driving so soon!I think I prob could of driven last week,but am still a little tender.Did you have your Mascetomy on your Right too ?X
When does your Chemo start?
I'm def going to having Chemo,been told that already,I'm guessing that must mean I'm triple Neg,but it's all so flipping complicated !
I just want it all gone and to be back to normal..whatever they do.It just takes over your life doesn't it?
Rachel Xxx

[13gerbera]

Hi Cheryl, yay, it's over! Huge great step along the way and must be such a relief.  Hope you can relax for a while now and heal quickly. I'm always faintly amazed by how quickly they get us 'done' and home again but thank heavens they can, as I like that a whole lot better than having to stay in hospital for too long.

Judi, I'm so sorry your results weren't completely clear and you'll need chemo, hopefully it won't need to be too aggresive though as it is just one area/node that had some cancer cells?  That said the prospect of any form of chemo is terrifying I know.

Cazz, totally understand the fear and wish you the best for tomorrow, will be watching the boards for an update.

love to you all

x

Sharon

[rachel.collins99@talktalk.net]

Awwww Judi...I'm sorry lovely...big hugsX
The team will look after you well and now they know exactly what they need to do,you are on your way to the All clear.My initial diagnosis was that I am Her Neg,but my results could change with my Masectomy Results...will you be taking tablets too?Xxx

[rachel.collins99@talktalk.net]

Just need to call Insurance Company really Xx

[rachel.collins99@talktalk.net]

Hi Sarah...it was actually ok😊,it's my right side,so apart from a bit of soft steering,I could safely drive .I shall take it easy though over the next few weeks...carry on walking and catching trains etc,it's certainly saved me petrol money!Xx

[Wendyy]

Judi xx so sorry to hear that. I've been wondering how you got on. Sending lots of love and hugs. xx

[ollisj6]

Hi Ladies just an update went for my results all tests including lymph nodes came back negative barring one and unfortunately im Her2 pos so i need chemo ive been so down in the dumps today ive just cried so much going to see oncologist on Monday Lots of Love to you all Love Judi xxx

[keepmumsane]

Hi lovelies, thinking of you all with your surgeries, its frightening to imagine and I reckon half the reason I feel Awesome now is because I was secretly convinced I wouldnt make it.  Which was clearly hysterical brain thinking..... easy to know now, at the time much harder. They,  them, the medical folk with all their checks and tests Know it will be fine or they just wouldnt do it. Xxxx I think they're a bit competitive and would be terrible losers at scrabble.  😉

Im interested in the driving thing too. Two weeks after my mastectomy I drove everyone home from new years eve party ( 2am , Hilarious as a sober person). I found it uncomfortable, easy enough on long sweeping country roads,  but am still reluctant to drive round town.  Having an automatic became a real plus for once. 

The bumps on the road are jarring and I found myself driving with one hand on my chest. 

Of course its just occured to me I should ring my insurance company and check if Im allowed to...doh! 

Fortunately it will be 6 weeks by the time the children go back to school after summer holidays, as we are rural and theres no bus to our house. Im dreading having to organise transport when chemo starts. 

Lots of people have said they ll help but just getting children ready on time is a major drama in my house. Lol

Sorry wandering. 

Sending you all love. Xxx 

Sandie

[JETS]

Hi Rachel - how did the drive go btw?  I'm in the sticks and will be desperate to drive but have heard differing things from 2/3 weeks up to 6 also depends on insurance etc....

Sarah

[rachel.collins99@talktalk.net]

Hi Sarah...this forum helps so much doesn't it😊xx
You will be fine,it's easy to say not to worry,but we are all here to support you and send you virtual hugs Xxx
Rachel

[JETS]

Hi cazz - happy to admit to being full on terrified this week. At work on lunch break checking forum to keep me sane - it's lovely to read such reassurance from everyone x my bilateral is next Monday I'm usually confident about medical stuff but for some reason this time round I'm v paranoid x like beryl though - plan to be here to see those spring flowers xxx. Let's try not to think about it xx sarah

[rachel.collins99@talktalk.net]

Hi Cazz...I felt the same,couldn't see myself after the op and had all sorts going round in my head...but honestly,you will surprise yourself and sail through it.Positive thoughts and hugs for you,we are all here to give you lots of support X
I'm just waiting for my results now,but will be having Chemo and hopefully Reconstruction at the end of the treatment😊X

[Cazz29]

And thank you everyone, will update you when I'm "done"!! Thinking of everyone going through the same xxxxxxxx

[Cazz29]

Thank you Rachel. Of the 2 people I know personally both had similar experiences to you, one who had lumpectomy 20 years ago found her mastectomy a much easier ride 5 years ago, & the other sailed through hers last year. Perhaps its just because i can't picture myself sat here post-op that I am so worried? Although I am a very strong person I do tend to be pessimistic, hoping that nothing will be as bad as i imagine?
Good luck with the driving, let us know how it goes! Are you having any further treatment? Cazz x

[Wendyy]

Cazz, you're perfectly normal. Hang in there. The relief you'll feel after the op will make you wonder why you were so scared. Sending positive thoughts for tomorrow xx

[rachel.collins99@talktalk.net]

Chez sorry you had a painful SNB😕...have they given you painkillers?Xxx

[rachel.collins99@talktalk.net]

So pleased to hear it's all done Cheryl and your all sorted 😊..they sound wonderful in your hospital,which makes such a big difference!
Take care lovely and rest well Xx Rachel

[Matty2]

Great Chez - seem well on way to recovery. Hugs xx

My Beast will be removed a week today, so relieved to have the date but have less than aweek to sort stuff out - including my garden which I am obsessed with!!!

Cazz I suspect next Monday I will be same as at moment if I think about it too much I a terrified

But then I think of the folk on here who come through the op really quite comfortable and relieved, Will keep you all in mind

berylx

[Wendyy]

Great News Chez. Sounds like a fab anaesthetist. I can't fault our NHS staff. Why was your SNB dreadful? Was it not done under anaesthetic? Now lots of rest and tlc. xx

[rachel.collins99@talktalk.net]

Ps.im actually going to try and drive today!!xx

[rachel.collins99@talktalk.net]

Hey Cazz...You will be fine,but of course your going to worry...that's natural xx
I had a Masectomy /lymph nodes on 18th Dec and couldn't believe how well it went and felt good that the 'bad guy' was gone!...just rest well and do your exercises they give you,it helps lots ...hugs and wishes Rachel xx

[Cazz29]

Left side mastectomy & full node clearance tomorrow as have two areas, 5mm & 7mm, of lobular. No indications of spread to nodes but obviously won't know for sure until results. Just shaking with nerves today, got loads to do but cannot concentrate on anything. Spoken to friends who have both had mastectomy & feel more reassured about that but it's not coming through the op that Is playing on my mind the most, so scared of leaving my family. Is this normal? Not sure I can do this just want to run away 😥

[keepmumsane]

Blooming marvellous!  Xxxx 

Delighted for you.

🙂

[Chez666]

Hi All, it's done, the blighter is out and I came last night. Had SNB which was dreadful, WLE and then lumpectomy, was longer in recovery than theatre and my jaw in left side has locked up!!! Otherwise no painkillers since 5pm and whilst did. It sleep well feel surprisingly bright. My anaesthetist was just fabulous, because of my stroke I was getting myself into a right state about another one and I was finding it hard to get any information from anyone, but he spent 40 mins with me, talked candidly about the risks and his track record and was just brilliant. He came to see me afterwards to check his track record was in tact and I was mega pleased to tell him it was😄😄😄😄😄😄😄. Thanks for all your pearls and messages, they really do mean a lot. Am going to have a nap now but hope Judi your results are good today, pleased to hear that haven are helping Mattt and hope you are doing okay rachel, much love x x

[rachel.collins99@talktalk.net]

Glad your feeling a bit better Beryl...don't worry about the pain,you will get twinges,speak to your nurse tommorow,just to put your mind at rest.
Hope all went well today Cheryl...big hugsxxxxx

[Wendyy]

Beryl, it must be a relief knowing things are happening. Write down a list of your questions and concerns for your meeting with your BCN Much better than thinking of them later. Best of luck xx

[Matty2]

SarahWe could hold hands across the cyber waves

Feel better now, Told family who need to know, roll on Thrusday when I can talk to BCN.

Have had a pain today, lower boob at the side - feels like a 'pull' - really bugging me, woke up with it. Will take pain killers later and see how it is tomorrow

Beryl

[JETS]

Hi beryl xxxday after me - all will be well xxx hold hugs in recovery together x had my pre op last week - had to go for chest X-ray and also have bloods taken ( plus weight height blood pressure stuff ) x just thought I'd mention that as I was completely unprepared for chest X-ray ( took a nano second ) and resulted in me crying xxx we could sell tear perfume couldn't we? Xxx lots love sarah

[Jo_BCC]

Hi Matty2

Please give the helpline team here a ring, and talk to them about your concerns/fears.  Lines are open until 5pm today 0808 800 6000.  They're here to support you through this.

Kind regards

Jo, Moderator

[rachel.collins99@talktalk.net]

Are they tears of happiness Beryl?X
I'm the same,on two threads,so go back and forth!
You haven't got too long to wait which is good 😊X

[Matty2]

Never sure which thread to post on.

Had a phone call - op next Tuesday 13th - result floods of tears

Pre op on Thursday

[rachel.collins99@talktalk.net]

Very true😊...I'll probably wait until after my results too.
I have an appointment with the clinical physiologist Weds,the BCN nurse referred me,so I'm hoping that will help also,xx

[13gerbera]

I'd heard of Haven and know a couple of people who've used them and say they are great so I'll be going along to the London one as soon as I get my final diagnosis and know what's ahead.  Hope they can help all of you too ladies, totally agree that we should take advantage of any and all help that is available, no point suffering if we don't have to is there 🙂

[rachel.collins99@talktalk.net]

It sounds wonderful:)...I would love to go too,but bit further for me,probably about an hour by car and 2 hours by train...I will definatley look at them online and maybe give them a call.

Isnt it lovely that these charities exist for us to use:)xx

[Matty2]

Nearest Haven to me is Hereford - just a 30 min train journey, was advised not to attempt to park there. Also they have offered me massage and reflexology + 4 counselling sessions.

When I went for first interview it was lovely,

They offer prosthesis fitting, bra fitting, diet help and all those other little things as well - and a phone line.

Anyone else there is one in Leeds and one in London as well

Haven is a breast cancer charity

[rachel.collins99@talktalk.net]

Hello ladies...xx

Beryl ive heard of Haven(from a book on my kindle I read),do you have one near you?I think the nearest to me is Hereford.Definately speak to them,as they will able to help you like Wemblo says:)...we all are having good and bad days and need that help sometimes.

Love and hugs for tommorow Chez..will be thinking of you xx

Wemblo,i know where your coming from...Ive not cried as much as I thought I would since my diagnosis(im sure ill make up for it once my chemo starts),but just burst into tears two days ago,because I dropped a tub of butter on the kitchen floor!

big hugs everyone X

[Wendyy]

Hey ladies, those people are there for a reason, this is such a stressful experience take all the help that's out there, says me who's bottled it all up and bursts into tears cos I forgot to take my shopping list with me. Might be time to turn for help.

Chez. Sending love and positivity for tomorrow xx

[Matty2]

Hi Cheryl

All the best for tomorrow- is it 2 to go or 1 - I'm sure you have said - but memory like a seive at the moment

[Chez666]

Beryl, I kniw what you mean, I might do the Same after the op tomorrow, I know this is unlike any other experience but I have been so low the last week, not even able to speak which if you knew me, you would know is not normal. I really do hope that haven can help and am sending lots of love and hugs x x

[Matty2]

I'm NanB

Decided to contact a charity, Haven, that I have already visited as I think I need some counselling as cross between euphoria and tears at the moment. Will be good to talk.

[Chez666]

Congrats beryl, are you granny, nanny or nan or ??? Have a great nye tonight. X x

[ollisj6]

That is the best news ever hopefully i will have the same on Tuesday have a wonderful night Love Judixx

[rachel.collins99@talktalk.net]

Ollis...sound like you had a ball at the hairdressers!I reckon when I know what's happening with my Chemo etc,I'll be down my hairdressers also...treat myself to a new short hairdo!Xx

[rachel.collins99@talktalk.net]

😊beryl that is wonderful news and have a lovely evening celebrating tonight!x
So nice too,that your grandson is coming home,2 things to celebrate!Xx