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Scan tomorrow

58 REPLIES 58

Re: Scan tomorrow

Received hug, thank you Smiley Happy At the moment, unless the appointment is changed, not until 5th Sepember when I see my consultant.It's ages away, but now I'm anxious that I'll get sent an earlier appointment and then I'd worry why! So relieved the lovely radiographer told me my bone scan was fine, otherwise I'd be worried about that too.  xxx

Re: Scan tomorrow

Cheers for the hug, sending a great big one right back at you 🤗 Am hoping to have results by the end of the week. When do you expect yours? Xxx

Re: Scan tomorrow

Yes Michele, as far as tests go CT was ok, but like you I'm feeling really anxious about the results. I'm ok for a while and then my mind goes into overdrive and I think the worst scenario. Even though the consultant said they didn't expect to find anything, I find it difficult to believe as I was told my lymph nodes were clear and then 3 weren't. Have they told you when to expect your results? Hopefully your gut instinct is wrong this time and you think the worst because your anxious.

I replied to you on CK's thread about feeling rude btw.

Sending you a hug xxx

Re: Scan tomorrow

Thanks Jencat. CT was easy, waiting for results not so much. I know we all worry that it has spread but I really do believe 100% that it has ...... hope I'm wrong!!!! Every gut feeling I've had so far has been correct so I'm **bleep**ting myself to put it very politely, not! :o(

Re: Scan tomorrow

Hi Michele, Just wanted to wish you all the best for your CT scan tomorrow. I know you must be feeling anxious, I know I was, so thinking of you and sending a hug xxx

Jill1998
Community Champion

Re: Scan tomorrow

No I would agree with you .Keep this separate a way for you to express things you don't necessarily want to say to your family .

Re: Scan tomorrow

Thank you Jill and Ladybowler
I don't think I would like my daughter to see what I write on here so wouldn't want her to join here if she could see (Hope you don't think that's strange)
Just thinking of a way to get our girls to have one similar where they can do the same thing as we do, read what other members write(as some posts read exactly what I am thinking sometimes so helps me too) and comment or post a thread which may help them? At the moment mine is chatting to her friends and my friends but they aren't going through the same thing. Sorry, does this sound confusing?:p

Re: Scan tomorrow

Thanks Helena, that's a good idea for our girls and thanks too Jill about the reminder! xx

Jill1998
Community Champion

Re: Scan tomorrow

You remind them that any comments are public though - it's easy to forget sometimes that anyone can read what you write .

Re: Scan tomorrow

Jencat and CK

 

There is a thread on the supporting someone with breast cancer section, Families and Friends, I wonder if this might be a good place for your girls to talk?  Just an idea

 

xx

Re: Scan tomorrow

Jencat.
Forgot to say let's have a think about the girls chatting. I'll speak to mine and see if any ideas.
Maybe we could pm each other to start and discuss.
I'm off to work for a few hours today so will be back on tonight
I miss this forum when I don't go on.
Loving us ladies.xxx

Re: Scan tomorrow

Hi Jencat
There's no need to be sorry, just wanted you to know that we are all thinking of you and supporting you. You sound a lot more positive today and will feel a lot better when have a treatment plan!
That's good that ex is stepping up. At times like this we put our differences apart and after all, they are after all the fathers of our daughters!

Regards hair, yes good idea to look for the wig now as you will have that ready and even when we are well again we can still use them on a bad hair day.
I'm having my hair cut short next week and then decide on cold cap or shave! No scarves for me out there but maybe one at home when it might be chilly. Have been pushing my hair back and looking in the mirror lately wondering what I'll look like:D

Good luck again for your scan today. It is worrying doing it and then waiting for results but I remind myself it's all helping towards the road to our recovery
Lots of love.xxx

Re: Scan tomorrow

Hi Ck,

So sorry I hadn't replied to you, I had meant to! Thank you so much for your kind and reassuring message Smiley Happy We're lucky really having our scans so quickly, even though we find them worrying. I was speaking to someone today who has got to wait 18 weeks for a CT scan because it's not cancer related! (frightening really because they don't know for sure it's not)

I agree with you re treatment plan, I hope I will find it easier once I have one. It's the mental strain that I'm finding hard to deal with-at the moment it's this afternoon's CT scan and  feeling scared something else will be found. I know chemo won't be easy, but think I'll be able to cope as long as the scan is clear.

I must say my ex-husband is coming up trumps at the moment (about time!) and offering me one of the wigs his wife sells-she's a hairdresser and said she can cut it and style it to look like me! (if I have one more non bc person telling me about lovely hats etc, I'm going to scream! I know they're only trying to be helpful/supportive, but it's not their hair they're going to lose!) My elder daughter is staying for a few days next week, so I want to go and have a look whilst I've got both girls with me and before I start any treatment. I don't think my ED quite gets why I want to go, my YD does, but I think if I can feel confident about the wig then that's one less thing to deal with.

My daughter was talking to me whilst we were at the hospital on Friday and she said she's finding all this hard. I'm lucky having supportive friends around me, but she hasn't got anyone really to turn to, she sees her dad, but he's not here. Some neighbours and friends have said she can go to them, but I think your idea of a younger persons forum is a really good idea. I mentioned it to her and she thought so too. If there isn't a forum for young people, maybe we should start one? I expect you feel the same, but I find it quite hard trying to be brave for her. Sending a hug xxx

Re: Scan tomorrow

Thanks for the big pants Helena, I think I'm going to need them! Glad you can all fit in them though! Smiley Happy xxx

Re: Scan tomorrow

Hi Michele,

I was convinced I'd got more aches and pains in my bones when I had the bone scan on Friday-they ask you to go through them. I think the girl regretted asking me when I started to reel them off! (and justify why I thought I had them!) I think she took pity on me because she told me unofficially everything was fine, just wear and tear! I think our mind goes into overdrive, I've got CT scan this afternoon and I'm panicking again! The consultant told me the scans are just a precaution and the radiographer told me that too, still worrying though! xx

Re: Scan tomorrow

Morning Jencat!!

 

Great news about your scan and fingers crossed it'll be similarly good news for your CT scan. I also find it rather disconcerting that we suddenly seemed to be spammed with texts, phone calls and letters. Not allowed to forget that we've got cancer for a second - but at least it shows that the NHS is up and at 'em and eager to help us fight this. 

Re: Scan tomorrow

Jencat
Good luck today! I don't think you have seen my comments to you on other posts. Hope you are this one. Thinking of you!

Pecan And Jencat
Regards adverts, they are everywhere but Im thinking more during the day when I didn't watch as much TV so didnt see them!

I got my results on my birthday week and even though it's was pants, I changed my thinking to 'It's a omen I can be treated and will get better Started to do a lot of that lately, even though sometimes I wonder 'What else can hit me!' Up and down!x

Re: Scan tomorrow

So glad the CT looks good, yay xxx. Pecan, you are so right about the ads, they are every 5 mins! It probably is just they we are noticing them more as they now actually relate to US, but my god, they do seem constant, lol. I have a CT on Tuesday, want to get it done now but also am terrified as I'm convinced I have got spread ....... totally normal, I know but have had bone and joint pain for a year along with other issues, so am not in a good place at the mo. On a positive note, I have got some plans if it has spread ....... I will go on an amazing holiday, lol. Love to all xxx

Re: Scan tomorrow

Jencat

 

Heres the tough pants to take with you they have big pockets so that we can all fit in to support you my friend

 

Helena xxxx

 

tough pants.jpg

Re: Scan tomorrow

Re my bone scan on Friday, it's funny how our priorities change isn't it-I was relieved I've got wear and tear on my bones! Smiley Happy xx

Re: Scan tomorrow

Thank you Helena, yes one down, one to go! (what a way to spend a Sunday afternoon!) It was so nice of the radiographer to put me out of my misery on Friday, but worrying about today's CT scan now!  xx

Re: Scan tomorrow

I know Pecan re hospital letters, I received my letter for appointment with consultant yesterday too. Also, when I'm trying to do something unrelated to bc, I recv texts on my phone telling me not to forget my appointment! xx

Re: Scan tomorrow

Thanks Sib, so nice to hear from you. How are you getting on? Think you've had your first chemo, how did it go? It's looking likely that I'll be joining you xx

Re: Scan tomorrow

Glad your ok Jencat and scan went well. I so get what you mean about TV ads it's either cancer or funeral plans!!! That's daytime telly for you! Hugs xxx

Re: Scan tomorrow

Jencat

 

Oh that is really good news, another milestone reached and achieved with good news.

 

I remember when I was diagnosed which was September last year!! there were sooooo many ads especially as it is MacMillan coffee morning month and then October when I had my op was bc month so there was no getting away from it.

 

I too recall when I was having my rads and feeling totally fed up, this child was wheeled in to the area and it made me stop and think how very lucky I was

 

xxx

Re: Scan tomorrow

Jencat, yes, it does seem as if every gambling advert has been replaced with a cancer advert!!!!!

Glad you crawled over that hurdle.  I just received the letter for the appointment with the onc.  Why do I always get them on a Saturday?

Re: Scan tomorrow

I don't know about jumped Ann, I think I just about crawled over! Smiley Happy xx

Re: Scan tomorrow

Hi Jen,
So glad to hear about your scan, another hurdle jumped!
Like you, I remember noticing the cancer ads & continue to do so now, as well as articles in the media, it's just that we're sensitised to it when going through this.
ann x

Re: Scan tomorrow

Hello everyone, thank you all so much for your messages of support for today, I found them really comforting. Spent most of the day at the hospital for bone scan-met a lot of the staff who I saw 2weeks ago when I had my op, which was nice. The nurse who gave me my injection said I was alot calmer today, I don't know how because I was a nervous wreck! I must have been really bad before! Anyway, I had the scan and the radiographer took the images to show the consultant and to see whether anymore pictures were needed. She came back and told me unofficially that everything was fine! I've got degenerative wear and tear! Smiley Happy It was so kind of her to tell me. I hugged her, twice and was about to cry as well, but she said don't cry otherwise my boss will know I've told you and I'll get into trouble!

So one scan down, CT to go! Feel a bit calmer this eve than yesterday, but still worrying about the next scan!

When we were at the hospital we saw a little boy who obviously had cancer which made me think if he's got to deal with it, I need to try and be brave too xxx

Btw, is it just me, but does there seem to be alot of cancer ads on the tv at the moment?! They seem to be popping up all the time! x

Re: Scan tomorrow

I thought that would be aimed at me!!! Hello Jencat - hoping your day has been ok?

Re: Scan tomorrow

Sorry I meant to say that last message was for Rosie!

Re: Scan tomorrow

I read somewhere that you mentioned about using the forum so much, well I'm glad you do! Smiley Happy xx

Re: Scan tomorrow

Thank you so much Cherry for your reassurance and also the deadline info, I didn't realise it had to be done within that timeframe. Thinking of you too and hope everything goes well for you xx

Re: Scan tomorrow

 

Good luck Jencat!! Don't worry that they've fitted your scans in so quickly. The clock is ticking on getting treatment started with the 31/62 day deadline. I didn't realise until I spoke to my breast cancer nurse that if treatment isn't started within this timeframe the hospital doesn't get reimbursed for any of that patient's treatment!! My hospital said they try to abide by these timings but not at the expense of doing everything that is medically necessary prior to treatment - even if that means they're penalised.

 

I was only diagnosed on Wednesday late afternoon but had my CT scan this afternoon and bone scan scheduled for Thursday. I've stopped reading anything into how quickly or slowly I'm seen now. Once you've had your diagnosis confirmed I feel like that's the worst bit over and I just want to get on with it now. I'm sure there are women on this forum thinking "she really doesn't know what's about to hit her..."

Re: Scan tomorrow

Good luck jencat

Debbie xx

Re: Scan tomorrow

All the best. Thinking of you. X
Jill1998
Community Champion

Re: Scan tomorrow

Good luck Jencat .

Re: Scan tomorrow

Sending virtual hugs.

xx

Re: Scan tomorrow

Thank you all for your reassuring replies. I'm just off to the hospital now, so will reply properly later xx

Re: Scan tomorrow

Lovely to hear from you Sib, hope you're doing ok. I hadn't realised (or sorry, I'd forgotten) that you'd had to have scans. Obviously yours were ok, I suppose they have to do them to be 100% sure  xx

Re: Scan tomorrow

Thanks Pecan, I hadn't thought of that xx

Re: Scan tomorrow

Good luck Jencat.

Someone pointed out to me sometime in the last few weeks that things move much faster during the school holidays, as so many people take time away.  A good thing, I think.

Re: Scan tomorrow

Good luck Jencat, don't worry about the scans being so quick, mine were organised very quick and even donebefore I was confirmed with BC (obviously my surgeon was pretty confident I had BC and wanted to give me all results at once).
Sending a hug. Xxx

Re: Scan tomorrow

Good luck for tomorrow and Sunday jencat. Take it as a positive they are moving quickly, and the sooner done, the nearer you are to your next step, which is a bonus. Also less time waiting, as we all know waiting is the worst. X

Re: Scan tomorrow

Hi Jencat
I just think to myself whatever they are doing is to help our road to recovery whether appointments sooner or later, they will have their reasons! Sometimes we wonder why so soon and our mind wanders, and sometimes we wonder why waiting so long, when its only a short while longer. Really we want to get our treatment plan asap so we know what's what and can prepare ourselves! It's the not knowing and then our minds wander! We can't help it, it seems that we are all the same! It's normal!

After I got my treatment plan from Oncologist on Weds I feel surprisingly a little better and relaxed! Doing what I need to do to prepare myself, wig, biscuits etc! Of course Im nervous about the chemo and side effects but its got to be done so Ive decided to deal with it when it arrives!

It seams like a genuine reason your scan is so soon as there's a lot of procedures behind the scenes which we don't see! All the team need to discuss each and everyone of us to make sure we get the best care and there are a lot of departments involved! We just assume they all know everything about us and can answer anything we ask and I'm sure they would like to be able to and that's why b4 seeing any of us the surgeons, aenasthetics, oncologists BCN (all 4 of mine) Radiographers all need to check our details before they see us and make sure they all understand our situations and work together!
So just try to think, every step we do is to help them sort our treatment plan for our roads to recovery!

We will get better And in safe hands!

Try to get some sleep my lovely, you will feel better for it (says me who never sleeps well b4 any appointment)

I've just thought that you have a young daughter simular age as mine. Maybe they should talk too. Is there a forum for our young ones to chat to others?xxx

Re: Scan tomorrow

Thinking of you Jencat and wishing you all the best for tomorrow and Sunday xxx

Re: Scan tomorrow

Thinking about you Jencat for tomoorow.Very big hugs, Jacqui

Re: Scan tomorrow

Jencat

 

It means Multi Disciplinary Team, basically it is all the members of your team coming together in a meeting to discuss your results and agree on the best treatment plan for you specifically, so will include your surgeon, oncologist, breast care nurse etc.

 

Helena xxx

Re: Scan tomorrow

PS What does MDT stand for Helena? xx

Re: Scan tomorrow

Thank you Helena and Ann, for your kind and reassuring words. I think it's just been a lot to get my head around in a short space of time. Up until last Tuesday I was 'just' expecting radiotherapy and even that wasn't definite and now I'm having that, most probably chemo, (I'm a borderline case) possibility of another op to remove rest of nodes (they took 10, cancer in 3) and the bone and CT scans. Hopefully once I've got a treatment plan, it will get easier as everything has been uncertain since I went the breast clinic at the beginning of June xx