Hi ladies feel a bit more human today pains in joints have subsided a bit taken painkillers going out for lunch with mum and im going to put my wig on i know ive still got a head of hair at moment but i thought i would get used to it plus im being lazy dont have to wash my own!!!!! hope all my lovely friends are ok love judi xxxx
deja vu post here I'm afraid
I have just returned from he hospital and had wounds checked, cleaned and dressed - consultant peered at it and said Ouch! (isn't it amazing how you get use to non-intimate men peering at your boobs) any way it seems I am having an allergic reaction to micropore,
New gauze dressing is held on me by the bra, and should be better in a few days - boiled water on gauze only to clean it, then put fresh gauze on.
micropore is used to reduce scaring so I guess................... Mind you once this is over won't be flashing at any other non-intimate men anyway !!!!!!!!!!!!!
To avoid posting the same updates multiple times, I'm going to stick with this thread, unless I want to comment specifically on an issue raised.
Otherwise I'd flood the board with repetitive posts and drive folks crazy with boredom and deja vu!
To find out where you've been posting if you click on your name above your photo this brings you to your profile, you should be able to see there where you have posted. I've just had a quick look and see thaty ou've posted in Hormone therapy - coping with fear, radiotherapy, diagnosed with bc
Hope that helps a little.
I'm confused about which threads I've posted in, so thought I'd pop by this one.
So... had 2nd op to (hopefully) clear margins last Monday and got my appointment letter for results today.
It's for the 24th February! Why, why, why are my waits so long? It's ridiculous. All over the country results are coming through in 2 weeks or less. So annoyed. Anyone else out there got 4 week waits every time or is it just Hull?
I'm reluctant to complain because I don't want to aggravate anyone, but when I get invited to give feedback, this is a subject which will most definitely be raised.
Hope everyone's ok today?
Love, Rose xxx
Have a weeping wound or 2 yesterday and today - not pleasant. Phoned GP for appointment at 8 this morning , then phoned BCN who said come into the hospital and see the consultant. So am off there this afternoon and cancelled GP appintment, OH pointed out that it means I still won't have sorted out my cough!!! but I don't care!!
Hi jackie, feeling for you, its totally surreal, sometimes I think the calm is simply because of that. Actually, it all follows a logical sequence, the waiting for results really messes with your mojo.
Mastectomy was remarkably pain less, think I was so happy to wake up I was just buzzed on that.your arm is the worst and i slept lots. The portacath op sucked, maybe I was expecting to feel like the first one. Reckon I've had a less painful shoulder after a good boot off a grumpy clydesdale. Settled fast though. Felt like someone shot me ( I guess..)
Emotional tornado really you never know when it will hit. sometimes it takes a bit to wrestle it back in the box too. Hugs, tough with kids watching your reactions.no where to hide.
Had oncologist meeting today, slated for it after the AC & paclitaxel, so probably august, they do it while you're on herceptin, cos apparently thats so targeted you dont have many side effects.
Im just going with their suggestions really.
How are your children? Are you waiting for the plan to tell them? Mine have been fantastic, but a bit shakey after being farmed out most of last week and this week not looking much better. We have great neighbours so thats a little easier.
I hope your bone scan goes well, mine is wednesday, we'll compare experiences, I nearly dozed off during the mugs. 😉
Everything about this is wierd, I think all the reactions are totally normal.
Xxxmuvh love. Pm if you want
Hey judi, bet if mike tyson did this he'd be a bit weepy too.
Be kind to yourself, I reckon this is mike tyson, the new york marathon, mount everest and the niagra falls in a barrel ....all in one helpful course of treatment. ( Not to mention shark wrestling, snake wrangling and being shot. )
Fear factor has nothing on this.
Much love , xxxxx Sandie
My haematoma were from biopsies before surgery and were quite deep as my cancer was far back near my chest wall, so there was no weeping or leakage but they did make my boob ache and, like you, I think that caused more discomfort than the surgery I've had since then. I asked whether I needed them drained and the doctors said that it was safe to leave them as eventually the body just reabsorbs them. I suspect they were removed during the actual surgery and that is one of the reasons why they took more tissue than they had planned.
Sorry I can't be much help with this one, but I do think you should go back to your doctors about it if it is still causing you pain. I wonder if it is like seroma where they keep filling up again and have to be drained regularly?
Take care of yourself
Hi Judi, that sounds pretty awful so I'm not surprised you're feeling so low. I'd be having a major pity-party by now.
I'd heard about the metallic taste thing, is it something to do with the chemo affecting the lining of the mouth and tongue? I think I read on one of the chemo boards that sucking ice-cubes helps as it restricts the blood vessels in that area so the chemo in those vessels has less effect but I might be getting that totally wrong (I've only read a little bit of the chemo boards).
Hope this is the worst of it for you and it all gets better from here on in.
Sorry you've had to join our rotten 'club' but the members are wonderful and we'll all do our best to help you.
During my various tests throughout December they found several lumps, in fact they even found another one on the morning of my surgery, but only one of them turned out to be cancerous, the others were a harmless cyst, 2 fibroadenoma and what seems to be several haematoma caused by the various biopsies. So, don't panic as it might turn out to be benign and even if it is another spot of cancer, that doesn't mean that it can't be treated.
I'm about a month ahead of you on the journey and still have days where it all feels terrifying, and on those days I scoot on to this forum sharpish as there is always someone who is able to sooth and reassure me. Hope we'll be able to do the same for you too.
Hi Ladies day four after chemo i honestly and truly feel ive done 10 rounds with mike tyson my joints are killing me and my mouth has a metallic taste ugh hope tomorrow brings slightly more energy i feel so sad today i have just had a weepy moment pull yourself together Judi xxxxxxxxxxx
I'm sorry i have no idea whats common, none of it feels common when you first get diagnosed.
I do know ive read other stories with more than one lump. Xxx I had a single mastectomy in december, its not as bad as you think. This is a very frightening, overwhelming time, once they finish their tests and give you a plan it does get oddly easier.
So much love, there is a facebook page for younger women with breast cancer in the uk, its supposed ytobe very helpful too... sharing really works. Im 45 with kids and mine was a grade 3 lump. The information on this site and also the macmillan site is excellent. Google is less helpful. Xx
We're all here for you, we lean on each other.
I hope one of the other ladies has more helpful info too.
Hi Rachel they prescribed steroids day before day chemo and day after i was buzzing cleaning the house top to bottom how funny is that unheard of!!!!!!!! hope you are feeling ok nxt week will be soon here i feel better now mine has started 1 down 3 to go for me then radio then done long way but champagne in fridge ready !! xxxxxxxxx
Oh dear not sure which side effect this is from but my poor hubby cant do anything right today i think he is going to go out for the day oops have finished steroids for this session maybe that,dont feel too bad today achy limbs slight back ache probably nxt few days come crashing down Love to you all Judi xxxxxxx
Hi ladies slept ok felt a bit wishy washy this morn slighty nauseous but perked up a bit now having a lazy day feel like i should be doing something but its cold out there so woodburner on feet up dvd bye for now all my lovely friends Judi xxxxxxxxxxxx
O judi, first penguin off the ice berg. Much love Gorgeous!
Ask if you can get a portacath, no more vein mining. Hideous hideous hideous! Gentle hugs.
Wish I could pop round and put the kettle on for you.
Hi Judi, glad to hear it went OK although the cold cap sounds a bit grim and I'm with you on the horrors of cannula (still feel faint every time someone approaches me with a sharp instrument!) ! At least you're on the way to getting it over with now
Hi ladies got back about 4.30 after my first session feel tired but no adverse reaction while i was there had a problem getting cannula into hand 4th attempt ugh felt sick im still on a high due to steroids tried cold cap wanted to rip it off after 10 mins i was frozen but percieved and it was ok had to give it a whirl three weeks off now until next cycle Love Judi xxxxxxx
OH woke me up at 4 - too late to talk to doctor, all appointments gone- phone tomorrow. Was still sleepy so just said Ok (doh to me)
When I'd woken properly felt like saying you try having a breast amupteted and see what your pain threshold is like - but as of course you all know I can get them over the counter in small amounts!! and I can't b fished to argue.
Tomorrow is another day and I have enough to last me till Sunday
Aw, Beryl, how ridiculous!
I have to say my GP surgery was brilliant this morning. Receptionist actually listened, promised me a callback from a doctor which came in 10 mins, prescription ready at the desk within another 5.( I only live 2 mins walk away). Up till this, I'd only ever visited for annual asthma checks, and have to say I'm impressed.
Some people seem to enjoy piling on extra misery, don't they? Hope you're sorted soon xxxx
Trying to get a prescription for paracetomol as need alot more than you can buy over counter.
Receptionist - What sort of operation
Me - matsectomy
Receptionist - what sort of operation did you say
R What date did you have it?
R Have you used medicatiion from hospital
M yes - and extra storng stuff on prescription off you
R Can you phone back at 3.30, I only have an emergency doctor hereorm
Now do I get a script or not? I know it's only paracetomol but I need more than the usual
Feel a bit brighter myself today.
Surely if all else fails you could bare your boobs to the police and ask them to drive for 2 hours covered in micropore etc.
Cannot believe they would like negative publicity about it - thought - Macmillan do offer advice (legal) about nearly everything. Ask, Phone, e- mail, get advice - you need help from cancer experts about this and do it today,
Good morning, ladies
Hope you are feeling ok? (Stupid question, of course you're not, but hope you're as well as you can be)
Got my calm head back on after last night's meltdown, though very tearful still.
I have written to the Police enclosing copies of my hospital correspondence and if this doesn't melt their stony hearts, nothing will.
Also gave in and have called my GP asking for stronger pain meds, it's so much worse this time round.
Feel better at taking action and determined to make today a better day than yesterday.
Judi, you are not that far away from me (in Hull) so very best wishes from one Yorkshire lass to another!
Love to all, Rose xxxx