IMHO it is partly because they persist on using the word 'secondary' which only ever seems to equate to second class. Please, please, please drop the 'secondary' and use Metastatic or even Advanced which would at least give those who are not in the know a clue that it is MORE important than 'primary' breast cancer because it is the stage of BC that KILLS.
Stop **bleep** footing around with Pinkness and get to the core of the matter - over 11,000 women and about 77 men will die of this disease this year. That said at least Breast Cancer Care takes some interest, which is more than can be said for any other BC charity I have come across in the UK who all just push Pink and only mention us to get donations to put to Primary BC awareness and research. Internationally only 3% of breast cancer research funding goes to Metastatic Breast Cancer, and 97% to Primary Breast Cancer - why? You may die of the treatment for early stage breast cancer but as far as I am aware breast cancer itself only kills when it has spread outside the breast. Shouldn't the research funding be the other way round?
http://www.youtube.com/watch?v=SILOv8_YJdQ this is a little video I put together - please share it if you feel you can support what it says.
To be honest it seems as though things haven't moved on much in the last couple of years. 'Secondary' breast cancer is exactly that, secondary to early stage breast cancer, secondary in importance, secondary as a priority in the world of breast cancer. This is why I prefer the term Metastatic Breast Cancer, or even Advanced Breast Cancer. Calling us Secondary only reminds me that this is the way we seem to be treated.
30% of those diagnosed with early stage BC will have a recurrence and develop Metastatic BC. It is the kind of BC that kills (I've never found any evidence that early stage BC kills) and yet we get ONE DAY in the Breast Cancer Awareness Month. Shouldn't we be the one's to get the month and early stage get one day?
On average internationally only about 3% of research funding is devoted to Metastatic BC. Early stage BC gets 97%!
I will pass this on and get an update for you.
Does anyone know where on the BCC site there is information on this October's Secondary Awareness Day?
I just clicked on 'News - Media Centre- Breast cancer awareness month october 2013 press pack' on the home page. Very little mention at all of Secondary BC Day - I still don't know what BCC is highlighting in October!