I can understand your concern as until 4 years ago I thought I had beat BC originally diagnosed 1992. . In the December 2010 I had a 3 year screening which came back clear. However, whilst on holiday in the March my husband notice a couple of small lumps on my back which I took to be bites. On my return I developed a cough which I went to the docs i also had him check the lumps but they din't concern him he said they were cysts. As the cough didn't go I returned a further 3 times and eventually was sent for a x-ray.
My local hospital were really on the ball I had the x-ray at 11 am by 3 pm on the same day I had a call to say I needed to call the doc. They had found sec BC in lungs. I was referred back to the breast clinic where it was diagnosed with skin and bone mets as well pleural effusion. I was started on taxol but my RL collapsed. I was hospitalised for 7 days while they drained 7 litres off my RL it was a relief to be able to breath again. After my chemo I was put on hormone treatment amridex. In April this year I mentioned an ache in my shoulder and agreed to a CT scan. Unfortunately the results were disappointing they had found a small spot in my LL so they changed amridex to exizmetane. I had a follow up CT scan in August but the results floored me they have now found 3 spots on my liver so they have put me on Capicitibane.
I have to think positive otherwise I may as well give up which I'm not ready to do I have to living to do. Stay positive from what I read we are now being classed a having a chronic condition.
Thanks for your reply Helen and your tip re. hanging about the bone mets! I can already feel the warmth coming from this forum. Hope to talk to you again soon.
Thanks so much for your reply - and yes you have helped! I'm realising how good it is to know there is a group of people out there who can respond (and so quickly) to questions and worries or just chat. I have a friend who is recovering from primary bc and its great to talk to her but secondary is so different ...
I can see I need to ask my onc. more questions - I have no idea which actual lymph nodes are involved - just some in the chest and at back of abdomen. When i was first diagnosed in 1991 the climate was very different and I wasn't involved in my treatment; I just followed the doctors instructions really - it was quite archaic compared to how it feels now - we were not encouraged to ask questions so when onc asked me what chemo I had back then, I had no idea. Anyhow sometimes I don't know what questions to ask besides the obvious ones - so this forum is going to be so valuable to me.
When you first started treatment did you try hormone therapy before chemo or is that not appropriate for triple neg bc? Good to know that Cap seems to have halted the progression - fingers crossed for shrinkage at the next scan. I have lots of faith in my new oncologist - he thinks I am a complex case but he's up for a challenge!