Hi everyone, just wanted to chip in that I'm another TN girl. I finished all my treatment a month ago and have been really struggling emotionally, even though my pathology and response to treatment was good.
Reading the replies above reminding that "online comminities may not be a representative sample of the population and possibly more likely to be people with issues seeking support than jo bloggs who is just getting on with life" was a real help. It's easy to get swept up in all the negative horror stories, which many times have resulted in me being a panic stricken emotional wreck. I've read some positive stories on here too and they have helped to calm me down a bit. Googling is definitely never a good idea. I am trying to learn to remember the good points about TN and focus on the fact I beat it once, with good results and there is a lot in my favour too. I'm also trying to remember to contact BCN or other medical professional when I'm worried, instead of always turning to the internet - your medical team knows YOUR case and are in the best position to advise.
As for chemo, everyone reacts differently in terms of side effects. I suffered quite badly, but knowing it was doing its job got me through it and looking back now (5 months on) I'd say it was manageable. Rather than freaking out over the fact they're giving it to you even though you're cancer free, try to think of it as a positive - it's a preventative measure and better than not having it in the long run. If there were any odd cells left, the chemo will annihilate them.
Lots of love to you all x
Hi tomorrow will b........
I am sorry to read you're struggling at the moment. I just wanted to remind you that if you need to talk things through or to have a little extra support please don't hesitate to give the BCC helpline a call. Here you can share your feelings and concerns with a member of staff who will offer you a listening ear as well as emotional support and practical information. The number to call is 0808 800 6000 and the lines are open Monday to Friday 9 to 5pm and Saturday 10 to 2pm.
Best wishes Sam, BCC Facilitator