Thank you for your words of wisdom. My surgery is the 29thMay and i am very calm right now and knowing that my surgery is in and out. So it should go smoothly. Good luck with your radiology. Does it start right after surgery and is it necessary for 6 weeks?
I am from the U.S. and I amm going to have surgery on the 29th. I have lumpectomy, I think that is the word. Then I am going to have radiation. Is this painful? I guess I will have fatigue and that is nothing to look forward to. I must admit I am a little scared of it even though it is only 2 iutes according to the website. If anybody out there is contemplating this or have been through it please tell me sbout your experience. I suppose it is different for every person. Gayla
I haven't logged in for a while and I don't think I have come across you before, but I am really sorry to hear of your situation. This won't help your situation at all, I wish I could, but just to let you know that I had radiotherapy in August last year and at every meeting before I started it was repeated that there was a 1% chance of a second occurance of BC. It just goes to show that the facts are all out there, but the different health services seem to act differently. I am in Somerset and on one side of the county SNB is the norm, whereas on the other side they still do axilliary clearance as fairly norm. I think it depends where you live! I am very fortunate that my hospital seems to be ahead at the moment and their results take 7 - 10 days without fail.
I'm sure they will come up with a plan for you; I will certainly pray they do!
Let's hope they can give you definite news. I find all the waiting and uncertainty so very hard to deal with. I go back to find out if they got clear margins next Tuesday. I'm currently convincing myself it'll be mx, so that I won't be disappointed at whatever they tell me.
I lived in Leeds for about 7 years in the 70s and would probably have stayed if not for something awful that happened which drove me back to Hull. I was in Headingley, and loved (most of) my time there. Worked in the city centre and also had a part time job at the New Inn on Otley Rd which helped with the rent. I was actually in Leeds last week at the Town Hall with my son to see Ocean Colour Scene. Apart from ALWAYS getting lost driving in, I love visiting Leeds, so much going on. You also have a branch of The Haven there, which I'm considering visiting for some of their lovely therapy.
I really hope they can give you some good news after all the stuff you've got to deal with
Lots of love, Rose xxxx
So pleased you made the wedding- it's lovely to get out of the medical scenario and have normal fun, isn't it?
I'm doing fine physically, still those awful prickly feelings, but pain has eased a lot. Waiting, however just does NOT get any easier! Distracting myself by getting involved with the Knitted Knockers group which were mentioned elsewhere on here- do you know about them? Take a look at their website and if you feel you'd like some, pop in an order. You never know, it could be me that makes yours! Feedback is that they are so much lighter and more comfortable than the prostheses given by the hospital. All free ( and you don't often get owt for nowt as we in Yorkshire would say!)
Please keep me updated on how you're doing. You've given me some valuable food for thought, and I appreciate that
Love, Rose xxx
Mine were also picked up on a routine mammogram (4mm, the awkward one! and 7mm)- that moment when you amble in for the follow up, convinced it was a smudge on the film, and then faces turn serious all round is a real life-changer, isn't it?
Results here seem slow, slow, slow compared with other areas. Always at least 4 weeks to come through after every test/surgery, however I like to think that's because I'm a low priority compared with the more urgent cases.I had the 2nd op last Monday, so should find out if I'm clear in 3 weeks. I assume the hormone treatment and radiotherapy conversation will be held then, as long as they don't have to operate again.
I saw the lymphoedema connection when googling, but there's very limited information and more questions than answers as to cause and symptoms on the sites I checked. This site doesn't seem to have any references to it at all. What prognosis and treatment plan have they given you?
Thank you for the reassurance on the hormone treatment. I shall probably give it a try. If it's awful, and I know it might not be, then I shall reserve the right to stop taking it.
How are you feeling? Your surgery was very recent, I hope you're starting to recover?
Love, Rose xx
Thank you, Jill
I've only been on this road for 3 months, so far 2 WLE for 2 grade 1 tumours, clear nodes, simples if they can get clear margins this time, if not Leftie will be off! But with every step forward there's more confusion. First time I saw my consultant I said I wanted a mastectomy- 2 tumours, in "awkward places"- but I was talked out of it, and was happy with her arguements against. Wish I'd stuck to my guns, as it's quite possible I'll end up with one anyway. They didn't seem too convinced they'd be able to clear it pre-2nd-op.
Part of me just wants to go along with recommendations, after all they're the experts, but the more I learn, the more I feel the need to question everything.So much happens with potential consequences. All this exposure to MRI and Mammogram "rays"- is that harmful? Radiotherapy? well, you know only too well about that one. Hormone treatment? I'm well past my 1st menopause (I'm 60) and it was hideous. My BCN told me if after 3 months I end up a gibbering wreck again, then that will be withdrawn, as it doesn't affect outcome that much. Now I'm asking myself, if it doesn't do that much good, why would I have to take it for 5 years?
I know I'm in a much better situation than many, many people on this forum, and I also know there are no guarantees with any part of the treatment for any of us, but my experience of going along what was thought best for me so far will ensure that I shall do a lot more research before committing to any futher course of action'
Please keep in touch, I would love to hear from you
Love, Rose xxx
I am so sorry to read your post and I can feel your anger bouncing off the page. What a hideous turn of events, my heart goes out to you xx
This condition was completely off my radar, and google threw up very little information about it. Even the symptoms and watch-outs are very vague, but it is something I shall raise questions about before I commit to radiotherapy.
I thank you for raising awareness of this potential consequence of what is thought of as a routine part of BC treatment, and send you all best wishes for the future.
Love Rose xxx
On the 24th Dec 2014 I was diagnosed with angiosarcoma , directly caused by the radiotherapy treatment I received in 2009 for my breast cancer , when I was 60 years old .
I am absolutely appalled that the treatment , meant to help has caused this dreadful new cancer . I was not warned of this , nor told what the symptoms might be , so did not know what to look out for .Neither was I consulted or given any choices . I was just told I was to have this treatment .
I had a radical mastectomy on the 13th Jan 2015 , which I am recovering from at the moment . It is very agressive , will probably kill me and I am incandescent that women are not warned of this danger that radiotherapy brings.
Although rare , as more women have wide local excisions plus radiotherapy the instances are growing and I feel that it should recieve more publicty , and women given the facts to make informed choices.
We do not have any particular details of ongoing research for us to share with you at the moment. However, if you would like to talk about this more and how it affects you particularly, please do give our freephone Helpline a call, 9-5 Monday-Friday, 10-2 Saturday; 0808 800 6000.
Best wishes for your upcoming treatment
May I please ask what age group this is targeted at?
I am 60 and have been told to expect radiotherapy as the next stage of treatment.
I would be happy to participate in any research if I fit the criteria
This research looks at options available to older women who make decisions concerning radiotherapy cancer treatment
We know sometimes it is difficult to share such information so if you don’t feel comfortable with it, you don’t have to participate. However, knowing your story and how you feel is important to us and might also help other women that are or will be in a situation similar to yours.
Please click here to find all the details.