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Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

17 REPLIES 17

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi Delly

thanks for response, I got a referral to physio for my cording, waiting for an appt. now, doing exercises, small seroma reduced yesterday but wound began to look red. Contacted nurses who got me into see the consultant - amazing! She didn't think it was infected but gave me antibiotics to take home in case it got worse.

Late afternoon today got worse, now is so sore and swelling is starting. At least have been able to start treatment this afternoon and I know its a short term complication, but I don't think I am in for a good night or few days probably.

I was trying to do my accounts for the end of the tax year, maybe theres a link..............

Thanks for listening.

Jennie

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hey Jennie - That's Grrreat news on your path results. Do you have a Breast Care Nurse ?? If so you need yo get in touch with or speak to somenone about your "cording". Takes an awful lot of painful stretching to sort it yourself - a physio can help get it sorted much sooner/ quicker. I find it difficult to believe how things now are, treatment wise, compared to me 9 years ago. 5 days in hosp with physio coming round on day 3 to take us through exercises - not having to look it up on a website . . . . .!!

Seroma's - had them drained three times with 1st boob. Pain aren't they. Feel like you've got a tennis ball. But initially if they're bad and bulbous, get them drained as soon as, otherwise they prevent the skin from healing onto the rib area underneath.

Please do your exercises as often as you can with a little extra gentle push/stretch each session - massively important. And the quicker you get back to your normal mobility, quicker you're back to "normality" again  ????  Welcome to BC SUCKS dot com flower !!!

You sound to be doing reeeeally well

Loadsa love Dellywelly xx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi Delly

thanks for the message. I decided against reconstruction, decided less intervention was what I wanted the most and my one remaining is only an A cup so not so unbalanced.

Got my results today, feeling very, very lucky to have DCIS only, so no chemotherapy. Instead of 4cm as we thought it was 12cm all of my breast tissue.

Margins not clear so likley to have radiotherapy.

Have some seroma and cording right now, unpleasant tightness but getting my energy back, bit sore am doing exercises, though I had to get them from the BCC website, nothing given in hospital.

How are you?

Jennie

 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hello youhoo, 

How are you doing? and did you decide to just go with a mastectomy? giving yourself longer to consider your recon options - if at all. Hope you're recovering well without too much discomfort. Do your exercises like your life depended on it - seriously. At least 3-4 x a day.  Makes a massive difference, your movement/mobility improves more quickly and therefore you recover more quickly.

When you're feeling more up to it, let me/us know how you are. When do you expect your path results Jennie ??

Loving, healing thoughts to you

Dellywelly xx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Thanks so much for your message recovering from op and waiting for pathology now.

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Single mast is far more difficult to match up to an existing natural boob. As you're small, like myself WAS, many surgeons like to offer trans flap recon for self tissues. Delaying recon has it's advantages but also disadvantages - in that you could have had mast AND recon at same so getting it "all done at once and all OUT OF the WAY" quicker, maybe requiring a bit of "tweeking" later to  "match up" better to your natural remaining boob. Results can often be better with immediate.  But, Immediate can be affected by rads should you require following path results from op tissues removed. However, delaying gives your mind and sprit chance to deal with and recover more from the cancer aspect first with longer to research and formulate your recon decision after the physical op recovery.

I've been away 2 days, so am sorry for my delay as it may have swayed you another way. But it's happening tomorrow for you now. If you get this before - you still have options to change mind afore tomorrow,Thursday, surgery wise. BUT I do NOT wish to confuse your decision furthe if you're already resolved and happy with what's happening 2morrow. That's good. SOOO - I'll just wish you well with your op and recov.

Please keep us up to date with how you are, mentally physically so we can do whatever poss to help ease things for you. Yeh?? Hope you have loadsa support family, friends wise - do you ?

Be thinking of you

Lotsa love Delly xxx

 

Mx only - anyone?

What a lovely message, thanks.

I am planning to have Mx only after weighing up all the issues and only being an A cup. Feels like a hard decision but healthy for me in termsof not worrying about further surgery. I wonder how many others are doing this?

I just found a group called flat friends.

Radioactive injection tom afternoon, then home again, then surgery Thursday first thing.

How are you?

Jennie

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Jennie, spoke t oyou on another thread. Are you saying just a mast on Thurs wothout any recon? or have you having recon as well. If so, are you talking implant as you were put off by self tissue ? Be thinking about you flower - hope it all goes well and you are up and about soon.

Delly xx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi

finally have a date for single Mx, this Thursday. I couldn't work out how to send a PM. I was put off own tissue recon.

Hope youre both doing well

Jennie

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi Jennie and Greenleaf.

If you click on the persons name/symbol you want to email to, their profile page will come up and if you look to the right, there a box saying "send an email". OR go to the right hand top of the page where it says SIGN OUT, next to it is an envelope with messages. Click on that, then on the next page click on the COMPOSE NEW MESSAGE TAB    It's taken me ages to get to grips with this forum - still don't know what all the Bookmark, Tag stuff is all about.

Delly xx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

That's good news Jennie - hope things start moving for you soon.

If you have an appointment on Thursday I think I know which surgeon you're seeing - and if I'm right you're in excellent hands Smiley Happy

Good luck and let us know how you get on.

Greenleaf x

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi

thanks both. Have an appoitment with plastic surgeon at last on Thursday. May post again after that when will have more info. Wont mention any names.

Working out of London bit chaotic this week then on holiday next week!

Well done on making your decision, not there yet but need to get on with it as 2 months post diagnosis now.

Thanks again

 

 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi Jennie - am attempting to send you a PM with no success.

 

Thanks for the how-to guide Delly, but I can't see what to click on to send a message? If I click on the "Friends" icon it tells me I don't have sufficient privileges Smiley Happy Eh? Or can the mods help?

 

Thanks.

Greenleaf x

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Jennie - if you want to send a PM (Private Message) to Greenleaf, just click on her name to the left of her posting. It' ll bring up her a box to click on for you to send her an email so you can chat about specifics and surgeon names without it appearing on the forum. The forum moderators don't like names of surgeons being used on line.

Hope things start happening soon for you.

Delly xx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi, I had all my scans & was diagnosed at the Royal Free then had my mx done privately by the same surgeon I saw at The RFH. I think my surgeon is a breast surgeon and a plastic surgeon so he'll be doing my reconstruction (which will prob be around April after I've had radiotherapy). I know some women have one surgeon for their mx and another for their reconstruction. Nice to know there are others on this forum from a similar part of London to me! I'm from NW2 but the RFH is my nearest hospital. 

My surgeon said I had to finish chemo and radiotherapy before having my reconstruction as radio can make the reconstructed breast harden and become misshapen - so I'm having to cope with just one boob which can be disheartening at times. 

I hope you get your MRI soon (maybe ask for it at the RFH?) and that your plastic surgery appt comes through really quickly. 

Take care

Baz xxx 

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Thank you for your response, thats reassuring. I am trying decide between no recon, implant or free flap from top of thigh for a single Mx. I wonder if anyone regrets having a reconstruction? Are you having a delayed recon? Also I am just getting used to how a forum works, how do you chat?

Re: Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi Jennie - I'm having my reconstruction done at the Royal Free, but with an implant, not with my own tissue. Was offered a DIEP flap there but decided against it.  I also have my care at UCLH (was diagnosed Spring last year - and had my original treatment at a different hospital). Don't think we can go into specifics in the open forum, but my experience of both UCLH and the Royal Free have been pretty good. Happy to chat on PM if you think it would help.

greenleaf x

Reconstruction at London Hospitals? Royal Free Hospital? UCLH?

Hi

has anybody had an own tissue reconstruction at the Royal Free Hospital? I am waiting to see a consultant plastic surgeon there, having only seen the registrar on his first day in post.

Has anyone had an implant at UCLH? If so did they follow up OK?

My care is based at UCLH and the delays are getting me down I waited almost a month for an MRI. On the advice of BCC phone line I am about to become a more demanding patient. Two months post diagnosis of DCIS then changed to invasive post MRI then probably back to DCIS on another opinion of MRI and no date in site for my Mx.