My form was sent direct from the Royal College of Surgeons in London as I think this is where the info is being collated.
My PS asked me if I would do it - but never sent the form! Don't think she will now. where do you get the form from?
Hi Lizzie - had forgotten all about it but yes I was asked - op was 31st May -n Hayle Cornwall. I 'll look out for details now
it's a bit behind the times as the only people who can fill it in are people who had mastectomies. Some surgeons are now doing reconstructions on people who had partial mastectomies/lumpectomies
I got sent the wrong one too. I opted to NOT have recon and got the recon questionnaire, they sent me the right one in the end.
I must admit I found a few of the questions did not have an answer that I felt was accurate but this is always the problem with questionnaires and polls.
Thanks for this Lizzie. I was asked if I would like to participate when I had my mastectomy in April. I sent my questionnaire back a few weeks ago. It would be good to see recommendations following this.
Marita- How is your chemo going ?
I was asked and received my questionnaire a few days ago but they sent the wrong one as I have had reconstruction and was sent the one for those who hadn't. I phoned and they were very grateful as the company responsible for sending them made a lot of mistakes. If any one else got the wrong one it's easy to let them no and get the right one sent out.
I was asked too, but am only 4 weeks post op so haven't had follow up questionaire. Will have a look at the site though,
Hi fizzie, yes i was asked to take part, but too early for the follow up questionnaire yet, but will look for the report, thank you
Has anyone else been involved in the current national mastectomy and breast reconstruction audit?
You would have been asked to register when you had your op and then sent a follow up questionnaire around 3 months later.
Even if you haven't taken part in this audit, you might find the result of the first part of the audit interesting. If you do a search on 'national mastectomy and breast reconstruction audit', you should be able to find a site where you can download a pdf of the report.
The findings result in recommendations for the management of patients requiring mastectomy and possible reconstruction which I found useful - the importance of a multidisciplinary team, for example. They're also advocating that more surgeons are trained as oncoplastic specialists (I think there are around 40 of them nationally at present)
Please let me know if you can't find the report and I can send a copy.