The original surgeon i had was the one who misdiagnosed me back in December and so i have asked to be referred to a new consultant, recommended by the bc nurse. This new consultant was registrar to a team that has a good reputation apparently. She also specialises in breast reconstruction and when i discussed it with my district nurse she knew of this surgeon and says she is very good. It is hard to know what to do for the best, i will be so grateful to have my health back and a new boob, but it would mean so much to be able to live life as near to normal as possible again. I still have 4 cycles of docetaxel to have and will be meeting with the surgeon in about 5 weeks, it seems like so far off when going through chemo, but half way through the chemo already.
thanks for the advice
In support of LD recons,I can still swim although my boob muscle moves when I swim...........a real breast stroke! LOL!
I am certainly not disabled.I am also very happy with my new boob.I am undergoing rads at the moment and will be devastated if my implant gets damaged.
I had LD and can no longer swim or do lots of things that I could easily do pre-surgery 2 years ago.
If I knew then what I know now I would NOT go for this option. I know the others are longer and longer recovery but by and large they do not leave you disbaled and they most certainly DO give better results on the whole.
If you ARE thinking of LD then please make sure you are FULLY informed of the pitfalls, make sure you have a PLASTIC and not breast surgeon and if you only have a breast surgeon then for your own sake get a 2nd opinion "because you're worth it".
If you want more then PM me.
I can only speak of the LD flap (the only one I am suitable for)- my PS said that it would only adversely affect me if I was into climbing, or if I was a professional skiier or similar. It would not impact on my running & swimming (I guess if I was an olympic swimmer it would, lucky I'm not then).
I had a TRAM flap 3 years after a mastectomy.
Big, big op (8hrs +). Long, slow and painful recovery time (3 months). FANTASTIC result. Stomach scar took longer to heal than breast.
Lower abdomen is still numb 13 years down the line, but I still have the flattish stomach that is a pleasant spin-off of the surgery. Once my PS was happy with my stomach scar and muscles, I've never had any problems in this area with physical activity.
In fact, I had no complications whatsoever at the time, altho' the rate for this kind of op is quite high.
However, shortly after the operation I developed lymphoedema in my arm. I don't think lymphoedema research is sufficiently advanced to confirm whether or not the surgery triggered my developing the condition. I personally feel that the additional surgery to an area already damaged from the mastectomy surgery may have tipped the balance, but have no concrete proof of this.
Good luck with your decision!
Hi, i was just wondering if the surgeon said how the reconstruction will affect your ability to train?? I also run and swim and do martial arts so would be interested to know how back to 'normal' i will be.
I'm a bit like you, in that I had mx 2 1/2 years ago, and I run & swim so was concerned about taking time out from my lifestyle to have a reconstruction. But I have taken the plunge & am now on the waiting list for an LD flap in Leicester. I'm 47 and don't want to spend the rest of my life with one boob. Also I find changing at the gym awkward, and if I go there to both run & swim, I use my contact prosthesis for running, then have to surreptitiously swap to the other one in a pocket in my swimsiut - it's all such a hassle!
I saw a documentary recently about a lady who had either a tram or diep (can't remember which) and ran a 10k very soon after. Can't remember exactly how long, but I was very impressed.
Thank you so much for your last message. I just had a lumpectomy and axillary clearance a few weeks ago, but am now facing a mastectomy (which is v scarey) and - possibly - recon with tram flap. I am also someone who enjoys walking, aerobics, swimming, gardening etc, and am worried about the effect of (and sense in) sacrificing a major back muscle for the sake of breast reconstruction.....
I am really pleased to hear that you seem to have made a great recovery and are still enjoying the active life you had before - well done you!
I know we are not all the same, and can have different experiences, but your message has made me feel much more positive than previously.
A big thank you!
I had tram flap 2 yrs after mast and full node clearance.
It was a long op, I left hospital day 5, managed to walk into hospital on my own for 13 day checkup (it was christmas eve and husband sent to supermarket).
Out on gentle walks weeks 3/4 and back to work and driving week 8/9.
Think I took about 4 momnths before commencing back with my high impact aerobics classes and was fine. Just told the instructor to leave me alone if I I switched to lower impact.
I swim, walk miles, bike, 3 gym classes min a week incl body conditioning with loads of tummy excersises and am fine.
My cons had told me that he has always been very pleased with my movement and recovery but I too was very active pre BC and while having treatment.
I am sure you will soon have a lot of responses from the other forum users. Breast Cancer Care have a booklet on breast reconstruction and an animation describing the different techniques which may be useful for you. I have posted the link below:
I hope this helps
Janet BCC Facilitator
Hi, I have scanned the forums and have seen a few posts from some of you who have had reconstrctions after 2 or more years. I had a mastectomy in June 2006 followed by chemo, lymph node removal op and then rads. I have been reasonably happy with my prosthesis but recently changed to the contact type and in some ways that is more of a hassle, to the extent that I am thinking about reconstruction.
I have a fairly active lifestyle, after a long and arduous return to fitness (dancing, walking, swimming, gym) and I don't want to jeopardise my current lifestyle. So I'd like to hear from anyone who has had a reconstruction after that time. How long did it take to recover and get back to being active again? Was there a lot of pain following the operation? I don't even know what type I would/could have at this stage, so any info would be appreciated.
Is there anyone in the Cambridge area who has had a reconstruction recently?
Thanks in advance for any info.