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Secondaries now in brain - anyone else out there?

4 REPLIES 4
Seaside_Lady
Member

Re: Secondaries now in brain - anyone else out there?

oh thanks Sam, will give you a wee call soon xxx

Sam_BCC
Member

Re: Secondaries now in brain - anyone else out there?

Hi seasidelady

I am sorry to read of your recent diagnosis. As tillycat has mentioned if you want to talk things through don't hesitate to give the BCC helpline a call on 0808 800 6000. Here you can share your feelings with someone who will offer you emotional support as well as practical information. The lines are open tomorrow until 2pm and Monday to Friday 9 to 5pm.

Best wishes Sam, BCC Facilitator

Seaside_Lady
Member

Re: Secondaries now in brain - anyone else out there?

Hi tillycat - thanks so much for getting back to me - all a bit weird at the moment! I will have a look at your info and am sure I will be back in touch. It helps so much to have women with same problems. Hope you are doing ok at the moment. Be in touch soon xxx

tillycat
Member

Re: Secondaries now in brain - anyone else out there?

Hi seasidelady
I am so sorry to hear about your diagnosis. It is scary and difficult to deal with (especially the driving)
The BCC helpline is fantastic. I phoned them a lot when I first had the brain mets diagnosis.
If you read my profile you will see that I am in a similar situation to you. Feel free to pm me if you want to chat. Gingerbud has also been diagnosed with brain mets. Gingerbud is being treated for pneumonia at the moment so she may not be able to get straight back to you if you pm her but I know she is always happy to talk to other women with a brain mets diagnosis.. There are lots of others out there. I am sure that some of them will also get in touch.
Cheers
Mx

Seaside_Lady
Member

Secondaries now in brain - anyone else out there?

Hi - I was diagnosed with primary breast cancer in 2000 and was fine till 2009 when I got tiny tumour in my pelvis. Then after about 18 mths it had spread to my ribs and various other bones as well as my liver. Had 18 weeks of taxol, started on herceptin and later tamoxifen. All was going really well,lot of shrinkage/disappearance until (you can guess what is coming) I discovered yesterday that after over a year of settled health, I now have mets in my brain. Two bad things - can no longer drive and will lose my hair for the THIRD time! Am finding out on Monday about treatment but will be 5 or 10 radiotherapy shots and maybe change in hormonal drug. I am in a state of shock or something, despite everyone else about me falling apart, but the worst of all, ridiculous tho it seems, is losing my freedom of driving. Anyway, worse things happen, or so I am told. Just wondering if there is anyone out there in the same boat I can share this with xx