I have not had chemo, though I would have done so had it been recommended, but I support anyone's choice to either accept or refuse any treatment, provided they have full information as to the pros and cons. The key here is to be sure you are prepared for the consequences of whatever your decision is, and if there is a recurrance due to the high risk you mention in your post, that you are able to face that possibility with no regrets.
I certainly agree about needing to fuel the body properly, whether having treatment or not, and i certainly, post -active treatment, have a very healthy lifestyle and diet to help avoid a recurrance, but I was not deemed high risk, but still had lumpectomy, radiotherapy, and am taking a hormone tablet daily and know it could still recur.
I don't think anyone can either support or not support your decision about chemo as it has to be your own decision and not influenced by other people one way or the other. I think we tend to look for other people to confirm our own thoughts (e.g. the smoker who doesn't want to give up who would rather focus on Uncle Joe who smoked 60 a day and lived to 100, than on the statistics about diseases caused by smoking). A random analogy, but you see what I mean. Think it's called cognitive bias.
Anyway, hopefully you will get some helpful responses on here and good luck with whatever you choose. x
My mum's cousin's daughter refused chemo about 10 years ago and instead has followed a very strict organic vegan diet, and she is still well. I am going to start chemo in a couple of weeks and am very worried about it, but I know I would be petrified of IT coming back if I don't do it. I can guess how you feel a bit, I absolutely didn't want an implant which I was offered, and opted instead for a reduction which is not a decision on your scale at all, but hope you can understand that I felt I was being very heavily steered in a direction that wasn't right for me. Whatever path we choose, we all wish one another love and good luck xxxx
I'm not going to try and change your mind, and I respect the decision you made. But I thought you might be interested to hear the opposite point of view anyway.
I was 61 when DX with a 3cm Ductal Invasive Carcinoma, Grade 3, Stage 2B, one lymph node affected. I had mastectomy with lymph node biopsy (3 removed). Followed by FEC-T which I found very easy, just a few side effects that they gave me drugs to counteract. I was never sick, never even felt sick, so didn't use the anti sickness tablets they gave me. Apart from one week every cycle, when I felt super tired, I was fine. Surprising as I already had RA, Sjogren's Syndrome, Osteopenia and Bronchiectasis with Pseudomonas colonies in my lungs. I refused Radiotherapy for that reason. But I am taking Anastrazole. I don't have any ill effects from my treatment,
I have developed Vasculitis, but that might have happened anyway as it is a complication of RA, and can be brought on by the cancer itself. But I know a lot of people have problems with the treatments and can understand why they consider not having it, and do refuse it.
So to finish, I just want to wish you all the best, and hope all goes well for you.
Ive been grappling with this since i discovered my lymph nodes clear i had a stage 2 stage 3 only cause aggresive but i found it quickly and in easy place. had lumpdectomy and feel fine. Ive little family, only child, parents dead, my dad made it to 98, two cousins i dont hear from much. I do howver have some good friends one in particular who keeps getting upset cause i say i dont want chemo as she says she wants me around for a long time as she cares. which if no family is nice and other friends who only want best for me. My surgeon told me chemo would only give me a 5 per cent more chance of it not coming back, that didnt seem much m ore chance than if i just have rads and pills, Are you having that, and what was your kind of cancer, and stage. Like you i am worried what chemo can do, having it is no certain way of it not coming back. i read the after effects on here and living alone,although i know my friends would help me, i dread how id feel.Apart from the cancer,for 67 i am very healthy, never smoked, never been overweight, walk for en gland, always eat healhily even more healthily now,planning more exercise classes and have stopped my long term HRT so im putting up my chances anyway.Do i need to put that poison in my body and wreck my immune system and live as a not well person, Seeing oncologist wed, and will listen but i still feel i dont want chemo,june
You sound like a strong and desicive woman so good on you for making your decision.
Lots of us have a difficult decision to make, and it is very personal, how can anybody not respect that decision?
I can't offer your support in the sense that you would like, as I did not refuse and it didn't even cross my mind, but would never try to change your mind and think that you have clearly given it a lot of thought.
Hugs for you.