Received hug, thank you At the moment, unless the appointment is changed, not until 5th Sepember when I see my consultant.It's ages away, but now I'm anxious that I'll get sent an earlier appointment and then I'd worry why! So relieved the lovely radiographer told me my bone scan was fine, otherwise I'd be worried about that too. xxx
Yes Michele, as far as tests go CT was ok, but like you I'm feeling really anxious about the results. I'm ok for a while and then my mind goes into overdrive and I think the worst scenario. Even though the consultant said they didn't expect to find anything, I find it difficult to believe as I was told my lymph nodes were clear and then 3 weren't. Have they told you when to expect your results? Hopefully your gut instinct is wrong this time and you think the worst because your anxious.
I replied to you on CK's thread about feeling rude btw.
Sending you a hug xxx
Hi Michele, Just wanted to wish you all the best for your CT scan tomorrow. I know you must be feeling anxious, I know I was, so thinking of you and sending a hug xxx
Jencat and CK
There is a thread on the supporting someone with breast cancer section, Families and Friends, I wonder if this might be a good place for your girls to talk? Just an idea
So sorry I hadn't replied to you, I had meant to! Thank you so much for your kind and reassuring message We're lucky really having our scans so quickly, even though we find them worrying. I was speaking to someone today who has got to wait 18 weeks for a CT scan because it's not cancer related! (frightening really because they don't know for sure it's not)
I agree with you re treatment plan, I hope I will find it easier once I have one. It's the mental strain that I'm finding hard to deal with-at the moment it's this afternoon's CT scan and feeling scared something else will be found. I know chemo won't be easy, but think I'll be able to cope as long as the scan is clear.
I must say my ex-husband is coming up trumps at the moment (about time!) and offering me one of the wigs his wife sells-she's a hairdresser and said she can cut it and style it to look like me! (if I have one more non bc person telling me about lovely hats etc, I'm going to scream! I know they're only trying to be helpful/supportive, but it's not their hair they're going to lose!) My elder daughter is staying for a few days next week, so I want to go and have a look whilst I've got both girls with me and before I start any treatment. I don't think my ED quite gets why I want to go, my YD does, but I think if I can feel confident about the wig then that's one less thing to deal with.
My daughter was talking to me whilst we were at the hospital on Friday and she said she's finding all this hard. I'm lucky having supportive friends around me, but she hasn't got anyone really to turn to, she sees her dad, but he's not here. Some neighbours and friends have said she can go to them, but I think your idea of a younger persons forum is a really good idea. I mentioned it to her and she thought so too. If there isn't a forum for young people, maybe we should start one? I expect you feel the same, but I find it quite hard trying to be brave for her. Sending a hug xxx
I was convinced I'd got more aches and pains in my bones when I had the bone scan on Friday-they ask you to go through them. I think the girl regretted asking me when I started to reel them off! (and justify why I thought I had them!) I think she took pity on me because she told me unofficially everything was fine, just wear and tear! I think our mind goes into overdrive, I've got CT scan this afternoon and I'm panicking again! The consultant told me the scans are just a precaution and the radiographer told me that too, still worrying though! xx
Great news about your scan and fingers crossed it'll be similarly good news for your CT scan. I also find it rather disconcerting that we suddenly seemed to be spammed with texts, phone calls and letters. Not allowed to forget that we've got cancer for a second - but at least it shows that the NHS is up and at 'em and eager to help us fight this.
Heres the tough pants to take with you they have big pockets so that we can all fit in to support you my friend
Thank you Helena, yes one down, one to go! (what a way to spend a Sunday afternoon!) It was so nice of the radiographer to put me out of my misery on Friday, but worrying about today's CT scan now! xx
I know Pecan re hospital letters, I received my letter for appointment with consultant yesterday too. Also, when I'm trying to do something unrelated to bc, I recv texts on my phone telling me not to forget my appointment! xx
Thanks Sib, so nice to hear from you. How are you getting on? Think you've had your first chemo, how did it go? It's looking likely that I'll be joining you xx
Oh that is really good news, another milestone reached and achieved with good news.
I remember when I was diagnosed which was September last year!! there were sooooo many ads especially as it is MacMillan coffee morning month and then October when I had my op was bc month so there was no getting away from it.
I too recall when I was having my rads and feeling totally fed up, this child was wheeled in to the area and it made me stop and think how very lucky I was
Jencat, yes, it does seem as if every gambling advert has been replaced with a cancer advert!!!!!
Glad you crawled over that hurdle. I just received the letter for the appointment with the onc. Why do I always get them on a Saturday?
Hello everyone, thank you all so much for your messages of support for today, I found them really comforting. Spent most of the day at the hospital for bone scan-met a lot of the staff who I saw 2weeks ago when I had my op, which was nice. The nurse who gave me my injection said I was alot calmer today, I don't know how because I was a nervous wreck! I must have been really bad before! Anyway, I had the scan and the radiographer took the images to show the consultant and to see whether anymore pictures were needed. She came back and told me unofficially that everything was fine! I've got degenerative wear and tear! It was so kind of her to tell me. I hugged her, twice and was about to cry as well, but she said don't cry otherwise my boss will know I've told you and I'll get into trouble!
So one scan down, CT to go! Feel a bit calmer this eve than yesterday, but still worrying about the next scan!
When we were at the hospital we saw a little boy who obviously had cancer which made me think if he's got to deal with it, I need to try and be brave too xxx
Btw, is it just me, but does there seem to be alot of cancer ads on the tv at the moment?! They seem to be popping up all the time! x
Thank you so much Cherry for your reassurance and also the deadline info, I didn't realise it had to be done within that timeframe. Thinking of you too and hope everything goes well for you xx
Good luck Jencat!! Don't worry that they've fitted your scans in so quickly. The clock is ticking on getting treatment started with the 31/62 day deadline. I didn't realise until I spoke to my breast cancer nurse that if treatment isn't started within this timeframe the hospital doesn't get reimbursed for any of that patient's treatment!! My hospital said they try to abide by these timings but not at the expense of doing everything that is medically necessary prior to treatment - even if that means they're penalised.
I was only diagnosed on Wednesday late afternoon but had my CT scan this afternoon and bone scan scheduled for Thursday. I've stopped reading anything into how quickly or slowly I'm seen now. Once you've had your diagnosis confirmed I feel like that's the worst bit over and I just want to get on with it now. I'm sure there are women on this forum thinking "she really doesn't know what's about to hit her..."
Lovely to hear from you Sib, hope you're doing ok. I hadn't realised (or sorry, I'd forgotten) that you'd had to have scans. Obviously yours were ok, I suppose they have to do them to be 100% sure xx
Good luck Jencat.
Someone pointed out to me sometime in the last few weeks that things move much faster during the school holidays, as so many people take time away. A good thing, I think.
Good luck for tomorrow and Sunday jencat. Take it as a positive they are moving quickly, and the sooner done, the nearer you are to your next step, which is a bonus. Also less time waiting, as we all know waiting is the worst. X
It means Multi Disciplinary Team, basically it is all the members of your team coming together in a meeting to discuss your results and agree on the best treatment plan for you specifically, so will include your surgeon, oncologist, breast care nurse etc.
Thank you Helena and Ann, for your kind and reassuring words. I think it's just been a lot to get my head around in a short space of time. Up until last Tuesday I was 'just' expecting radiotherapy and even that wasn't definite and now I'm having that, most probably chemo, (I'm a borderline case) possibility of another op to remove rest of nodes (they took 10, cancer in 3) and the bone and CT scans. Hopefully once I've got a treatment plan, it will get easier as everything has been uncertain since I went the breast clinic at the beginning of June xx