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SO WORRIED I NEED SOME ADVICE

21 REPLIES 21
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Re: SO WORRIED I NEED SOME ADVICE

Hi

What type of reconstruction did you have? Were you in hospital long I was told about 6 days which sounds a long time. I hope your results are ok. Thanks for the advice.

Sue

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Re: SO WORRIED I NEED SOME ADVICE

Hi Sue
I had a mastectomy and reconstruction on 21st April and i was amazed at the results of the recon and that I had very little pain. I am getting results on Wednesday. I think it will do you good to get away but please don't worry about op as it wasn't as bad as I had thought it would be.

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Re: SO WORRIED I NEED SOME ADVICE

I'm really sorry to hear your news, Sue. I hope you manage to enjoy your weekend away. The support here is great, so keep coming back.
Be good to yourself
Phili x

kittenkat
Member

Re: SO WORRIED I NEED SOME ADVICE

hi sue, sorry to hear your news, but we're here for you having walked that walk and got the gob smacking news.Keep posting and talking to each other....mary x

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Re: SO WORRIED I NEED SOME ADVICE

So sorry to hear your news Sue and that you have to join us! Mine is grade 2 too. Your emotions will be all over the place, just look at all our posts to see that we are all the same, its a tough journey.
Hope you enjot your weekend away, we did the same between surgeries, its good to have time together away from everyone!

Love Debs xxxxxx

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Re: SO WORRIED I NEED SOME ADVICE

Hi

I'm sorry to hear of your diagnosis. Be patient with yourself, it takes a while to sink in and you're now in for a rollercoaster of emotions. You are doing absolutely the rigght thing in going away- I did that when first diagnosed and it really helped alot.

Keep posting as there are loads of people on here who will be here with you on the journey,

Take care

love Freddie xxxxxxxxxxxxxxxxx

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Re: SO WORRIED I NEED SOME ADVICE

Sue - sorry to hear that it wasn't the news you wanted to hear... {{{hugs}}} hope you manage to enjoy the trip away and remember we are all here for you when you need an ear to bend or shoulder to lean on...
Was he able to tell you today if the tumours were hormone positive or not..?

Theresa

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Re: SO WORRIED I NEED SOME ADVICE

I went for my results today not good news. Both areas were cancerous grade 2. Have been booked in for 26th May for mastectomy and they are doing a reconstruction at the same time. Also having a level 2 axillary clearance. Then yet another wait for full results before deciding on what other treatment.

It is a relief to know but I really don't know what to think, Just really numb at the moment. Iam going away next weekend with my husband, I treated him for Xmas present, so will try to enjoy that and then come back and tackle whats going to happen in the future.

Thanks again for all your kind words.

Sue x

aliceblue
Member

Re: SO WORRIED I NEED SOME ADVICE

Good luck with your results. I had to wait about for a week after the biopsey and it wasn't good news, but at least only in one breast (and now have 4 lumps rather than just the 1 I found). Had surgery last Friday and am now waiting for the full results to see what stage the cancer is at and what other treatment. I found a good weep every now and then, a good laugh and an occassional rather large glass of baileys helped me with all the waiting. Plus I have a 3 year old who gives the best hugs! xxx

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Re: SO WORRIED I NEED SOME ADVICE

Good luck for Friday I think you are so strong even coming on here , before my operation I went into my little shell and dint want too know , I was like an ostrich with my head in the sand. Keep strong you will get through it .....Hugs Abby...

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Re: SO WORRIED I NEED SOME ADVICE

Thanks everyone for being so supportive, Its nice to hear from people that have been or are going through the same thing. Friends and family have been great but don't really no how I am feeling.
Someone asked how old I am as I have a young child. Well I am 48 I had him late in life also have a 27 year old daughter and 25 year old son and 2 grandchildren my little one is 4. I suppose him being so young is making me worry more. Anyway I must be positive and roll on Friday at 9am

Thanks
Sue x

horace
Member

Re: SO WORRIED I NEED SOME ADVICE

Good Luck for tomorrow.The waiting is horrific and there is a lot of waiting involved with bc.I hope you are ok but if it is bc you will feel better once the treatment starts and you know that everything is being done to get rid of it.How old are you?I see you have a little boy,is he your only child?You will find friends and support on here and I can recommend a call to the BC helpline if you need to talk to someone directly.
Love Vx

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Re: SO WORRIED I NEED SOME ADVICE

Hope your results are ok for tomorrow Sue, the waiting is horrible! Brain works overtime!
Once you know there are lots of lovely ladies on her who give advice and support, let us know how you get on, love Debs xxx

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Re: SO WORRIED I NEED SOME ADVICE

Forgot to say - if they have to remove a lump they also have to get "clear margins" around it - ie also remove some normal tissue so they can be sure they have got all the tumour...

Guest user
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Re: SO WORRIED I NEED SOME ADVICE

Hi Sue

Really sorry that you have had to go through this, and two weeks waiting for the results will seem like forever ... no doubt if you take some time to read different posts on the forum you will hear how everyone finds the waiting one of the most difficult things to cope with. Its the uncertainty - and you are right it is difficult to imagine why they think anyone should have to wait so long for their results - I have waited 6 weeks for my biopsy results and still not had them although Im 99.9% certain it will come back benign now - because there is no way they would have left it this long to call me back if it was bad news.
I think results waiting time varies so much from place to place, some people get them the same day ... others days ... others weeks!!! At the end of the day the only way to confirm 100% that anything is BC is the pathology results from the biopsy - so I would hang on to that at the moment and keep everything crossed for a good outcome!

Take care of yourself and best of luck
Sue xxxx

Guest user
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Re: SO WORRIED I NEED SOME ADVICE

Sue - sorry to hear that you are going through this worrying time and i do hope you get good news tomorrow...
I think part of the problem with results is that different cancers show up via different lab tests - i have a very rare aggressive type called IBC and in my case the consultant doing the biopsys (i had a fine needle one and a core biopsy) was able to put a sample under the microscope and see then and there it was IBC.. The core biopsy had to go away to be tested (took a week) - but that was able to say what grade the cancer was and whether it was hormone positive or not...
It might seem he mentioned a possible masectomy very quickly but he will have been going on the size and locations of the lumps he had seen... Sometimes when lumps are in totally different locations in the breast they do a mastectomy (sometimes with immediate reconstruction) as having two lumps removed would result in a mishapen breast...
I know this is a hard time - i am just coming up to the first anniversary of being diagnosed (two weeks after i first went to my gp...) but you will find lots of support here and i hope the news tomorrow is good...

Theresa

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Re: SO WORRIED I NEED SOME ADVICE

Thanks for your advice,i know probably everything is going to be ok eventually but its the waiting know one should have to go through this there must be another way results can be done. if everything is ok I will be so happy but so angry about what I have been put through. will keep you posted about the outcome.

Thanks Sue

Guest user
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Re: SO WORRIED I NEED SOME ADVICE

Hi Sue

That two week wait seems forever, but you've found a good place here to get some advice & support. Not all lumps are cancerous, but it's as well to be prepared to hear bad news. You did the right thing by going to check it out, and although 2 weeks seems a long time, nothing drastic will happen in that time. Strange as it seems, I felt better when I got my results than during the wait for them. The uncertainty and range of possible outcomes was awful. Once I'd got my results I felt there was focus and a route ahead.
Concentrate on being good to yourself and try not to project possibilities.
Take care and good luck
Phili x

Guest user
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Re: SO WORRIED I NEED SOME ADVICE

Hi Sue

It's a year this weekend since I found my lump and was given an urgent referral to the breast clinic. Like you I had a core biopsy straight after my x ray, scan and mammo. The doctor told me then and there that he was 99% sure that it was BC and this was confirmed the following week. Then the whirlwind began - surgery, chemo & rads.

Two weeks does seem like a long wait though, but not much longer now.Hopefully your doctor got it wrong but if not, and it is confirmed, when you get over the initial shock, you adjust and get on with it. It's not the end of the world, although it feels that way at first.

A year ago I thought 'that's it'. It felt as though someone had pressed a pause button on my life. Now my energy levels are back and I'm planning my holidays again.

Good luck for Friday. Let us know how you get on.

Mal

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Re: SO WORRIED I NEED SOME ADVICE

Hi Susjon

Sorry to hear you are going through such a rough time. You've come to the right place though, as there are loads of people on here with great advice and thoughts.

It does seem as if you've had to take an awful lot on board in a short space of time. Everyone seems to have different stories as to how they were diagnosed and the speed. It doesn't seem to match with the diagnosis either so it's hard to advise on what 'normal' is.At first they didn't think mine was BC but it ended up being so in the end.I was recalled and told I had BC before the results of my core biopsy was in. But the results of that were still only 'suspicious' and not definite. I had to have the lump out for them to find out it was DCIS.

Just keep posting and try not to panic. You can only really be sure what's going on when the results are in.

Thinking of you and good luck for Friday,

Love Freddiexxxxxxxxxxxxxxxxxxxxx

Jo_BCC
Member

Re: SO WORRIED I NEED SOME ADVICE

Hi Sue,

Welcome to the Breast Cancer Care discussion forums where I am sure you will receive lots of support from the many informed users of this site. You've come to the right place to support you through this.

If you need someone to talk to in confidence then please do phone BCC's helpline where the staff will be only too happy to talk to you about your concerns at this time. Calls to the helpline are free, 0808 800 6000, lines open Mon to Fri 9am - 5pm and Sat 9am - 2pm.

Hope this helps,

Kind regards,
Jo, Facilitator

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SO WORRIED I NEED SOME ADVICE

14/4 went to the breast clinic for ultra sound. G.P had referred me after I found a lump. I was convinced it was nothing. I first had a mammogram then saw the consultant who said not only seen a lump but another mass. Then gave me an ultra sound he was making lots of comments but I didn't understand, he said he would need to do a core biopsy but not that day. He called in a consultant radiologist and ask the breast cancer nurse to come in by this time I was panicking after a lot of talking he did a core biopsy there and then plus a sample from the lymph gland. After all this they got my husband and said he was very concerned with what he saw and because of the 2 areas that were very close together he would have to do a mastectomy. I was gob smacked to put it mildly. He was saying all this with no real evidence then said come on the 1/5 for the results which was just over 2 weeks. Spoke to the bc nurse asked her why he would say this and she just said its best to prepare me for the worst.

My head is all other the place I don't know what to think I am trying to run my business and look after my little boy. Dose anyone else think this is normal practice. I am going crazy with worry. Help!!

Sue