I got a pass on the exercises for the next few days. No more wall walking for a while! Now planning how to camouflage the surgical sox at my niece's wedding on Saturday. Determined to wear a dress, might have to make it a long one xx
I've attached a link to the BCC booklet on exercises to do after breast cancer surgery:
I hope this helps
Very best wishes
Thanks Sarah, I know that compared to most and compared to you in particular I've had it easy and cosmetic worries really don't matter. I don't plan to have any more surgery unless it is a medical necessity and I think that's part of the reason I found it so upsetting to end up in such a state. Still, I'll learn to live with it now.
Does anyone know if I am supposed to be doing some particular exercise now that the surgery is done? The hospital didn't mention it but I know some of you were told to do some or is it just for people who had different surgery to me (I had WLE and SNB)? I was planning to carry on walking as much as I can anyway (spent about 3hrs walking around the hospital in the early hours of this morning), but wondered if I should do something more, e.g. arm exercises?
Just read your comment Rosemary and decided to stick with the superglue after all! *throws up in nearest bucket*
Posted a long woeful message on my 'How long does surgery take' thread about my surgery yesterday as I was feeling very sorry for myself but as always you lovely ladies have picked me right back up again. I'm home and pain free (except sore throat from intubation) but the surgery took much more tissue than I had been lead to expect and has left me looking awful. I know that shouldn't matter as it's only cosmetic but it was a shock and made me lose faith in my clinical team as I think they should have warned me instead of just saying it would hardly show 😞
Results in 10 days and if I need more surgery I'm going to ask to be referred to a different hospital but at least it is only 10 days 🙂
How are you doing? Healing OK now?
Hi Beryl- I've been "sticking myself together" since the main dressings were taken off back on NYE. I don't do it every day, was told to change it when it looks "tacky"as it's safe to let it get wet. I feel utterly, literally sick every time I have to do it. Terrified of something coming adrift with the tape. Mine is to support and heal the stitching around the nipple and last time I changed it, just before my 2nd op, there seemed to be an opening where the stitches had vanished so I just stuck it back straight on, and nearly threw up! (Sorry to be so graphic).
Still queasy when i think about it xxx
Just asked on other thread but will ask again
- how you doing Sharon?
I has glue as well!!!!, Now it's just micropore!!!!!!!!!!!!!
Very glad to know you're doing OK Rosemary after what was YOUR LAST SURGERY *shakes fist at gods of breast cancer surgery in threatening way* and laughed about your micropore comment. Bit jealous actually, I seem to be stuck together with some sort of clear glue but I haven't wanted to inspect it too closely yet!
Tht comment about being held together by micropore made me laugh
I am as well. Was given a large roll of it at the hospital and am supposed to stick myself together after every shower to reduce the scarring
Only thing is I just can't mange to get to/see the underneath the new boob bit
Thanks Sandie - maybe I'll just say lump then - makes it sound more manageable. I'll try and avoid the squinty eyes though. Bad enough that my contact lenses now make my eyes too sore to wear - Funny how the "lump" puts everything into perspective.Up until last week I was fretting about growing old - now I just hope I do xx
Hi Sandie! Same here, my front path is starting to look like the entrance to Sleeping Beauty's castle.
Virtual text sent to you as soon as I came round. I know how distraught you must have been while waiting for news...!
Thanks for the giggles xxx
Eileen..in our house I whisper cancer and have squinty eyes...
I also have the mission impossible theme stuck in my head permanantly.. its an odd word to apply to ourselves, it still surprises me. I think its really hard telling family. xxx. I waited till I had a slight plan and then just refferred to it as a lump that needed removing, possibly because I don't often think of it as cancer myself. Stupid cancer.
As for the bra comment. .... facepalm. That needs to go in the things you shouldnt say to a cancer patient thread. Xx
Im going outside to hack a path to the front gate so the chemo nurse can get to my door... although he seems like a knight in shining armour I think the agapanthas may prove difficult with only a thermometer and a file box as weapons.
Love and hugs. Thinking of you
Home, sore and held together with micropore tape!
Everything seems ok and went well. However- and why do I persist in asking questions to which I really don't want to know the answer? - because the tumour is in an awkward place, if they didn't get full clearance this time, the only option will be a mastectomy. I find out in 3 weeks. Waiting again...
Rosie, sorry about your news, but at least you know what you are dealing with and have your plan. PS I am a cat lady too, but not quite up to my mum's level. She had 17 fostered cats when she died. Rehoming them was fun, I can tell you! love your profile pic.
Beryl, how excited are you about the wedding? My daughter got married 5 years ago, perfect day, love reflecting on it. A year later, almost to the day, i was present at her c-section when her gorgeous identical twin girls popped into the world!
Eileen, good luck for next Wednesday. I tend to lose track of days, so may forget to say this nearer to the time.
Lynda, very best wishes for Thursday! (see above)
Sarah- good to see you're rising above the insensitivities. Hope you're enjoying your peaceful week xxx
Off for a nap now, it's been a long, long day- oh, have to say, my consultant came for a pre-op chat and greeted me with "Hi, Rose, how are you doing?". Loved that informality!
Talk to you all tomorrow
Love, Rose xx
PS Those I didn't directly mention doesn't mean I don't care- just run out of energy!!
Thanks Sarah - I am sure you are right about google and I will try to avoid the temptation to look. My op is Wednesday next week. x
Good day at work as operation fixed for next week so thought I'd be better being busy - which I was! Too much thinking and obsessive googling not such a good idea. Waitingis horrible too - now I know I need an op I just want to get on with it . ... Not sure I'll be saying that next week though. Told my son yesterday and step-daughter too so everyone who really matters now knows and I can be open with everyone else. Except I havent told my parents - both in their late 80s so the C -word something they whisper still. Planning to see them next weekend so I guess I'll just have to downplay it so as not to worry them too much. So good to be able to offload here. Love to everyone xx
I got a call to go in earlier than my 4pm appt, so I raced down to the hospital. My results were in but too late for the multi-disciplinary team's meeting, so I have to go back this Thursday morning to get the treatment plan. What they were able to tell me was that it is Grade 2 Ductal and it is 2cm in size and is also in the node. I will need chemo and surgery but they are not sure in what order. That'll be decided at the MDT meeting on Wednesday.
6 x chemo sessions, 3 weeks apart. No drain fitted after surgery and driving after 2 weeks with maybe an overnight stay but possibly out the same day.
More waiting, but at least I am more informed and ready to battle the "Dirty Ductal"
I think 'blue' moments are all part of ot. Can't help thinking work was well meaning but not thought thrpugh - best leave it a couple of days and then respond.
Had some searing pains in new part of me this morning, made it hard to catch a breath but think that was this nerve healing sensation.
Hope all goes well for results day - will think of you Rosie. It's the waiting. When I went last week there was another very 'stressed' couple waiting as well, my daughter was full of wedding plans as she had just found her ideal venue and the other couple joined in, they said it sounded fun, and then we all relaxed - just saying find something happy/relaxing to think about.
Just being chased out for a walk Back later
Sorry may not sound right but i know what I mean - positiveity
Glad you're feeling better about it now.
This is a link to a pic I took of Eric the Squirrel helping himself to the contents of my DIY birdfeeder. I think he has a future in tea leaf reading Makes me smile every time I look at it!
PS Link didn't work - I'll be back shortly!
I think these things hide round corners ready to pounce when we are feeling vulnerable. Perhaps wait a while before replying, when you are in a better place? Or maybe just reply and say thanks for doing the Race for Life but ignore the bra question.
I got an email from Pinterest this morning declaring that today is known as Blue Monday, the most depressing day of the year and here are some cute cat and dog pics to cheer you up.
You have to laugh!
My two week wait for my results is nearly over. My appt is for 4pm today. This forum has really helped me get through it and now I'm counting down the hours. Every little ache or pain or tightness in the chest has been amplified but i'm telling myself this is just down to stress.
I am trying to be positive but 'what if it's too late?' keeps surfacing. I need a prayer or two to help me today.
Had a good laugh at the suggestions for Rose's family
I agree folk just don't get it - there's the you don't look ill ones - the will you be able to do anything
No one realises the psycho trauma we all are going through, (unseen)
So ladies it's good to laugh
(Oh my I have a cough - it is agony I feel as if the implant is going to explode everytime I cough, also hurts to laugh - so sore)
I don't know what anyone else thinks, but are we sometimes our own worst enemies when it comes to getting recognition and respect?
We are brave little soldiers, fighting with all our might, putting on a smiley face and focussing on the positives to save other people's feelings.
They can then do something like run Race for Life (I am NOT disrespecting the people who do that, not at all. It's just in an example in this context) and feel that they have done their bit.
Everyone knows someone who has been "cured" and will tell us about it to "reassure" us.However, I also know people who have come out of this and regained their health,and I also knew people who didn't.
I'm not saying we should go round telling everyone every awful detail of treatment and feelings, but because this is mostly a women's disease and women do cope generally without making a fuss, somehow breast cancer seems to be mainly perceived as a minor cancer, probably a bit worse than flu, but definitely less than mouth ulcers (see previous post!).
Just random thoughts, I don't know how or if anything could or should be changed.
Open for discussion!
Love Rose xx