May I suggest you give the BCC helpline a call to talk through your questions and concerns. Here you will be able to talk with one of our trained members of staff who will offer you a listening ear as well as support and information. The number to call
is FREEPHONE 0808 800 6000 and the lines are normally open Monday to Friday 9am to 5pm and Saturday 9am to 2pm, although it will be closed tomorrow (Monday) due to the Bank Holiday.
Kate (BCC Facilitator)
Hi can anybody advise. I was diagnosed in July 08 with triple negative bc. 7.5mm no node involvement. started getting strange pain in centre of by forehead when pressed in January this year. When i mentioned this to my oncologist, he sent me for a scan which came back clear. I still have this tender spot on forehead which radiates to the back of my head when pressed. I am scared that I may now have secondaries in my brain.
Has anybody had similar symptoms??
Hello I could totally understand how you feel.
i was dx last year when i was 30- my tumour was triple negative. My onc,however still think harvest my egg is a bit too dangerous. So she decided to put me under 2 years of Zoledax togther with 6 FEC chemo and 18 Radios. I have completed chemo and radios for a month now and still under Zoledax- my oncologist said it was not granteed to perseve my fertility but that is a way to try.
We are still in discussion about how long I should be putting on Zoledax as it gives me all the manupausal syptons. So i need to weight out the pros and cons but i am glad that at least my oncologist tried.
Indeed - not being able to have children is somehow very upsetting. But i think it would be good to have my own baby but if i could not i would adopt one- in the end of the day there are so many lovely kids need home....
Hope this helps
I just wanted to say how helpful I found this set of postings - thanks to you all for sharing your experiences. I'm sorry all of you are going through this as well, but it's nice to know that I'm not alone! I was diagnosed last week with breast cancer, HER2+, weakly hormone sensitive and grade 2, but big. they have put me straight onto chemo, followed by a complete mastectomy and reconstruction followed by radio and hormone therapy. I'm 37 and we had just completed a round of (unsuccessful) IVF when I found the lump. We were due to try again in July after getting married so for the last few years we've been focusing very much on having children. I've got no eggs or embryos in storage and they have strongly advised against me going through IVF because of the nature of the cancer. I'm fine with hair loss and a few scars (easy to say at the moment I know!), but like you say, Angletot, the possibility of not having kids is the hardest thing to bear. I'm holding out for the hope that I fall into the 30% or so women that get through this, eggs intact, but at 37 my age is against me - young for breast cancer, old for fertility!! In telling people about this, though, I've heard of several young women in their 20s who have gone through cancer and now have children, so there most definately is hope. take care all and good luck, Lisa
Just thought I would leave a quick post. I'm Katey and was diagnosed in 2005 at the age of 27. I had a mastectomy, ivf, chemo, zoladex & tamoxifen. I came off Zoladex in March last year after 2 1/2 years on it. I got my periods back in December!!! Woo hoo! I am looking positively into the future and hope one day to start a family. I know plenty of women who have gone on to have children after breast cancer so there is some hope.
I am 29 and nine months from diagnosis. Its been a very strange nine months, i too felt totally isolated as everyone else i met through treatment was at least 20 years older than me. In the midst of everything i thought i'd never get my life back, i felt so old and weak and had lots of problems with anxiety. I too had planned to start a family this year and felt blown away by the thought of being made infertile.
Now its like seeing the light at the end of the tunnel. I've recently started back to work part time and been on holiday and feel......nearly like me again. I've been told to wait two years before trying for a child. I've stopped fretting over whether this will happen as its an unknown i have no control over. You've done all you can right now by freezing your eggs so you need to focus on getting yourself through this a day at a time.
I too have just been diagnosed with BC. I'm 29 and single so can completely understand your fears about fertility. I too felt isolated especailly when the hospital said they only see 1-3 people under the age of 40 a year. They only freeze embryos here so i don't know what the future holds. I hope your breast cancer service can help you with that info. My op is the end of the month and i understand about feeling isolated that's why i signed up. I put a post is there any body out there and had really supportive responses,
Hello everyone, I just came across this post and felt the need to comment. I am 44 and was diagnosed at 42 (and i thought i was young)!
It must be so hard for you all,but so much help and support is here for you. Take care love Helen xx
I was diagnosed last year at 24 and am currently nearing the end of treatment.
In terms of freezing eggs it is down to the type of cancer you have and your onc. I wanted to freeze eggs but because I was triple positive I was told that I was putting myself at risk sol decided to listen to my onc and will just have to wait until I'm 29 to find out if I can or can't have children. I wasn't and am not sure if I even want children so it must be really difficult but hopefully because you are younger you won't go through the menopause and fingers crossed will still be able to concieve later on.
I know its hard but you just have to concentrate on you and getting through the treatment... but it is a blessing in disguise because I really know just how much support I have,
I'm 28 years old and i too was diagnosed with BC in jan this year.. i had a lumpectomy 27th feb and ive just started the dreaded chemo. had my first dose last wednesday.
my tumour was small and aggressive (grade 3) and I'm also HER-2 positive which means i can look forward to the herceptin treatment every 3 weeks for a year!
after 6 sessions of chemo i will then have some blasts of radiotherapy, aswel as 5 years of tamoxifen!
I feel unfortunately lucky, that may sound weird but the attention and support i receive has made me realise how many people care about me.
I have 2 children that are 9 and 5, and a step daughter who is also 5. They keep my mind positive, although it all gets a bit too much over the days of chemo..they are very much looking forward to my hair falling out, apparently they are going to help it come out by tugging on it!! They are also keeping a handful for memories.
Its not all bad and once the ball gets rolling it all comes really fast. My advice is to enjoy the times when everyone is rallying around and enjoy being the centre of attention for a while... I DO!!
Hi sorry to hear you have had to join us but welcome.
Reading your post is just like I have written it. I was diagnosed in Septmeber 2005 had to have a mastectomy chemo Radio herceptin and Tamoxifen. Also being told that I may not be able to have children was for me aswell more deverstating than being told I had breast cancer. I was not able to freeze any eggs as mine was HER2 and ER possitive so for me it was too dangerous.
I also know how you feel when u say u feel isolated I do all the time. I have met some wonderful people on here of all ages some even younger than us. Breast cancer care do a fantastic younger womens weekend away you should go on one. I had a great time and it was really nic eot be able to tlak to other younger women eventhough I was the youngest there.
I wish you all the best and keep in touch
Love clairemm x x
I was 40 when diagnosed last year and told my periods probably wouldn't return because of my age.I'm now two chemos down the road and nearly 42 and my periods are as regular as clockwork.I know everybody is different but there is hope.
In addition to the wonderful support you will continue to receive from your fellow forum users,
BCC have published a booklet for those newly diagnosed which may help you to understand more about diagnosis and treatments for breast cancer, you can order it via the following link:
We also have dedicated 'younger womens' services and information about fertility and breast cancer which you can read about via these links:
Please also call our freephone helpline on 0808 800 6000 which is open Monday to Friday 9am-5pm and Saturday 9am-2pm, here you can speak to one of our team who are either specialist breast care nurses or have had an experience of breast cancer themselves and are here to support you and help you through this difficult time.
Hi Angel, you will find lots of young people who are in the same situation as you so don't feel alone! I can remember exactly how you are feeling when I was diagnosed in June 07 at the age of 33. I too, don't have children and we were trying when diagnosed. I felt the same as you that infertility was almost worse than the cancer.
I didn't fertilise eggs and was very worried about fertility and I did lose my periods whilst on chemo, but they did return a couple of months after treatment and I saw my oncologist last week who said there is no reason why I can't go ahead in a year or so and have a family.
I know that I am "the other side" and I know that it is all very scary for you at the moment but look to the future.
Good Luck and best wishes
I have just been diagnosed with BC. I had a lumpectomy which showed a tumor grade 2. Went in for mammogram and further ultrasound today and am now awaiting results and treatment plan.
I have been told another operation (hopefully not a mastectomy), radiotherapy and chemo.
I am totally devasted by the effect it has on fertility, we were planning on starting a family nxt year. In some strange way, it hurts more than the cancer because I know I can beat that but it's nothing I can do about the fertility.
It all feels like a nightmare, is there anyone my age out there who is going through the same?
Does anyone know if there are ways to avoid infertility for so many years? We are freezing my eggs before my treatment begins but we don't want to wait so long...
I feel very confused right now, would like to get in contact with people in similar situation as I feel incredible isolated being so young.