13 October was Secondary Breast Cancer Awareness Day and you may have seen publicity or taken part in some of the activities around it. We’d like to know what you thought of the campaign – please tell us by taking a few minutes to complete a short survey. There are 20 questions and you can skip any that you don’t want to answer. The survey is anonymous – we don't need your name or details. You can complete the survey online, or please get in touch if you’d prefer us to send you a paper copy. If you have any questions please call Jill Ratcliffe in the marketing team at Breast Cancer Care on 020 7960 3422 or email firstname.lastname@example.org
With all good wishes
We've written a post on all our activity around secondary breast cancer awareness day this year, and how many people we've all reached out to so far http://www.breastcancercare.org.uk/news/blog/thank-you-helping-us-shine-spotlight-secondary-breast-c...
Here is a blog post on the US Huffington Post about metastatic breast cancer awareness day.
There was the annual conference of the Metastatic Breast Cancer Network and you can see more details about MBCN's work on their facebook page. On that facebook page people have posted links to coverage in the US press.
While I was looking, I found this film by the Canadian Breast Cancer Network, called "Metastatic begins with ME", which has women talking about their experience. Not sure if it's been linked to before but thought it was interesting.
Thanks mrsblue - Anne, who writes the blog you linked to, wrote a blog about secondary breast cancer awareness day for the Huffington Post UK, which is here http://www.huffingtonpost.co.uk/anne-morgellyn/secondary-breast-cancer-_b_1950563.html
We've updated this page showing all the major coverage of secondary breast cancer awareness day that we're aware of.
Just wanted to report back on the Thunderclap that so many of you participated in. In the end, 426 people signed up to the Thunderclap - we were aiming for 250 so that was really good. Their tweets and Facebook updates directly reached nearly 300,000 people (based on the number of followers and friends of those 426 people) and would have reached many more via retweets etc. Thanks to everyone who helped to raise the profile of secondary breast cancer with this action.
Lou Rall, who is living with secondary breast cancer, recorded this video message about Secondary Breast Cancer Awareness Day.
If you'd like to add to our "Day in the Life" series to show what it's like to be living with a secondary diagnosis you can do that here http://www.breastcancercare.org.uk/secondary-breast-cancer-awareness-day/day-your-life. More than a dozen people have already done so (in addition to the original seven) - so do take a look if you haven't already.
Thanks for the link Moondog.
We had a lovely tweet from Lesley Griffiths, Welsh Minister for Health and Social Services: "@bccare's #spotlight campaign for Secondary Breast Cancer Awareness Day has my full support. Great use of social media #twobbying"
The responses will come in gradually, I think, but already this morning we've had twitter responses from 3 Welsh Assembly members, 6 MSPs and 3 MPs, and we had retweets from cancer networks and other charities as well.
So thank you to everyone who tweeted their MP/MSP/AM this morning. You can still sneak in a tweet if you haven't yet and you can always email or write to them instead. Our campaigns team would love to hear how you get on with any contact with politicians, so do email them on email@example.com.
I think I've seen your tweets southpool 🙂
We've also had supportive tweets from Denise Lewis, Amanda Mealing, Steve Brine MP, Jackson Carlaw MSP and a few others already as well.
We've seen a few more articles today, like this one on MSN http://news.uk.msn.com/health/cancer-ignorance-isolates-women - resulting from a poll we conducted.
Thanks southpool - I'm lining up a tweet to my MP as we speak...
We've also got a message from Jane Hinnrichs, our Chair of Trustees, on our website to mark the day.
Great news on the Thunderclap: we just reached the minimum target of 250 people donating their twitter or facebook status to raise awareness of secondary breast cancer. This means the thunderclap will definitely go out on 13 October.
People can still sign up - and the more people who do, the further the message will reach and the bigger impact it will have - so please do sign up if you haven't already. But for now, thank you for helping us reach that target!
In other news, we have a new blog post on the Breast Cancer Care homepage about our campaign to raise the standards of care for people diagnosed with secondary breast cancer and all the ways you can support the campaign http://www.breastcancercare.org.uk/news/blog/shine-spotlight-secondary-breast-cancer-awareness-day-13-october
Thunderclap is a site that allows you to donate one tweet and/or one facebook update to a particular cause. If (when) we reach our target of 250 people signing up, the Thunderclap site will send out the tweets and updates at the same time (in this case at 1pm on 13 October). The aim is to make a bigger impact than if those updates trickled out over a few weeks. So the updates will appear on Facebook and Twitter all at one time.
Thunderclap is based in New York but they've used an Italian domain so their web address is "Thunderclap It" (thunderclap.it). Quite a lot of sites use other domains for that purpose - either for making their web address spell out a word or phrase, or for making their web address shorter. You can read more about this on Wikipedia.
The "twobby" is a twitter lobby, that is, an online version of a real-life lobby (which is where people would all arrange to see their MP about a specific subject at a particular time). Here are a couple of examples of recent charity lobbies of parliament: social care lobby and brain tumour charities' lobby.
So instead of turning up at Westminster, or the Senedd or Holyrood, we're asking people to tweet their MP between 10am and 12 noon on Friday 12 October to ask them to ask their local Cancer Network to sign up to Breast Cancer Care's standards of care for people living with secondary breast cancer in their area. There are some suggested tweets on our site, as well as info about how you find out who your MP/MSP/AM is and where they are on twitter.
Just wanted to say thank you to everyone who has signed up to the Thunderclap so far. We're up to 70% of the target now, so it feels within reach! Only a few more days to go, though, so if you haven't signed up yet (and asked your friends to too), please do.
Thanks to everyone for trying to bump up support for the twobby and thunderclap.
As you've found Na7asha, trying to get robust statistics about the number of people diagnosed with secondary breast cancer is very difficult, not least because until recently most cancer registries simply weren't recording them. Following Breast Cancer Care's campaign on data collection, cancer registeries in England should now be recording those statistics, although it will take some time before that actually leads to reliable statistics. We are continuing to campaign in Scotland and Wales for collection of data on secondary breast cancer. It is estimated that there are approximately 36,000 people living with secondary breast cancer in the UK.
We are hoping to see more coverage over the next couple of weeks, although it is difficult to predict. We've worked intensively with journalists to explain about secondary breast cancer and that has led to a significant increase in coverage over the past couple of years, which we hope will continue this year. We have worked to integrate messages about secondary breast cancer into our other Breast Cancer Awareness Month activities, so there were models with secondaries in the fashion show as well as video features about their lives. Those videos will feature elsewhere as well, such as in the QVC broadcast on 17 October.
In this week's Woman's Weekly there is a double-page piece on secondary breast cancer, featuring Pauline Polley who was diagnosed 6 years ago. It also mentions Secondary Breast Cancer Awareness Day and the Spotlight campaign. I'll try to keep you updated with any other coverage that we manage to secure - obviously it's not certain until it's actually printed!
In terms of breakfast tv, lizcat, we've had some coverage on This Morning and STV but so far nothing specifically about secondaries. We'll keep trying, of course. This story about Lesley, a radiographer who has been diagnosed with secondary breast cancer, has been covered widely in the Scottish press.
We are hoping for more coverage as Secondary Breast Cancer Awareness Day approaches, and I'll try to keep you posted on that. In the meantime, if you spot anything, post it here on this thread.