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STARTING CHEMO IN AUGUST 2011

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Re: STARTING CHEMO IN AUGUST 2011

Hi Jiggyloo

FEC-T the letters stand for the individual drugs all one course of treatment but split in two parts I am having FEC for three lots which are Flurorourcil, Epirubicin and Cyclophosphamide and then I have three losts of T which is Docetael know as Taxotere.

May be worth checking to see if you are actually doing FEC-T. Hope that makes sense so when we say we have had our FEC many of us still have the T part to come.

xxx Ducky

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

Morning ladies. Lovely and sunny here this morning,hope it is where you are.

Congratulations Ruby on your win!

Was just wondering why some of you are having FEC/T and others just FEC. I think I'm having 6 FEC.

Angela, I think we all worry every time we have any new aches or pains etc. Good luck with your scan.

xxx

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Re: STARTING CHEMO IN AUGUST 2011

Hi Angela

It's not silly at all every time I get any aches or pains I think the worst. I have had MX with ANC so have quite a long scar I do have a few lumps and bumps since the surgery and have noticed that area around has become more tender since starting the chemo. Think things can take a long time to settle down but always best to get it checked out. When is your ultra sound?

xxx Ducky ((((Hug))))

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Re: STARTING CHEMO IN AUGUST 2011

Hi justlikeaduck, it was WLE I had in July, clear margins and no node involvement, I know I'm being silly but I just can't stop worrying x

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Re: STARTING CHEMO IN AUGUST 2011

Hi Pavlina

I am relieved was getting worried as we had not heard from your for a few days. Glad you have been having a good time lunching with friends. Glad wig is o.k. Also good to know that hopefully T... may not be so bad as FEC hoping to have last FEC on Thursday bloods willing!!!!!! Then on to T if only it was a nice cup of T. and chocolate biscuits.

xxx Ducky.

slinky
Member

Re: STARTING CHEMO IN AUGUST 2011

Evening girls,
Not been on here for a while, just had a couple of busy days doing lunches with friends and had my wig ( Rapunzel) trimmed, she had her first outing today!
I have also met up with my friend who also has a BC and she is due to have her last chemo session next Monday……she looked well and her hair is already starting to grow back! I was asking her about se for FEC-T…..easier on your veins and no nausea and sick feeling, basically different to FEC…..
I have started to freeze my soups which I am making every day….Ruby I have made courgette and watercress soup and thought of your courgette harvest..lol well done on the win, send me the link I could do with some money.. 
I see we have some new faces, welcome to this lovely BWF thread…..and ask away on anything you want…
Hope tomorrow goes well for blood test ladies and for the ones who are having “Molotov”
Speak soon Pavlina
xxxxxxxxxx

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Re: STARTING CHEMO IN AUGUST 2011

Hi Nikki

Mine came out over 3 days and then had just head of wispy hair so shaved it off did leave a little patch in front which looks very silly but I will know when it all falls out completeley. Think the wispy hair is still growing as after a few days I get a bit of stuble which I hate so I shave it again. Its not worth letting mine grow as I will still have to wear wig or scarf and wig fits much better with no hair.
The tender head does go after it has come out.

Hope that makes sense have had a couple of glasses of wine!!!

xxxx Ducky

rubythursday
Community Champion

Re: STARTING CHEMO IN AUGUST 2011

Hi Cleosmum,

I have the Filgrastim injections too - horrid. First lot wiped me out for days with the most horrendous backache and headaches. This time got wise and took Ibuprofen regularly with food as soon as I started doing them and nowhere near as bad, in fact I would say mor than tolerable. Hope that helps?

I cut my hair as short as possible when it started coming out in clumps - it hurt less afterwards..but then I was moulting like the dog, short hairs everywhere. Its a personal choice - I let my kids cut my hair (one time only opportunity!) and I was fine with it - although I do look like Uncle Fester on a bad day now!

ruby.xx

Cleosmum
Member

Re: STARTING CHEMO IN AUGUST 2011

Hi all,
Thank you for the welcome ladies. I had the injections after last chemo that keep the white blood count up (can't remember the name-begins with an F-chemo brain)and that made my legs ache. Is anyone else having them? The se's of jabs were worse than chemo!
What have most of you done about hair? Mine is coming out - I can pluck out clumps and my scalp hurts especially in the wind! Is it best to shave it off or wait a while?
Fingers crossed for everyone's blood counts (my turn tomorrow).
Nicki

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Re: STARTING CHEMO IN AUGUST 2011

CONGRATULATIONS RUBY that will keep you in brushetta for ages!!!!

Ducky xxxx

rubythursday
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Re: STARTING CHEMO IN AUGUST 2011

Well I have just won £250 on a free bingo site - it cost me nothing, now thats something thats put a smile on my face. PM me if you want a link to it - you have nothing to lose!!!! Dont normally indulge in stuff like that but was bored!

Looks like my Hubby and I will be eating well in Harrogate this weekend 🙂

Ruby.xx

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Re: STARTING CHEMO IN AUGUST 2011

Hi Kim
Know what you mean about finishing FEC and going on to part 2.
Will keep fingers crossed for you. Havn't heard about omeprazole stopping anti sickness working. But on reading such a lot of things on other threads have now read that vitamin C can affect chemo working properly. At the start of this I told the onc I was taking vit c and glucosamine was this OK and she said yes carry on. I am getting so confused.

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Re: STARTING CHEMO IN AUGUST 2011

Hi Val

My neuts were 0.68 on monday so hopefully they will reach 1 by Thursday.
Really want to finish the FEC and feel like I am moving on to part 2 as it were. Nurse said today that thinks the omeprazole was stopping the anti-sickness tablets working which was what I thought so will not take these unless I really need them.

Angela please refresh my memory have you had WLE or MX.

Pavlina hope your are o.k havn't heard from you for a few days.

xxx Ducky

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Re: STARTING CHEMO IN AUGUST 2011

Ruby - Had to smile picturing look on posties face. Re the indigestion have you tried omeprazole, quite a few of us on here seem to be taking it. I was told take every morning whether you think you need it or not.
Mavis - Glad you found glossary helpful. Well done to you for the Tai Chi class. I am missing the gym and the pilates class I was doing but was told not to do either until chemo finished. I particulary enjoyed the pilates class so will hopefully get back to it one day.

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Re: STARTING CHEMO IN AUGUST 2011

Hi ladies, had my line checked today and it worked! Tracy my taste buds have gone really strange both times, don't like things I usually do and eating really strong flavours. Wasn't gonna mention this but I'm a bit concerned and need to say it, mentioned to oncologist last week that wound site had changed and was a bit more lumpy etc, so I've to go and see the surgeon tomorrow and have an ultrasound, I'm sure it will be fine but you know what it's like, what if they missed something etc x

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Re: STARTING CHEMO IN AUGUST 2011

Hi Ducky and Tracy
This seems to vary, I was told if they go below 1 they will postpone chemo. I am having mine checked on Thursday in the hope that all is OK for chemo on Friday. Was also told there is nothing at all that you can do to keep neuts up.

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Re: STARTING CHEMO IN AUGUST 2011

Hi Tracy

I had my blood taken on Monday and have just come back from Hospital now my newts are a little low and I to have to have another blood test before the chemo on Thursday. Nurse seem fairly confident that they hopefully will be up by then mine were .68 but not sure what they have to before they will do the chemo. She said they don't like to postpone it but if they are it is more risky to do it as more prone to infection. I was also wondering if there was anything I could do to help the newts (neutrophils) come up. Tracy just found out from another thread that they like the newts to be at least 1 but Oncologists can vary. Did they tell you what yours were.

xxx Ducky.

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Re: STARTING CHEMO IN AUGUST 2011

afternoon ladies..xx
had me bloods done at 1/2 10 this morning and was rung in the middle of tesco at 1/2 1 with the results...nurse asked if i felt ok to which i said yes and have been for the past 3 weeks since first chemo..she then told me that my blood was a lil bit low (cant think wot she called it) and have to have it done again on thursday morning to see if chemo can go ahead....is there anything i can do to get the blood up a bit?
i have been taking me tempreture to make sure nothing is creeping up on me...
if the blood is only a lil bit low will they still zap me?

sivam
Member

Re: STARTING CHEMO IN AUGUST 2011

Hi the glossary on abbreviations has been a whole tutorial in itself thankyou Val for pointing the way.
Today I went to my U3A Tai Chi class first time for 6 weeks it was wonderful to forget this "blessed mess" for 2 hours,hope I can keep this up, including driving there.Came home and the adrenalin just dipped and had my usual recliner chair moment,ok now though.
xxMavis

kinsse
Member

Re: STARTING CHEMO IN AUGUST 2011

Hi i agree with the tap water, in fact I have noticed this time (had 3rd FEC last monday now day 😎 that I am affected by a lot more food this time, milk in tea, my OH red wine and beer smells vile and yes water, but yet I seem to be craving grapefruit and cranberry juice. very weird.
I have no problem with my legs it's my arms and shoulders that really ache - as if I've done a 3 hour gym session, which at the moment I can't even think about
I'm really getting down at the moment as I'm not allowed to work with the children in my school I can only do office work so I'm missing the chatty contact with the kids. Also down as I can't get to the gym, no energy, feeling sick and being sick in the first week and hate no hair and don't like wearing my wig. Roll on 2012 is what I say

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

Tracy,
Agree about tap water tasting horrible and wine which I normally love!
Legs are just achy and really weak sometimes. I think chemo can throw
up all sorts of side effects, not all are mentioned. My oncology
nurse Specialist said chemo does effect every cell in your body so expect anything! Hope your bloods are O.K.

Just off to walk dogs. Bye for now xxx

rubythursday
Community Champion

Re: STARTING CHEMO IN AUGUST 2011

Hi - my legs have been fine (so far) but very fatigued generally - just have to do things in my own time. Also have been allowed to work from home part time so that makes things a little easier!

So far today I have scared the living daylights out of the postwoman, a delivery driver and the meter reader and all because I forgot to pop my headscarf on...hehehe

water tastes ok to me, wine is horrid for about 10 days after each fec. I have heard, although have no idea if it is true or not that Tax is even less kind on tastebuds? Does anyone know if this is true or not?

Ruby.xx

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Re: STARTING CHEMO IN AUGUST 2011

morning ladies..xx
just popped in for a nosey before i go down the docs to have me bloods done..2nd FEC on thursday if bloods ok...can i ask about the legs?? i have read a few post where the legs have been mentioned do you all get it? and why does water taste so bad i thought it was my tap went out and bought bottled and that was as bad..:( do our taste buds stay like this the whole time or come n go?

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Re: STARTING CHEMO IN AUGUST 2011

Morning ladies, day 7 post 2nd FEC and boy had it been rough. The legs are a bit better today, still shattered though, don't know how some of you are managing to work! Hope you all have a good day x

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

Morning all. Hope you are all feeling reasonably well today!

My 2nd FEC chemo was better than first, New anti sickness meds actually worked so although still felt nauseous - no sickness. The fatigue and aching legs are probably worse. Yesterday felt really down and weepy but today I'm determined to lift myself and try to be more positive!
What a roller coaster ride!

Hope you all have a good day xxx

rubythursday
Community Champion

Re: STARTING CHEMO IN AUGUST 2011

Morning Ladies,

Welcome to all you new August ladies - sorry you have to be here but welcome to the virtual family anyway!

Am feeling human again - day 11 after 2nd FEC, was definetely tougher than the last one, particularly digestive wise - lots of acid and indigestion and I think my digestive tract lining is a bit knackered - have very sore nose and anything that goes in even a little bit spicy is umm uncomfortable on the way out shall we say!

Back to work for me albeit part time as cant keep my eyes open for a whole day so need my afternoon nap (God I sound old)

Good luck to anyone being poisoned in the next few days.

Ruby.xx

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Re: STARTING CHEMO IN AUGUST 2011

Jane- Glad you are feeling a little better today, hope you get a good nights sleep tonight. I find a glass of wine helps a little.
Welcome cleosmum I am having 3rd FEC Friday day after you and ducky.
Twinkles daughter named my wig for me she suggested Hope (that is also the name of her best friend) so Hope it is.
Mavis - triple negative is estrogen neg progesterone neg and HER neg it means I can't have Herceptin and some of the other drugs prescribed. If you look to the left hand side you can click on to glossary etc.
I'm off to bed with my book, feeling very tired would be lovely if I could sleep right through but I never do, I will drop off about 12 then wake every 2 hours until about 5.30 and thats it.
Love Val xx

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Re: STARTING CHEMO IN AUGUST 2011

Feeling a bit better today but still a bit down, hard to get myself motivated.

Didn't sleep that well last night so hoping for a better night tonight.

best wishes to all
Jane

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Re: STARTING CHEMO IN AUGUST 2011

Welcome Cleosmum

Of course you can join our cyber family.

I have Invasive Ductual Cancer Grade 2 with 8 out of 17 nodes invloved. My 3rd chemo is on Thursday the same day as your second.
I felt a little sicker with my second but only lasted for 24 hours then a couple days feeling very tender all over guess a bit more tired with the 2nd but blood counts were of course lower than when we start on our 1st.

Please feel free to ask us any questions. We all try to share any knowledge we are gaining along the way.

We are called BWF which stands for Birds without Feathers if you were wondering and we all seem to be naming our wigs so don't worry if we talk a load of rubbish sometimes were all mad my wig is Raquel the Rat and Im sure lots will be along soon to let you know what they have called theirs.

xxxxx (((( HUG )))) Ducky

sivam
Member

Re: STARTING CHEMO IN AUGUST 2011

hi ,thankyou for the welcome to your extra family.
poodlepatch what is triple neg?the anti estrogen diet,sometimes called the caveman diet involves stuff to kill estrogen like broccoli,cauli,cabbage in fact all cruciferous veg,severely limits dairy,legumes,grains potatoes,am missing cheese like crazy!!I also take a supplement called dim(broccoli extract)it helped the Se of Femara,rang BCC to ok taking the supplement not available in the uk though so is expensive.
Is there a glossary on this site to explain abbreviations??having difficulties with the terminology.

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Re: STARTING CHEMO IN AUGUST 2011

can i third that xxx

Cleosmum
Member

Re: STARTING CHEMO IN AUGUST 2011

Hi all, Can I join the family please? I was first dx with high grade DCIS in 2007, and 4 years pretty much to the day found out it had come back. However, this time it was IDC, grade 3, 4cm lump. Have had mx with recon in July, and am having FECT chemo. My first one was 25th Aug so I just scrape in to your group! Am having second FEC on Thursday. Hair starting to come out - I can pull out lumps! How has everyone found 2nd chemo compared to the first?

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Re: STARTING CHEMO IN AUGUST 2011

Can I second the extra family bit.

xxx Ducky

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Re: STARTING CHEMO IN AUGUST 2011

Hi Twinkle - tell your little daughter she is a star for giving my wig the name Hope the hairdo. I couldn't have thought of anything this good. Tell her it is a name that will makes me feel happy. Enjoy the roast. And the shower!!!
Love Val xx
P.S. this really is like having an extra little family on here.

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Re: STARTING CHEMO IN AUGUST 2011

Also, Welcome Mavis, sorry you have to be here with us

Sarah x

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Re: STARTING CHEMO IN AUGUST 2011

Hi all

Jiggyjoo, am sorry to say i did laugh a little bit!! (re falling down thai drain!!) my chemo's at 11.45, so i should be starting just as you finish??

Poodlepatch - my daughter has named your wig Hope the hairdo!!!! (hope is her best friend at school)

Had a good day today, hubby has finally got the shower up and running!! yipppeeee..its only taken 2 years!!!
Got a lovely roast in the oven as i type, missed out yesterday and had rice instead!

Hope everyone is well

Sarah xx

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Re: STARTING CHEMO IN AUGUST 2011

Hi Val

Don't feel guilty I'm normally not this clean and tidy must be the drugs!!!!

Am now doing the ironing and have just made 8 bags for the drain bottles to take to BCN tomorrow when I go for pre assessment. Going to sit down for 5 now and have cuppa and chocolate biscuits.

xxxx Kim

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Re: STARTING CHEMO IN AUGUST 2011

Hi BWF's
Special welcome to Mavis, stay with us and keep posting. I am 70 was diagnosed lobular cancer with 11/14 nodes cancerous. I am also triple neg. Had lumpectomy am now having chemo which is to be followed by radiotherapy. I was told by my onc. that age doesn't come into it as regards treatment. Different hospitals seem to have different ideas. I also had the heart scan. At the risk of sounding a dippy what is an anti estrogen diet? Mind the splinters when chewing altar rails!!
jiggyjoo just shows how different hospitals have different ideas, mine said be careful with paracetamol as theycan mask symptons of high temperature.
Ducky - making me feel guilty reading about all your cleaning and ironing. I have started putting everything in the tumble dryer (even if the label says don't) I find it eliminates a lot of the ironing.
No I won't feel guilty as I have spent today and part of yesterday cooking lots of meals for the freezer. Then when I have bad week, next week all OH has to do is reheat and cook fresh veg. so he can leave his beloved frying pan in the cuboard.
Love to all Val xx

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Re: STARTING CHEMO IN AUGUST 2011

Welcome Mavis

Sorry you have to be on the thread with us. Were all a lovely bunch so post away the expression get it off your chest seems a bit politically incorrect given the circumstances of us all being here but hey ho I was never very tactfull.

We don't mind if your an October starter its an open club with no membership fees just come on and have a good rant and moan if you feel the need.

Hope eveyone else is o.k. I am having a mad blitz on house work don't know whats the matter with me. Spring cleaning in the Autumn maybe because I know I will feel horrible after Thursday.

O.K back to the Vacum cleaner and the iron!!!

xxx ((((hugs to all))))) Ducky

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

Morning every-one. What a horrible day - wind and rain (not good for wigs!)

Ducky - you ask about leg symptoms. Well mine feel really achy and tired. Sometimes feel really weak when I stand up. I still walk the dogs every day but a real effort! One of my legs is worse, I think because I have a weakness there because of past injury. Have spoken to oncology nurse and she said it is quite a common side effect,not mentioned so much as others. She told me to take paracetemol. It drives me mad as I am normally very active! She also said that you can get so many different side effects as chemo affects every cell in your body.
Bye for now xxx

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Re: STARTING CHEMO IN AUGUST 2011

Hi Tracy

Yes the tender head is very normal once most of my hair fell out it got better but did have normal type of headache on an off for about a week, BCN said this was due to hair loss and stress also started to wear wig which made headache.

xxx Ducky

sivam
Member

Re: STARTING CHEMO IN AUGUST 2011

hello ladies,Urged by poodlepatch to add to this thread,I hope you dont mind, I am not very au fait with forum ettiquette.Here goes,I was diagnosed in May after finding a lump on my 77th birthday,inv lob BC.Started Letrozole to shrink tumour,initial bad SE alleviated by a supplement called DIM.MX 11th Aug,harvested 36nodes 28 positive,so my grade1 became grade3.Told my age group would normally have Rad only,but consultant considers me to be a young 77(YAY)so maybe chemo.Onc then gave me dire warnings re age and wants a heart scan to decide pre maybe TAX AND CYCLOPHOSPHAMIDE???.Personally I wish to throw everything at it and will insist on chemo.At the moment I am following anti estrogen diet and chewing the altar rails in my parish church:)Am still having seroma drained on a weekly basis,wish it would dry out.Thankyou Val for persuading me to post,even though I maybe an October chemo starter.Wow what a lot of rambling.
Mavis XX

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Re: STARTING CHEMO IN AUGUST 2011

evening ladies..xx
can i just ask a lil question im on day 2 of molting and my head feels really tender is this normal? i ventured out in a scarf today for the first time thought id give it a go even though i do have hair left..test the waters so to speak..i thought id be nervous but was fine..noticed a couple of people have a stare but i think that was coz of the head band with a huge bow i stuck on me head..lol..my daughter told me off and i had to put it back..:( ..lol
hope you all start feeling better asap..xx

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Re: STARTING CHEMO IN AUGUST 2011

Hi BWF

Can I ask please what symptoms are you getting in your legs.

xxx Ducky

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Re: STARTING CHEMO IN AUGUST 2011

Evening ladies, seems we are all a bit down, that's me day 5 post 2nd FEC, and I feel rough. Jiggyjoo, my legs are driving me mad! The sickness is much better this time but feel really tired but can't sleep and very down, not really weepy just totally fed up. The fact the weather here is like the middle of winter doesn't help. Sorry to moan but it does help, hope we all have better nights x

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

We are all going through a really traumatic life event and it is such a roller coaster ride. One day positive and feeling 'almost' normal,the
next negative, ill and worrying about next chemo session!

I have found acupuncture helpful for nausea,energy levels and anxiety,
Also 'treats' after each chemo session-something to look forward to. This was my daughter's idea.

Twinkle - what tine is your chemo on 21st September? Mine is 9.30. Yes I think we need someone to drag us in! My weak leg is also the worst as I injured it quite badly when I fell down a drain in Thailand a few years ago(don't laugh!!) I wasn't drunk!

Hope you all have a good week - good luck to those having chemo.
xxx

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Re: STARTING CHEMO IN AUGUST 2011

Hi BWF

So sorry everyone is feeling so down.

Ruby read you post and sorry you are having to do all this again but think someone must have put your here for the rest of to be inspired I know you would rather not be here with us but you are truly an inspiration. Can't believe I was crying last Thursday just over a couple of piles how pathetic do I feel now!!!!

Val can't wait to hear what Twinkle's daughter names you wig.

Have been busy washing duvets, mattress covers and such as decided to have a blitz on our bedroom. Just had invite to nieces wedding on December 17th day after my birthday so will be something nice to look forward to. Iam making the order of Service for them so will have to get cracking when I feel o.k.

Off to turn mattress now with OH.

Love and Hugs to all

xxxxx Ducky

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Re: STARTING CHEMO IN AUGUST 2011

Hi Twinkle - I like weird and wonderful
Val xx

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Re: STARTING CHEMO IN AUGUST 2011

To Ruby...Thank you for a huge kick up the bum xxxx

To Val....Thank you to you too, will ask my daughter to think of a name for your wig (i very rarely wear rumple!!) and will get back to you, bear in mind that she's only 3 and may come up with something wierd and wonderful xxx

To Jiggyjoo, we share the same chemo date...think maybe we can convince eachother its a good idea to go in, thanks for the suggesstion for the achy legs, will give it a go, only get it really bad in one leg, but had surgery previously after a car accident so think its attacking the weak spot?? xxx

I am feeling much brighter this afternoon..blitzed my house this morning with the radio blaring, and finally did battle with the ironing and won!! (only taken me a week of staring at it!!)

Hope everyone is feeling brighter this afternoon

Love to all Sarah xx

jiggyjoo
Member

Re: STARTING CHEMO IN AUGUST 2011

Hi,everyone. Just decided to pop in and see how you are all doing.
This chemo is not pleasant and I think we all dread each cycle - seems
to completely take over your life, The 3 weeks come round quickly which I guess is good because we are getting closer to the end!

My chemo 3 is September 21st - but at least is halfway there! The side effects seem to differ each time. This time my new meds. really helped the awful sickness I had on chemo 1. My worst se is really aching legs
but am trying L Glutamine which hospital says is O.K. to take. Has anyone else had this se?

Good luck to all of you and keep POSITIVE!(not easy a lot of the time!)