I was diagnosed with secondary bone mestatis think that’s spelt wrong in may I had breast cancer 5 years ago and had chemo ans a mastectomy I feel very alone at the moment and would love to have people to talk to x
Hi I got the double whammy of breast cancer and bone mets all at once only a month ago and I know how alone and scared you feel right now. If you’d like to chat I’d be very happy to help if I can. Big hug to you x
Would love to chat to someone with the same diagnosis thanks xx
Sorry to hear u have been given this double whammy would love to chat sending hugs and special thoughts yo you xx
Hello and welcome.
There are loads of us with bone Mets and if you find that thread …you will find lots of support and a bit of humour too. It’s busy but please join in.
We have a private forum with book club, gardening and lots of active threads you might like to get involved with.
Once you get the treatment plan in place you will feel in a better place with it all. It’s lots to take in at dx and takes a lot of tears and time to accept.
Hi Skippy am here if you’d like to chat. Debbie x
Hi Debbie would love to chat x
Hi daisyjane would love to chat to u to x
Hi daisy jane, Skippy and all…
Just read last thread and although not the same i do share a few things in common.
I was 47 when i was diagnosed with Gr3 lobular cancer in 2011…never had a mammogram as at the time the limit was still 50. Like you no symptoms till i looked down one day to see a huge dent in my right breast. Long story short i had everything going to try and prevent any recurrence inc double mastectomy,diep reconstrction, axillary clearance, chemo and radiotherapy.
I should also mention that i had no family history but 2 weeks after me my mum was diagnosed. (we laost her to metastatic disease last august) and then within a year, my sister. Despite this we are told there is not enough evidence to warrant genetic testing.
I went on to hormone therapy and all was well for 2 and half years til i developed a lump on my sterum which for 5 monthe i was told was a sebaceous cyst and left unchecked and undiagnosed. It was actually breast cancer which had spread to my skin. Inow also have it in pleura and bones.
Hormone treatments are no good now because my ER + changed to TN, something i wasnt told about for months after the biopsy.
I can sympathise/empathise and know exactly how you feel. I post mainly on skin mets and sometimes on bone mets. xx
Hi daisy Jane (and all!), I was hoping I’d find a recent post from you. You were so kind to message me a few weeks ago to let me know that you were a newbie too and share your story. I tried to work out how to send you a private message but I don’t think I have that privilege yet!! I hope everything is going well for you (and for all). I’ll update everyone with my progress (which seems so slow but probably isn’t): I’m having a top to toe MRI scan tomorrow then I should be back to see the consultant on the 30th for the results of that and the bone biopsy I had a fortnight ago and hopefully I’ll get a treatment plan, which consultant said was like to be chemo then bone strengtheners. I’d been given tamoxifen and seemed to have a flare up of pain for the first two or three weeks but this seems to have settled down now (still some flushes though, which I can manage because I know that means they are doing the job of reducing my oestrogen levels) Hurray for an early menopause!? Unfortunately the hoarse voice has continued and I’ve now developed some irritation in my chest which makes me cough. I’m not breathless but there just seems to be some tightness there (like I’d imagine asthma would feel like).I’m trying to convince myself this doesn’t mean lung mets and might be a tamoxifen side effect (the CT scan I had early May was clear for soft tissue- ‘just’ bone mets) but I’m not doing a great job of believing that. I’m still going to work and acting as though nothing is wrong there but the morning wake-up time and evenings at home are so tough, trying not to fear the worst and what is to come, and just trying to keep going for my family’s sake and for my own sanity. I’ve an appointment next week with a psychologist who specialises in oncology-I’m trying everything that’s being offered to me- but she’s going to have her work cut out convincing me that there are ways of keeping yourself sane whilst having this condition.My partner has been so supportive but I’m leaving him to watch the footie in peace most evenings so it’s a lonely and scary time when it’s just you and your thoughts.How I wish I could be one of you optimistic ladies. I guess it’s time to pull my socks up and live for the moment, but just now there’s still a lot of worry and woe in me. So sorry everyone; this has turned into a miserable post so feel free to give me a virtual slap across the legs for my negativity?. I hope everyone is doing well and if not, that things soon start to improve for you. I’m still looking through everyone’s posts but I’m not posting much because I think it would be all too negative right now and not helpful to any of you lovely ladies. Daisy Jane -would love to keep in touch as it seems that our stories might be quite similar so far and boy, do I need a dose of your positivity! Lots of love to everyone. Tiger (Grrrh!!! Hear me roar -Ha! As If!) xxx
Hi Skippy, If you don’t mind a misery guts tagging along too I’d love to keep in touch. Believe me, my couple of weeks reading through this forum has taught me that we aren’t alone. Love to you, keep strong xxx
Hello ladies,
was saying to someone only today, that one of the difficult things about this illness is…it sneaks up on us often unawares. Sometimes its hard to find or diagnose. Thats why its so scary, it takes away our confidence in our health status.
so when we get symptoms, its so logical to think well it could be/ must be the cancer…I am a fairly long cancer survivor…my initial diagnosis was in 2001. it was missed in 2000!, When I went along, like Stresshead did , with a dip in my breast. Lobular b cancer doesnt show up on mammos. I had a poorish prognosis then ,but in fact Chemo, followed by Letrozole gave me 11 treatment free years before the mets were diagnosed to liver and bone.
I still get tormented by anxious thoughts when symptoms occur, but I do have my own strategy for trying to deal with them…if im very worried, I get seen by the gp or onc asap. If a symptom comes and goes, then im less worried…as cancer symptoms seem more often to persist, but I always mention them at my appointments with my onc regardless, if only to share a light moment with him! I also chat to the bcc helpline, or my n/spec and I really use this forum too.
I have also discovered that some pains are positional, so I check if it goes away if I move. I have discovered sciatica comes when im stressed, ( so easy to imagine its met pain) I make good use of my chiro!
i hope this helps a little
love and hugs
Moijanxx
Oh, and Tiger, please dont feel you cant post because things seem to be negative, weve all, been there and it does help us, to think we might be able to help others, by sharing our experience. we may often seem optimistic, but weve all had black moments, honestly. Please dont hold back.
love and hugsxx
Tiger, just tried to message you but your message system hasnt been enabled yet.
try leaving a message on one of LizzyBCC’s threads about it…I think they wait to see if we are genuine
eg, not avertisers or other businesses, before they enable pm
Moijan